Velcade 6 – Yippee!

This topic contains 17 replies, has 16 voices, and was last updated by  Dizzyliz 13 years, 1 month ago.

Viewing 15 posts - 1 through 15 (of 18 total)
  • Author
    Posts
  • #98202

    DaiCro
    Participant

    🙂 … and the yippee is in no way meant to be sarcastic! 🙂

    Why? Because, as usual with the start of a new cycle, I had a consult first – to gauge the results of my current bloods (taken 15 minutes before) and the 'Freelight' test ordered by my lead nurse at my last infusion of Cycle 5 before I went on holiday.8-)

    Here's the yippee… or should I say Yippee!

    I started Cycle 1 @ 264 Kappa Light Chains which reduced wonderfully to 13 Kappa light chains after 2 Cycles. They then decided to reduce my dose from 2.8 to 2.2 for Cycle 3 because of the increased PN, especially in my hands. I know that Velcade offers its best results in the first 2 Cycles and was ready for a slow down in progress – with Cycle three reducing to 11.6 – not bad. Because the PN got slightly worse my dose was reduced to 1.47 for Cycles 4, 5 & now 6. Cycle 4 produced a slight rise to 12.1 which concerned me but my lead nurse, the wonderful Jenny, told me not to worry as all the other associated readings were all very positive. Jenny instantly ordered a 'Freelight' test to ensure that my results were ready for the consultant on my return from holiday and I left feeling slightly placated – slightly… because I hate to see a rise at any time and especially so when everything seemed to be moving in the right direction.:-|

    So, into the consult with my usual (preferred) consultant for the first time in 8 weeks due to mutual holidays… and she was smiling and chirpy… it was the chirpy that I liked the best… especially as they were a consultant down with no notice and there were workmen with a very consistent and very noisy drill working right outside her window and were due to be there all day… it got on my nerves in 5 minutes. I was bumrushed through my meeting after various prescriptions were ordered, including my Velcade which remained the same… my Hb was a decent (for me) 10.9 and then then bombshell that my 'Freelight' test produced virtual CR (Complete Response).8-) 😎 😎 😀 🙂

    Now I should say here that once you get a reading under 18 you are considered in the area of CR – hence the good news of 13 – 11.6 – 11.5 and even 12.1… but this time it meant just what it says on the tin… i.e. 0. That is no discernible reading at any level of any reading… just 0 and 0 and 0. 😎

    So here's to a justifiable and highly enjoyable Yippee!:-D

    My consultant wants me to complete the full 8 courses of treatment and I concur. Its down so let's beat it and keep it down and hammer it home… for every single day it extends my remission (which is short enough in any case) the better.:-)

    Happy Chappy… even though I am back on Velcade and its close mate Dex and feeling whacked and crappy today.:-)

    Dai.

    #98203

    tom
    Participant

    Well what a Post Dai, and I for one is very very pleased to read about your CR 😀

    How did you feel when you were told?? I have to admit I shed a little tear down one cheek when I was told about mine:-D , Long may it continue 🙂 its what we strive for now lets hope its a blooming LONG Remission.

    From one Cheeky Chappie to one Happy Chappy 😎

    #98204

    lorrainey
    Participant

    Hi Dai

    Fantastic news, so pleased for you 😀 Long may it continue as Tom says!

    I hope the remaining 2 cycles of Velcade are kind to you 😉

    love n hugs Lorraine xxx

    #98205

    Min
    Participant

    Welcome back from your holiday Dai, and now you can have many many more.
    Wonderful Wonderful news, I am so very pleased to hear you can get back to living a 'normal' life again.
    Now get that book written and make sure Minnie features loud and often !!!! no excuses for not getting on with it.
    Before that give your good lady wife a big hug and follow it up with a bunch of flowers as she has got you this far and no doubt been terrified all the way…
    Love
    Min

    #98206

    Perkymite
    Participant

    That is really great news Dai, I am so pleased for you, strange how MM and the ?cures? affects us all so differently.

    Kindest regards – Vasbyte

    David

    #98207

    Mari
    Participant

    I am delighted to hear your news Dai, its just brilliant, long may it continue,

    Mari x

    #98208

    DaiCro
    Participant

    Thank you one and all.

    I felt rather shocked to tell the truth Tom… Janet was delighted and I tried to respond but shock was the major initial feeling. To be perfectly honest I also felt slightly guilty after recent events… but I know that they are not of my making and my results will not change them, however much I would like them to.:-(

    Hi Lorrainey, I started 6 yesterday and I felt flattened for most of today but feel slightly better tonight, so that augurs well. 🙂

    Hi Min, you are right on all accounts – I am looking forward to a slice of normality, the book beckons and Janet deserves a treat or two (a thousand and one would be too much to take… knowing my woman a little but often will do the trick). 😎 You have no idea how bucked up I am to see you, Sarah, Tina and Roz posting so often. xxxx

    Hi David, now ain't that the truth… I just wish that they could find a cure-all for everyone… or at least the same sort of positive results for any given treatment. 😐

    Thanks again my dear friends.:-)

    Dai.

    #98209

    Debs
    Participant

    What great news Dai.

    I am so so chuffed for you and hope that the velcade keeps doing its job!!!

    Debs x

    #98210

    eve
    Participant

    Hi Dai
    It,s always lovely to have good news,it gives the people behind you a lorrier
    lorrier hope.:-)
    Holiday has worked wonders for you.Eve

    #98211

    Meike
    Participant

    Fantastic News Dai! Here is too a very long remission time!!

    David was supposed to start his 6th cycle today but he has been admitted feeling under the weather. So they are waiting to see whats what and do a few tests and a scan.

    Hope the last two cycles are being kind to you!!

    Love
    Meike

    #98212

    mhnevill
    Participant

    Yippee indeed Dai!!!

    I am so so pleased for you after all the difficulties (they would let me put cr–!) of the last few months. Like everyone else I wish for you a very very long remission and a very well tolerated last two treatments.

    Hope you don't disappear from the site as i value your posts.

    Here's to music.

    Mavis

    #98213

    gina45
    Participant

    I am really pleased for you Dai, here is to a long remission. I always look forward to reading your posts, here is to many more. Stay positive Dai and take care.
    Gina xx

    #98214

    brocho
    Participant

    Hi Dai what wonderful news to start the day with! Its been hard fought for but you got there !! Heres to a very long remission and no drugs !! If it were me I would be tempted to drop a line to the exceeedingly stupid doctor in Wales who behaved so appallingly I hope you and Janet have got lots of fun things planned so get out there and forget about mm for as long as you can Lots of love to you both Bridgetx

    #98215

    Perkymite
    Participant

    I just have to say how right you are Dai I too am delighted to see Sarah, Tina and Roz posting as often as they do and who could miss out our Min and Bridget the list goes on! We seem to be building a very nice comunity here.

    Kindest regards – vsbyte

    David

    #98216

    BADGER
    Participant

    Yippee

    what good news it has really cheered me up long may it last perhaps you can get to Majorca now to hear your daughter sing
    Keep well:-)
    Love Jo

Viewing 15 posts - 1 through 15 (of 18 total)

The topic ‘Velcade 6 – Yippee!’ is closed to new replies.