Hi Wendy
Thats great news! 😀
Helen, definately a party! Great news too!:-)
Love Ali x
Hi Everyone
Mum was not allowed to go home yesterday as she still had quite bad tummy troubles:-(
The good news is she is home today:-D I think the extra night in hospital was worth it though. Although she is very tired, she looks much better and brighter. She has eaten a fair bit more than she has in the hospital. Shes been able to have what she fancies when she wants it.
Dad went to pick her up and took the ward staff some lovely cupcakes as she says they have made her stay in hospital much more bearable. When I went round to see her this afternoon we just cried tears of relief and happiness that this hurdle has been jumped. Rest and recovery now. She goes back on Monday for a check up.
Again, I want to thank you all for your support and advice 🙂 I wish I could put up a dancing tigger like Eliz!
Tom, shes had plenty of sneaky hugs and many more to come!
Vicki and Colin, Mum has not suffered with a sore mouth. I said id look and see which mouthwash she has been using. Its Difflam oral rinse and she has Nystan to help prevent thrush.
Love Alison xx
Hi
Vicki and Colin, I know you had a false start with collection, but im sure it will be 2nd time lucky for you. Please keep us informed about the hospital appointment on Monday.
Well, I cant quite believe it but Mum (all being well) will be out of hospital tomorrow (wed). That will be 14 days since she had the melphalan. She is certainly alot brighter – seems the spark is back in her eyes. Neutrophils 0.9, The Prof says hes confident they will be much higher tomorrow. Yippee is all I can say for the moment!
Night all x
Hi Dai
I can always rely on sound advice from you guys. Thanks ever so…
Its kind of easy for me to have time away from the MM. I have young family so they keep me entertained as you can imagine 🙂 kids have a wonderful knack of taking your mind off of things for a while.
I worry slightly though as my Dad still works, and he works nights and hes usually a couple of hours away from home. Hes got the next couple of weeks off, carers leave and some annual leave. But when he returns to work I will be a tenterhooks as Mum will be on her own and as you know things usually tend to "happen" at night or at the weekend. I guess we will cross that bridge when we come to it though.
How are you feeling? I hope the new meds have got your tummy sorted now 🙂
Love Alison x
Hi Chaps
Helen.Yep my Mum is the same age as you and has had the same treatment as you, thats why I always hope for a reply from you, and im sure we will be discussing things for many years to come!
Mums platelets are still low at 9, shes to have her 3rd lot again tonight. Neutrophils 0.3. Shes abit shaky tonight and short of breath as she moves, thers no suprise though, must be as weak as a kitten.
Tom, Im not sure that hugs are allowed lol but I will sneak her one in:-) . Spoke to the nurse today and he was chatting about the fact that it was them who had made my Mum ill with the chemotherapy and its them that will make her better, he was so matter of fact and it was very reassuring.
New provisional discharge day is Thursday but may be sooner if things progress quicker. I will no doubt keep you informed lol.
Love Ali x
Hi Etta,
Good luck with your "line in " tomorrow. Mum will have been in hospital for 2 weeks as of tomorrow and we both said tonight that the time has flown by. Im sorry if at times I have sounded negative but as a bystander watching the person you love go through so much its very upsetting. Mum has just got on with it – theres no other way really.
I wish you all the very best for your next hurdle.
Love Alison x
Dear All
Just a quickie tonight.
Had a much better visit today. Mum was brighter, did not sleep in the time that Dad and I were there and we could hold a conversation. She,d been nibbling at a homemade cake id sent in and we came away feeling better than we have done in days:-)
D&V not stopped but a little better,she still feels nauseous.
More platelets tonight, neutrophils 0.1, maybe thats why she making a little progress.
A much happier Alison signing out xx
Hi Rach
I have replied to your other post, seeing that one first! x
Love Ali x
Hi Everyone
Well, this is day 11. I must say the last couple of days have been a real eye opener for Dad and I. I thought we were prepared……Mums having a tough time of it. Bloods 0 since Friday, platelets 4 as of yesterday. She had 2 bags of platelets last night. Nurses were waiting yesterday for temperature to spike to give antibiotics. (Dad just phoned as I type and temp not spiked overnight) does it always?
Eve, you were right about everything! even down to drinking cold milk!
