Hello, I’m now 6 months post SCT, and on Zometa infusions every 4 weeks for the next 2 years.
Just wanted to ask if anyone had any side-effects from the Zometa? I seem to get bone pain for a few days after and feel a bit fatigued. Although, I’m not sure if this is the ongoing fatigue from SCT recovery.
So sorry you are suffering these side effects. I don’t recall it happening to me although i did have fatigue for quite a time after my transplant (July, 2017) and in fact although I feel really well with remission coming up to 4 years I still get weary when I do any physical work.
Personally I didn’t have any side effects from zometa but I know a few people who have. Apparently it can avoid side effects as you describe if the infusion is given more slowly, nurses can adjust the rate.
Have been on 3 monthly infusions for nearly three and half years now and have not noticed, or remember initially any side effects but was told that you should inform your dentist that you are on this medication. I might be wrong but something rings a bell with me about side effects make occur initially but should ease off. As I say not sure about this so would suggest you ask your consultant.
Thank you for your replies and for sharing your experience.
I know people can have different effects from these treatments, and Myeloma varies widely between individual patients.
I do ask the medical team at the hospital about these things, and always write any questions down before a clinic appointment, in case I forget to ask. But it’s still comforting to know from other people going through the same thing, that I’m not alone in this.