Hi Chrissie so sorry , I didnt think about using the abbreviations and there is nothing worse when you are just getting used to the jargon. The induction chemo is the chemo used to lower the paraprotein levels to as low as possible before a stem cell transplant High dose steroids are usually given as well . The bmb is bone marrow biopsy , used…[Read more]

Hi Gina congratulations on your wedding I am glad it went well and you enjoyed Although your mum wasnt well enough to be there she must have been so proud of you. You look so beautiful in the photos and the children are gorgeous too, thank you for showing us . I am sure your mum loves looking at your photos . In looking after your mum at home…[Read more]

I think I am most proud of my worktops which I bought for £100 each and was terrified they would be rubbish, once the were treated the beauty of the wood is visible. But when we had the funeral someone was using the benches stand wet dishes on and they did suffer a little:'-( but a few hours of sanding and oil and they are good as new unlike…[Read more]

Maybe we should have a billy no mates thread as I want to join in too.
Here my big word Parliament. so no change there then ENT next
Min:-P

Thank you so much Tom, I tried and tried and after accidentaly deleting the whole of your kitchen thread I gave up!
so much so I could not get up any enthuisiasm to read the instructions for making them smaller as one of my holiday pics which was big posted ok. Once again thanks for the help your my star:-D

Hi Chrissie My name is Sue its Michael my husband who is the MM patient. I know you must feel so helpless watching him suffer, I know I do, but things do get easier. New drugs are always a problem with side effects etc but once the treatment gets underway the side effects become easier to deal with. I know im not the patient but im sure alot would…[Read more]

Hi Gina Im so pleased your mum saw you get married, even if it was at home
Im sure that memory will stay with you for ever

God Bless you all
Sue x

Hi Chrissie
I know its difficult but you will find the strength to cope with whatever is thrown at you.
You will be surprised at the inner reserves you will find from goodness knows where. But it will get easier as time goes on. Your husband has a lot to cope with and he will be afraid as much for you as for himself so let him see that you are…[Read more]

I am with Helen 4th from the right is my guess love Bridget x

Hi Mvis that was a great brainwave! Your idea about recording our symptoms etc would be a good one perhaps our moderators will read your post and suggest something I am getting expert at doing the injections now and most of the time it doesnt hurt at all !!The other plus factor is I dont have any bruising when I do it whereas my tummy was black…[Read more]

Hi Chrissie it did take several months before I felt the benefit , I was diagnosed in August 2006 I then had induction chemo before having a stem cell transplant in April 2007 It took most of that year to feel well again and then I had to have a hip replacement as the steroids had destroyed my hip joint! I agree with Eve one day at a time helps…[Read more]

Hi Chrissie I know its awful when you first hear the words that tell you your loved one has myeloma At the moment I am sure everything seems very scary with all the drugs and terminology But things will get easier as he carries on with his treatment and you will see him looking and feeling better . It sounds as if his doctors are being cautious…[Read more]

It seems like your not getting the attention you need and perhaps you need someone to fight in your corner do you have a friend or one of your carers who could chase this for you Roz.
As a long shot why not ring the Samaritans and chat to them that is what they are there for and they might just be able to get you some help quicker.
Is there a…[Read more]

Thats just how I feel some days Dai ????!!!!

i think your the one with the long curly hair and pants in sail!

Mine is a current useful tip from the BBC Useful info for mm ers as I tried it and it worked. I know I dont have mm but I was very run down and it worked
Echinacea 'can prevent a cold'
CEA left for next one
Min

Hi Bridget Pleased to hear your ok. Michaels back at hospital today, and guess what, still no Bendamustine, his plateletts have gone down again, seems to be one of the major side efffects, but the good news is he isnt nutropenic, so back next week to try again, at least I get to go into Nottingham to do a bit of retail therapy

Take Care
Suex

This just what I need ENERGISATION leaving ION Sorry I know we have had this before love Bridget x

Hi Wendy thankyou the article was very interesting . I dont have any pn symptoms at the moment but I will certainly mention this treatment next time I am in clinic love Bridget x