[GillParticipant]

I do feel that we are back on the roundabout again.

From Stephen seeing his haematologist 18 days ago he has had a CT scan, an appointment with the radiologist specialist regarding his back pain, a further appointment with the haemotologist, and an appointment with the ENT surgeon regarding the lump on his neck. He is now going to have the lump removed next Tuesday and RT(they think it is a psmacytoma sp?)

Don't get me wrong I am grateful that things move so quickly but I need a calendar with more space for each day.

Gill

PS We have also contacted our GP regarding flu jabs. Don't forget to book yours if you do not get called up. The receptionist did say that the list had been updated this year as last year Stephen just got on it and I had to talk to the GP before I got a jab.

I think that mm peeps get it but their nearest and dearest are classed as "could be carriers" so should have it too although some areas didn't seem to have this information last year. Please ask either your surgery or the nurses on here.

PS on a lighter note my spelling is pants. Anybody know any memorable ruses to remember where the Es and As go in words like haematology? sp? Or any other spelling tips

I used to have trouble with the difference in spelling the collective word you would use for envelopes, writing paper etc. and for cars that were not moving.

My manager at the time (a much older lady than me and very proper in her English) told me to remember StationEry has an E in it for Envelope

[ChelleMcParticipant]

Hi,
Just wanted to wish you both good luck on the op. I'm sure everything will go fine. I'd love to say don't worry but as a carer myself I know that's not possible. 🙂
Last year my husband got his flu jab so hopefully he is on the list this year. My GP's front desk can be awful. If you don't get a letter they won't do anything and don't want to hear about it. They are always so difficult to deal with. But I could rant about them forever…
Anyway, best of luck with everything & update us on how things go.

~Chelle

[brochoParticipant]

Hi Gill I am glad Stephen has got a date at last ,it seems ages since you first mentioned his lump As for the full diary what social butterflies we are!! Thanks for the reminder about the flu jab I am hopeless at booking them so have now left myself notes around the house , like thats going to work!! Take care and good luck for the op Bridget x

[gina45Participant]

Hi Gill just want to wish you both good luck. You are right about the space on your calender its never ending. Please keep us posted on how everything goes
Gina xx

[eveParticipant]

Hi Gill
Just to wish you and Stephen good luck,hope every thing goes to plan,and you can have a bit of a rest soon,have noticed you are another one,who burns the midnight oil,terrible when sleep will just not come:-(
The rugby has taken over from the post on here a little bit,I enjoy the solitude of the early hours,If I want to feel a bit sorry for myself it,s usually in the early hrs,but with Slim being on Velcade he cannot sleep,so no solitude time for me,I sound so ungrateful don,t I!!
Can you remember when you had small children,and you could not even go to the loo on your own,that,s what it feels like even the dog is at it following me about,!!!:-S
Any way as I say,a big good luck,France beckons!!I think you will be getting there before me, love Eve

[PerkymiteParticipant]

Hy Gilll, fastly abot the speling. I am, and always have been, a terrible speller this is compounded by being a lousy typist as well! I was so pleased when Word Processors came along with a Spell Checker. What I do is type my missive in Microsoft Word and then ?copy and paste?, which is exactly what I am doing now.

Interested about the Flu Jab, last year I did not have it and although I asked my Doctor and Consultants nobody seemed to be able to give a definite YES or NO. I am not sure whether the fact that I was going for a SCT in Nov/Dec was in anyway related. But it is top of my list of questions for my appointment on the 29th.

Lastly can I wish Stephen the very best of luck with his treatment.

Kindest regards ? vasbyte

David

[DaiCroParticipant]

Hi Gill,

Please wish Stephen an uncomplicated op with a quick recovery from me.

We have been given a general 'drop in' day for our 'Flu' jabs and I will certainly be there for mine. Janet had 4 'colds' of varying degrees last year and apart from one slight snuffle they seemed to pass me by… which I put down to my jab. People with colds and sniffles is the one guarantee of avoidance from me… if I am going to have a relatively short remission I do not want it compromised by infections from relatively harmless sources.

