Pins and needles in feet and legs

This topic contains 9 replies, has 9 voices, and was last updated by  aburke53 4 months ago.

Viewing 10 posts - 1 through 10 (of 10 total)
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  • #140981

    allrelative
    Participant

    My sister is 2 years in…has had chemo and stem cells etc… just has Zineta every month.

    Every night she experiences pins and needles in her feet which keeps her awake….she looks dreadful from lack of sleep. It is most probably nerve damage consultant has said but never offers her any meds or suggestions on what she can do.

    Anyone offer any advice?

    #140983

    taffd
    Participant

    Hi,
    This is peripheral neuropathy, I too have it permanently in my feet and lower legs. I take an extra slug of morphine when it gets bad enough to affect my sleep.

    Doesn’t get rid of it entirely but helps enough to make a difference and allows sleep.

    Best Regards
    Taff

    #140986

    honestjohn
    Participant

    I also get the pain in my feet .Ive found that rubbing a little white Tiger balm helps me sleep
    also flight socks help me

    #141235

    davebaz
    Participant

    I am a 79 yr old male diagnosed approx 18 months ago with Stage 2 lymphoma/myeloma (IgG light chain) with ribcage lesions and a small pulmonary embolism. I received 8 cycles of Velcade, cyclophosphamide /dexamethasone and Zoledronic acid. Approx. 9 months ago I developed bronchial pneumonia and was hospitalised for 7 days whilst undergoing treatment with antibiotics. I responded well and I am currently now in ”remission” (hamatology status ‘normal’). But more recently, I have developed painful changes (pins and needles )in both heels and more recently quite severe spasmodic pain in my left foot which fits a decription of planar fascitis. This comes and goes unexpectedly and the pain prevents sleep. It only partialy responds to morphine / paracetamol. I would value hearing from anyone with similar painful condition presumably a consequence of a peripheral neuropathy. My consultant has not, so far, been able to suggest any other analgesic treatment.

    #141477

    davebaz
    Participant

    I first raised the issue of pins and needles (peripheral neuropathy) last June (see above). Subsequently I developed occasional (one or two episodes per week) of sharp stabbing cramp like pains in one leg lasting 10 – 15 mins. Since then my consultant suggested a course of amitriptyline; an antidepressant drug which has been found of value in treating trigeminal neuralgia and the topical pain associated with shingles. I was started on a lowish dose of 20 mg each night and did think that my discomfort was helped. The dose was increased after several weeks to 40mg nocte following which I have had no more of the acute stabbing pains and the pins and needles have largely abated. I cannot be 100% certain that the amitriptyline is responsible for these improvements and would like to hear if anyone else has had similar findings with this drug

    #141546

    mulberry
    Participant

    I have experienced these stabbing leg cramps towards the end of lenalidomide maintenance cycles. I was prescribed quinine sulphate, which worked (but can have serious side effects so may not be for everyone). After a few months I realised that the quinine capsules contained E171 colouring which is banned in much of Europe as it damages the gut microbiome, so I stopped taking it whilst looking for a replacement. Actually the severe leg cramps haven’t returned over the past two cycles without any medication.
    If they come back I’ll discuss amitriptyline with my Dr as a possible treatment.

    #141603

    rach15
    Participant

    Hi,

    Whilst on DVD treatment earlier this year, I developed pins and needles in my feet and pain when rubbing my hands together or when standing still. I tried using ‘Neuropathy Rubbing Oil’, which contains Frankincense and Myrrh. Also I wore thick, soft socks both day and night. The pain has now gone completely!! This is a great relief, especially with all this hand-washing and rubbing in of sanitising gel etc. I still get what I call ‘fidgety feet’ in the evenings and at night, though which sometimes keeps me awake.

    Please note that I was not prescribed the rubbing oil by a doctor – I got the idea by searching for solutions for peripheral neuropathy online. Also from reading the comments above, I think I was fortunate enough to suffer mildly but I’m posting this in case this is of help to anyone. And, Allrelative, I do hope your sister will be able to sleep more comfortably soon.

    Rachel

    #141782

    dickb
    Participant

    There is another option which is a foot massager, it’s the sort of thing with rotating spiked rings that you roll your feet over, I use it sometimes when I’m going through a particularly bad patch. As for cramps and restless legs, I’ve just resigned myself to being woken up at least 4 times a night.

    #142564

    kezzie1975
    Participant

    HELP!!!!! I am in soooo much pain with the nerve pain in my legs and feet 😢 I have tried so many different things to help myself, but up til now I haven’t found anything. I am currently on 300mg, 3 times a day, of Gabapentin, and it isn’t helping as yet. I just really need a nights sleep 😴 I am in tears sometimes as it’s so painful 😣

    #143063

    aburke53
    Participant

    My severe PN was Velcade induced. It got so severe that I couldn’t even stand to brush my teeth. Walking more than 10 yards was problematic. I also had PN in my right hand. I was referred to a pain clinic where I was just dosed up with Gabapentin/Pregabalin/Codeine and other pain killers…..to no real effect, and a real addiction to the meds with all the usual side effects. I took things into my own hands and forced myself to walk 25 yards, 50 yards, 100 yards, 1k, 2k….15k, gradually reduced the meds. I noticed that the onset of pain whilst walking was reducing as I walked longer distances and at its most severe after the walks. I also found that ice baths for the feet after walking worked wonders plus a cooling type foot balm. I have since hiked several long distance hikes of over 1000 miles each and after each one the PN improved. I can now jog short distances and play badminton. I still use the ice baths and foot balms. The Docs think that all the walking helped to stimulate the nerves. I’ve tried the compression socks and not sure if they help and I can’t wear them at night as I find them too tight and uncomfortable. I still have some numbness, no pain, only in my right hand.

    I realise that my extreme “solution” is not for everyone but I am completely neds free. My takeaway is that stimulating the nerves worked for me. I know some docs opine the opposite and advise rest and warm foot baths.

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