[feaseyjaneParticipant]

Hello to all
My name is Jane, I am 53 have 2 daughters and a lovely husband .
I live in Northampton. So my journey started at Christmas when again I was unwell with a head cold. My immune system had been pretty bad for the last few years. After a few blood tests I knew I had Myeloma. I was diagnosed on the 27th February 2013. As of yet all I really know is that I have abnormal plasma cells and the treatment I am going on is CTD.
Have been on this wonderful site many times over the last few weeks.
I have a wonderful supportive family, and I will draw strength from them.
At Northampton General a new Haematology Unit was opened last year, so luckily I only have a short distance to travel.
I have worked as a night care assistant for nearly 25 years, in a dementia unit, and also the last 7 years in a hospice.
So as a newcomer on this wonderful site ,any help or advice ,will be greatly appreciated.
Just to finish, my daughter's mother in law was diagnosed with MM as well last October. Just unbelievable……………

[jmsmythParticipant]

Hi Jane

Welcome e to this wonderful site. I know you don't want to be here – no one does 🙂 but you are in the right place for advice, support and friendship. Come on ask anything – someone will be able to give you their experience and its a great place to rant and rave. What an awful thing about your daughters mother in law having MM. I never heard of the da*n illness until nearly 7 years ago when my hubby was diagnosed. He is in hospital awaiting his stems to be transplanted. Nice to meet you Jane my name is Jean and I don't know what I would do without the support of my family and the wonderful people here.

Take care
Love Jean x

[ali49Participant]

Hello Jane,
welcome to the Myeloma club, no one wants to join but its very friendly and supportive. It must seem overwhelming to you and your family, it is hard to take in all the information as you learn about this condition..
I was diagnosed two years ago and have had CTD and recently a stem cell transplant. The hard thing was trying to reassure my family (and myself) that I was not about to die:-S There is so much research being done that I am determined to be positive that this is something we can live with for a long time.
Everyone on here is so encouraging and have so many different experiences to share and encourge you. Take one day at a time especially as the CTD can make you tired and you may get mood swings from the Dex.
love Alison

[feaseyjaneParticipant]

Hello Jean Thankyou for your lovely kind message.Yes it is all very overwhelming at the moment
With the help of my family friends and all you lovely people on this site I will remain positive.
I shall be on here many times,no doubt as will have plenty of questions to raise

Take care Jean and Thanks

Jane x:-)

[feaseyjaneParticipant]

Hello Alison

Thanks for the lovely message and what a lovely warm welcome I have received
Will be on this site many times in the future.Don,t know which way my journey will go but have to remain positive.
So looking forward to the Dex (not) so am happy happy at the moment.Am prepared mentally for the CTD and that s as far as I can go.Spring is round the corner,and many long summer days

Well Alison good luck

Jane x:-)

[EmmaParticipant]

Jane,

It's tough news to come to terms with, it is my mum who is 64 who was diagnosed with MM in October 2012. If I can give you one piece of advice that certainly seems to be a common theme on this forum….Positive mental attitude. My mum has remained positive throughout her CDT, she is now on cycle 5 of 6 and is doing really well. Just remember everyone has different experiences on their treatment. If you view my previous posts it was quite daunting at the start of the treatment journey but now as CDT is nearing the en I can honestly see an improvement in mum, and I'm hoping this is good news. Dex has been great for her for the 4 days each cycle with improved energy levels and appetite, however she did suffer with the down days afterwards but as long as you (or someone else) keeps a note of how you feel each cycle and you can kind of predict your good days and bad days. It is doable and you will get there.

Best wishes, keep us updated with your progress and any concerns get on here for a chat, advice and support it really helps.

Love Emma.x

[tomParticipant]

Hi Jane
A warm welcome from Iccle ole me, this place is a comfy warm and soothing place, pull up a chair and put some comfy slippers on as you are now on the long road to remission and i hope its a smooth one.

I am 57 and had my CTD in 2009 leading up to a SCT in December 2009 and am now in remission and drug free 😀
Ask away but dont expect me to tell you Numbers am one of those that if Dr is Happy am Happy Ha ha.

Love Tom Onwards and Upwards xx

[feaseyjaneParticipant]

Hi Emma

Thankyou for your kind message.I do have a positive attitude luckily, and a wicked sense of humour.I think I will need it.
Just taking one day at a time.My family and I have a few tears here and there,which is normal.Working in a hospice mentally I m well prepared.
I do hope your mum is doing well and with love and support from you,will get through this.
Will keep you updated

Take care Emma and thanks xxxxxx

[feaseyjaneParticipant]

Hello Tom,
Thanks for your lovely message
Have my comfy slippers on and I live in my dressing gown ,when at home.
Have read a lot of your blogs on here ,and what comforting vibes you give out.
I will drive everybody mad with, my moans,groans,tears etc.
But hey I won,t be the first.
So Tom,look forward to sending you plenty of messages

Speak soon

Jane x

[tomParticipant]

Hey Jane you are allready settled in then Girl 🙂 thats good news, Moan graon and shout rant and rave in here its good for the soul Lol.
And Trust me your "wicked sense of humour" will do us all some good and help you on the road to remission.

Take Care and Catch you soon

Tom Onwards and upwards xx

[BADGERParticipant]

hello Jane
welcome I know its not a place you would want to join but you will get so much help and support when I was first diagnosed in jan 2009 I was lost didnt know where to turn for help advice and support until i found this site marvellous:-) I hope it helps you too good luck with the treatment I had CDT and it gave me 3 1/2 years remission
RegardsJo

[AliParticipant]

Hi Jane

My name is Alison, its my Mum with Myeloma. She was diagnosed November 2011,aged 57, none of the family had heard of it and it shook us all really hard. Fortunately we are a strong family and have muddled through and I truly believe we are closer for it:-)

Mum is now in remission after having her stem cell transplant in August 2012, and shes now having maintenance treatment as part of the Myeloma 11 study.

I truly dont know what id have done without the wonderful people on here, so any questions you may have, someone will have an answer for you.

Good luck with your treatment. Keep us informed:-)

Love Ali xx

[charisma4Participant]

Hi Jane,

I'm Lesley, and I became a member of the 'club' at Christmas. I am so sorry that you have had to join, but I think you will find it invaluable as I have, for advise .

I have already had so much support shown to me, and no question goes unanswered. They are a wonderful bunch, it's such a shame that we all had to 'meet' under such circumstances – but on the positive side, how lovely it is to make new friends who all have one common interest!

I am on my second cycle of the trial drug. I will need between 4-6 before stem cell.I have been told that it is a long journey, and it is important to stay positive. Also,I know it is very difficult to do as a wife and a mum, but you must put yourself first for a while.

I have two adult daughters like yourself,who are a wonderful support, as I'm sure are your girls.We share a wicked sense of humour which I know is helping us get through this.

My very best wishes to you, keep us updated.
'speak' soon.
Love Lesley x

.

[feaseyjaneParticipant]

Hi Jo
Thankyou for your lovely message
What lovely people on this site,and what a comfort that while being on this long journey all together we have each other
Will keep you informed as much as possible.
Have to see the chemo. Nurses next week.O the joys lol

Will be in touch Jo and thanks

Jane
Ps will have to think of a funny slogan after my name like Tom

Xxxxxx

[feaseyjaneParticipant]

Hi Alison,
Thankyou for your lovely message,what a shock for you and your family..I do hope you mum is doing well.
Having wonderful supportive friends and family ,makes the journey so much easier.Ali I look forward to catching up with you soon
Take care

Jane xxx:-)

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