Mums gone into hibernation mode I think. Keeping her head down and doing her time.
Hopefully things will be on the up in the next couple of days…they are still talking of discharge Tuesday or Wednesday next week, which I find unbelievable!. Once the neutrophils start coming back up does one instantly feel alot better?
My sister in law and I are off to Mums later to give the house a "big clean" just call us Kim and Aggie:-D
Thankyou all for your support – it really means alot.
Take care Ali xx
Hi Rach
My Mum was diagnosed last November – she was 57 at the time and 58 now. She had 6 cycles or RCD and is now on day 11 of her SCT. I am 37 if you need to chat private message me, or you can find me on facebook. Perhaps we could help each other as your Mum is a few weeks ahead of mine.
Love Alison xx
Hi Paul
Welcome home and well done!
Enjoy being at home and your own bed!
Rest up and take care
Love Alison x
Hi Helen
Thanks for your reply, thats just the type of info I hoped for.
So, day 8 after the chemo is today – thursday. I know everyone is different but I like to have a rough idea of when things are likely to happen.
I see you have booked a hol to Venice Helen, how lovely, thats a place I would love to go. We will have to make do with Skegness this year lol. Although I am looking forward to a big family holiday next year when all of this is but a memory……………
Thanks again Helen, take care
Love Ali x
Hi
Just an update on Mum. Well, what can I say? Shes having a tough time at the moment and I suppose for the last couple of days. D&V and loss of appetite. Its 6 days since her stem cells were returned so we understand that this is completely normal and the doctors are happy enough with how things are progressing. Its just not nice to be a bystander and being powerless to help. She told me not to bother visiting today as she would probably be asleep. Dad went this evening and stayed only an hour. He asked the nurse how her bloods were doing and she said still at 1.5?. To top it all off she has a rash on her scalp so cant wear a scarf so she will be feeling pretty terrible about that too. I am so pleased that we have an understanding of the process and side effects (thanks to this site and all of you) as if we didnt we would be more worried. We know she will get there and she has to get worse before she gets better:-( So. lets see what tomorrow brings and hopefully she will be up for a small visit.
Tom, I didnt win the 100m, I feel like im doing the marathon at the minute!:-D
Vicky, shes not got a sore mouth (or at least not that I know of) I will look to see the name of the mouthwash shes using, its not Caphasol? which has been mentioned on here before. Bloods 1.5 and im unsure when the downstage happens, maybe someone can help me with this one. She has started having the gcsf injections again.
Hope you are having a restful evening after your shennanigans today lol:-)
Take care
Ali x
Hi Vicki and Colin
Just to let you know another fairly good day for Mum. Still feeling nauseous and sleepy today, but perked up this evening. Shes still eating – although she struggled at tea time with the weird spag bol with potatoes and veg combo, said she fancied a bacon sarnie so Dad said hed take her in whatever she fancies tomorrow and she managed to up her water intake abit. Shes even skyped the kids tonight which will give her a boost im sure. Oh and no sore mouth….Im not sure when that starts? if at all. Im hoping that the mouthwash has done the trick.
Right, im off to limber up for the 100m race!
Love Ali x
Hi everyone
Vicki, Im sure they will sort it for Colin to use plerixafor, its so unfair the options are not the same for all, purely due to funding. Fingers crossed it will be soon. Just to let you know re the time Colin has had off his treatment. Mum had her last RCD in April so has had a good long wait for this next stage and her PP levels did not change during that time – we were so worried they would be on the up again. Mums not sporty at all! lol but probably will be once she is out as she sure is watching alot of the olympics.
Ice lollies….she had 2 long ice pops, 2 calypos and a refresher ice lolly (she said she felt sick but that was due to the lollies rather that the chemo!)I did not tell my kids how many Gran had had for obvious reasons!. She has to start having the gcsf injections again from tues and was on a nebuliser yesterday as she cannot take a certain tab to prevent some sort of pnuemonia.
Liz and Kev, Mum has learned her lesson I think re antisickness tabs! Before she went in hospital she promised me faithfully that she would eat, and I trust that she will do her very best. You are right , the staff on Fletcher have all been lovely and nothing is too much trouble, it makes the time in there much more bearable. I didnt get to see mum yesterday as we were at wedding so cant wait to go today!
I will keep you informed. Thanks for your support.
Alison x
