[GeorginaParticipant]

Hi Annette

I am so so sorry for your loss. Like you, I didn't feel relieved when my mum died. I think I just felt numb. It just felt too soon, unfair and I wanted her back.

I found I went through so many emotions in the days, weeks and months after – tearful, angry, even jealous of other people who still had their parents! Give yourself time and use the support from your family. It is really hard but things do gradually get better. I found keeping busy was best for me and I gradually had more days where things felt ok. It can take a long time and no two people are the same.

Take care of yourself
George x

[GeorginaParticipant]

Hi Annette

I just wanted to say I'm thinking of you. I remember doing that exact thing with my mum almost 2 years ago, although it was in the hospice rather than at home.

I'm glad your dad's sleeping peacefully and is comfortable. I hope he slips away gently like my mum did. It is so so hard but you will get through it. You've got your mum and sister there to support each other.

Take care of yourself
Georgina x

[GeorginaParticipant]

Hi Bridget

I am so so sorry to hear your news. Like everyone else has said, you have been a tower of strength to so many people with your encouragement and wise words.

I just hope there is something else they can do.

I'll be thinking of you and will have everything crossed.
All my love
Georgina x

[GeorginaParticipant]

Hi Gina

Hope today went as well as it could have and thinking of you.
Lots of love
Georgina x

[GeorginaParticipant]

Dear Sue and Michael

I'm so sorry to hear your news and have my fingers crossed that there are other options.

Low platelet counts does seem to be an problem with the bendamustine as the same thing happened with my mum.

Thinking of you
Georgina x

[GeorginaParticipant]

Thanks Roz x

[GeorginaParticipant]

Hi Roz

Glad you are getting some help amd hope you are getting some sleep.

Take care of yourself
Georgina x

[GeorginaParticipant]

Hi Sarah and all

I think you are right that it gets harder, but let's hope then it will get easier. I think when it first happens, you cope ok because it isn't really real. You just expect the person you love to walk through the door. Then the longer it goes on, becomes the horrible realisation that they are never coming home and you are never going to see them again.

I like many of you feel so cheated. My mum was 68 and should have been enjoying her life and spending time with her grandchildren. For the first time in her life, she didn't really have any serious money worries. I saw my mum about 5 times a week and spoke to her every day. She was always there and it is so hard coping without her. I know she wouldn't want me to be sad and she would want me to get on with my life, but it is hard. I pass the place she is buried every day as it is very close to my home, and even though I don't believe in god or life after death, I find myself talking to her and telling her what I and everyone else has been up to which I some how find comforting.

I am truly grateful that she was around to see my 2 girls being born (they are 1 and 3) but I am currently pregnant with my 3rd which is due in April (I found out I was pregnant 4 days after she died) and can't quite believe she won't be here. I feel so cheated and angry that she won't be here to see my kids grow up.

I have so many wonderful things in my life, for which I am truly grateful for but it doesn't take the pain away. Let's just hope it will get easier.

I have followed so many of your stories over the past 2 years and my heart goes out to everyone who has lost someone or who is fighting this horrible illness.

Keep strong
Georgina x

[GeorginaParticipant]

Hi Min

I just wanted to say I hope Peter is feeling better soon. Take care of yourself. It is so exhausting, mentally and physically, when they aren't well.
Sending you lots of love
Georgina x

[GeorginaParticipant]

Hi Keith

Good to hear from you.

Hope you have a great break before the SCT. Good luck with the SCT and I hope you get a long long remission.

Keep strong
Georgina x

[GeorginaParticipant]

Hi Colpot

That's great news. My mum has just started revlamid this week but on half dose (25mg every other day) as her counts are too low and they are not sure if they will cope with it. Unfortunately, they are not very optimistic about it working as her myeloma is very out of control at the moment. I'm just keeping everything crossed that it works.

I hope it carries on working for you for some time to come and will keep everything crossed for you.

take care
Georgina x

[GeorginaParticipant]

Hi Sue

My mum was on the bendamustine trial but had to come off it as her counts (platelets, neutrophils and Hb) all went very low after the first cycle. They waited a few weeks to see if they recovered to continue on the trial but unfortunately they didn't. I think her counts went down due to the myeloma being very active and the effects of the bendamustine so this isn't likely to happen to everyone. It may be worth asking more questions though to see how many other people this has happened to.

Good luck with whatever you decide
Take care
Georgina x

[GeorginaParticipant]

Hi Jess

In 2009 my mum was neutropenic and developed septicaemia and ended up in ITU. She had acute renal failure with very high levels of creatinine and poor kidney function. They were about to start dialysis but then decided to wait and monitor. They told us there was a good chance her kidneys wouldn't recover and she would require dialysis. Lucklily she made a full recovery and her kidneys returned to normal.

I hope your mum gets better soon.
Take care
George

[GeorginaParticipant]

Hi Bridget

I was only just thinking of you last night and wondering how you were as it has been very quiet without lately. . Glad to hear the MRI and bmb ruled out any new myeloma activity.

I haven't got any advice to give you on pain relief but just wanted to say it was nice to hear from you.

Hope you get some answers and are in less pain soon.
Take care
Georgina x

[GeorginaParticipant]

Hi Gill.

Sorry to hear Stephen found the 2nd SCT much harder but so glad he's home now. Hopefully he's over the worst and on the road to recovery.

Take care of yourselves.
Georgina x

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