How are the lessons going? And, more importantly, when are you and Stephen planning to go to Francovilleshire and practice?:-)

Best wishes,

Dai.

[MinParticipant]

Hi Gill
Hope Stephens op goes without a hitch and he recovers quickly good luck to him, and you of course as no doubt you will be a jibbering wreck whilst its happening.
I have had a dreadful dose of flu/cold no doubt due to getting no sleep for so long and my niece brought me some amazing pills that cut it off very quickly. EchinaCold. dried juice of Echinacea purpurea manufactured by Schwabe Pharma.
I had never heard of them before but my did they work quick so I will be keeping a supply available as now I am no longer eligible for flu jabs!
Min

[BADGERParticipant]

Gill

wish Stephen all the luck for his op lets hope it all goes smoothly We have been called into our surgery for the flu jobs so our lot are on the ball
Regards to stephen ps i CANNOT SPELL FOR TOFFEE
Love JO

[mhnevillParticipant]

Hi Gill

Can I also wish Stephen well with his op.

Best wishes.

Mavis

[MariParticipant]

Dear Gill,

I have not been around so much recently and I have missed quite a few posts. It seems that Stephen has been through a difficult spell of late, I know how hard this has been for you, although I know you support him superbly. I wish you both luck as Stephen goes in for his op and i hope that he will soon be feeling better soon,

Much love

Mari xx

[GillParticipant]

Thank you all so much for your good wishes it really is a boost. Stephen had the lump removed today. He had opted for having it done under a local rather than a general anesthetic.(Is the man mad as well as having mm?) The operation took about an hour and we won't know just what it is for about a week.

His neck is aching and very sore and he feels like he is burping the stuff they used to numb him with. I know this sounds odd but Stephen and I wondered that if, as it is pumped into you, it comes out in your taste. He says it tastes just like the smell of the stuff they used.

Unfortunately the lump went deeper than they thought so they could not remove it all. If the worst comes to the worst it will mean further chemo. He is very philosophical about the whole thing. Obviously opposites attract as I am worried sick.

Thanks again all of you

love from Gill x

[eveParticipant]

Hi Gill
My,Stephen is brave I suppose it is better recovery with local,and chemo should finish off,I suppose Gill with all they go through,its just part of the bigger picture:-/.
Do understand were you are coming from,to me it seems like waiting for the next episode,I do not think sct now,I just wait!! as cdt did not work,will velcade:-P.I worry,and do not sleep,Slim doesn,t worry,and is unable to sleep,Velcade seems to keep him awake,even on his week off.WE are both sitting here at 4am drinking tea!!:-)
Slim would say to you what is the use of worrying when there is nothing you can do about it,may be we adapt as we go along,and go with the flow like Bridget.
Love Eve

[DaiCroParticipant]

Hi Gill & Stephen,

Well part1 has been done and while full removal would have been ideal at least they will know the cause and will be able decide on how best to remove the rest (Chemo for MM – RT for associated). It makes me wonder if they might have gone for the lot if Stephen had been under a general… but then that would more than likely meant a much longer stay in recovery.

I imagine the results will determine the next corse of treatment, be it long or short term – personally I hope its a RT course for the tumour leaving the next MM based treatment to the MM necessity. I was extremely fortunate that my secondary tumour co-incided with my relapse and disappeared under the dual attacks from Velcade and Dex… it was a beauty before treatment began… and in a supposedly 'awkward' place, sitting loud and proud on the apex of my sternum but, as stated, the treatment withered it to nothing in the first 3 weeks.

I do understand your concern Gill… especially for something that has been causing you so much worry for the past few months, you thought it would have had the decency to be out and done with, regardless of its cause and origins.

'What's the use of worrying
It never was worthwhile… So
Pack up your troubles in your Old Kit Bag
And smile, smile, smile'.

Be it ever so wan and trembly… believe it just one more blip and then, if I may 'Tom' a line… Onwards and upwards and best foot forward.:-)

Dai.

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