[DizzylizParticipant]

Morning Andy,

Sorry to hear you’ve been unwell and hospitalised, as for keeping vigilant on temperatures I was doing the same thing last Thursday with kev prior to his clinic appt: that afternoon he suddenly felt unwell with temp: rising by the min, we got to clinic and was seen straight away! And kev was admitted with infection in his pic line, kev is prone to saying lets just wait and see how temp: is in an hour but I now insist I’m taking that decision,I ring asap 38! No arguments, catching any infections early is the important thing, kev has recovered well but still in hospital, i will update on treatment under DTPACE.
Andy I hope you continue to recover quickly! And has you say everyday is a gift!

Take care Liz & kev xx

[DizzylizParticipant]

Dear Vicky

So sorry to hear Colin has passed away, my sincere condolences to you and the family
Thinking of you.

Love Liz & kev xx

[DizzylizParticipant]

Update on kev,

In clinic seeing the consultant with blood results HB up to 9.0 from the previous week 7.5 so a little better, FLC went down from 1400 to 1150 they were hoping at least half! So not as much has they’d liked so kev was admitted last night to begin cycle 2 of DTPACE, hoping it gives MM a good kick up the backside! In readiness for SCT take two where they will be using kevs second lot of stored stem cells and then three months later some donor stem cells they call it a tandem, the transplant team are looking at the Antony Nolan register for a match has is siblings were not a good enough match.

It’s lovely to think since talking to friends & family how many are joining the Antony Nolan register thank you! Keep well love Liz xx

• This reply was modified 9 years, 3 months ago by  Dizzyliz.

[DizzylizParticipant]

Hi Andy,

I agree definitely a bit of a contrast! 😀 are you attending the Nottingham beer fes? Or has it already happened?

Liz & Kev xx

[DizzylizParticipant]

Hello Andy,

I’m not on dex and I’m awake all hours with stuff going round in my head so decided to get up at 5.30 this morning and leave Kevin sound asleep due to the 200mg thalidomide and the very low HB 7.5 so today it’s blood transfusion. Kev had his 5 days in hospital having dtpace then home for 5 days till immune system went to zero, back in till this weekend. He had platelets & blood transfusion and did quite well, went to clinic for check up yesterday and his neuts are 1.75 but HB low hence another visit today.

Keys seeing the consultant next Monday if alls well it’ll be round two that week, we’ll also see first flc test to see if there’s any downward movement? Fingers crossed.
Glad to see pomalidimide is working for you that’s great long may it continue! Hope you got some sleep take care. Love Liz & Kev xx

[DizzylizParticipant]

Well Vicky & Colin! A big congratulations to you both, and what a lovely memorable day to celebrate and many many more too! I’m glad a good day was had by all!

Mine and kevs heartfelt congratulations once again!

Love Liz & kev xx

[DizzylizParticipant]

Hello Andy

Nice to hear from you, kevs been home from hospital since Sunday first cycle of dtpace done, went for bloods & checkup yesterday and his neutrophils had gone from 1.9 on Sunday to 0.6 so they think he will be going back in poss: Friday if not before, he woke up this morning feeling dreadfull so might be ringing them earlier than planned?

Andy you did well on the Rev/dex regime which Kevin got 31 months!,
And your going great on the pomalidimide! Good for you long may it continue,
If this dtpace doesn’t work and he can’t have a second sct, there’s a stand by (Pom:)
Kevs two sisters have been tested but don’t match so we’re hoping this will.

Take care & keep well, Liz & kev xx

[DizzylizParticipant]

Hi tony just a quick hello and to say what a huge amount to raise! Well done to your son in law, hope everything went ok for you at hospital.

Keep well Liz & kev xx

[DizzylizParticipant]

Thank you Maureen, kevs had his pic line fitted today and all ready to start chemo tonight
He seems relaxed but not happy missing this lovely sunshine.

Take care Liz & kev xx

[DizzylizParticipant]

Hello vicki, not been on the forum for ages and the past few weeks I’ve been following how everyone’s doing, now find myself reading your news about Colin, I do hope you can get him home soon and that infections stay well away and give you both quality time together.

Mine & kevs thoughts are with you both! Love Liz &kev xx

I will put an update on kev under treatment.

[DizzylizParticipant]

Dear Eve, having been away thought I’d pop in and see how everyone’s doing?
And was saddened to read of slims passing, me and kev send you our heartfelt condolences
And hope yesterday (the 9th) was everything you wanted it to be a celebration of slims life.

Thinking of you eve love liz & kev xx

[DizzylizParticipant]

Tom, just noticed the time of your last post!! X

[DizzylizParticipant]

Hi Tom,

Good to hear you are doing well and still manage to clock on, keep up with that positive attitude you are deffinetly an inspiration to us all.

Keep well love liz & kev xx

[DizzylizParticipant]

sorry jeff, I’ve been on computer far too long tonight (tired eyes) so fingers crossed you will tolerate the new regime come monday! take care, liz x

[DizzylizParticipant]

hi tom,

glad to see your still doing ok on the new treatment, thought id look in and catch up on everyone, can’t believe the clocks are going forward this coming weekend, makes for feeling upbeat and looking forward to the months ahead, keep well tom & elaine.

love liz & kev xx

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