brocho replied to the topic PROGRESS SO FAR in the forum Treatment 12 years, 11 months ago
Hi Sue sorry I was convinced I had replied to your post the other day. Gaga! Sorry Michael is having more problems with his pn, it really is a horrible side-effect, I hope it eases off soon My mystery rash seems to be fading now and the doctors arent worried about it so I am ignoring it! The tiredness , I think Thalidomide is the culprit , is…[Read more]
brocho replied to the topic Not New to the Forum in the forum General 12 years, 11 months ago
Hi Ted good to hear from you and very glad to hear you are well . I think we all get a little bit anxious about catching bugs at this time of year, I certainly do after having pneumonia twice! So heres to a winter of being as well we can and no coughs or colds !! love Bridget
Min replied to the topic New Kitchen in the forum Off topic 12 years, 11 months ago
Got to admit been trying to post some photos and It was me what deleted the thread as it just wont let me add photos no matter how hard I try and wanted to show of my el cheapo bargain solid oak worktops
Min
Min replied to the topic New Kitchen in the forum Off topic 12 years, 11 months ago
Thanks Eve the finaly finished kitchen only been on it since August so pleased its done at last. Without your advice it woud have cost a lot more bought the lot on the internet
min
brocho replied to the topic Inappropriate language in the forum Off topic 12 years, 11 months ago
Hi Stuart I have had similiar problems posting inappropriate words in the past and it does get frustrating so any changes you can make to the list would be great Thanks Bridget
brocho replied to the topic There is tough and there is tough in the forum End of Life and Grief 12 years, 11 months ago
Dear David I am so sorry for your loss To lose someone young and full of life seems very cruel and unfair. love Bridget x
Min replied to the topic There is tough and there is tough in the forum End of Life and Grief 12 years, 11 months ago
I am very sorry for your loss David, and God only takes the best. I had a very much younger friend who's funeral I attended when Peter was having his 2nd transplant. It was sad to see her deteriorate over the months. There are no good cancers, but at least MM gives the patient time to know what is ahead and enjoy life to the full for a little…[Read more]
brocho replied to the topic revlimid cyclophosphamide dexamethasone in the forum Treatment 12 years, 11 months ago
Hi Gill I have been cracking up since reading Dais post and I will definitely check who is behind mme in future ! However since being on Revlimid I have been lumbered with squeaky bum syndrome so any tips to ease the embarrassment are very welcome , there are only so many times you can cough without giving the game away!My grandson thinks it is…[Read more]
Min replied to the topic About As Off Topic As You Can Get 3 in the forum Off topic 12 years, 11 months ago
Wait a min (pun) where is the e out of EMN in Gastronomic Roz May have spelt it right but it aint right as it aint got an E in it!
Slapped wrist for getting it wrong and miss a turn for being naughty!!!!! Hee hee :-S
But My word is Microsoft leaving OFT
:Min:-P
brocho replied to the topic One Year in the forum Carers 12 years, 11 months ago
Hi Gill it sounds like you are well organised so try not to worry too much( easier said than done I know!) Have a wonderful time it will recharge your batteries Whats a bit of frostbite anyway haha! Safe journey love Bridget x
susannah replied to the topic WELL THE DEVIL IS BACK in the forum Treatment 12 years, 11 months ago
Hi Jo so sorry to hear the beast is back, but there has been alot of positive news on Velcade recently, so good luck
Love
Sue
Min replied to the topic About As Off Topic As You Can Get 3 in the forum Off topic 12 years, 11 months ago
ATHLETIC something I am not,!
TIC for you
Min
brocho replied to the topic How long did it take at your end in the forum End of Life and Grief 12 years, 11 months ago
Hi Roz you must be so frustrated at the lack of response when you asked for help , it doesnt seem right . I am sure Macmillan would be able to offer counselling , they have lots of experience that could help you as the partner of a cancer patient . I hope you can get some help very soon love Bridget x
brocho replied to the topic One Year in the forum Carers 12 years, 11 months ago
Hi Sarah you are so right we should all create our own legacy and memories while we can You and Gordon together raised a family and built your farm so his legacy is yours as well, you must be very proud. Lots of love Bridget x
brocho replied to the topic WELL THE DEVIL IS BACK in the forum Treatment 12 years, 11 months ago
Hi Jo its lousy when it rears its ugly head again but you are in good hands at UCH so you have a good chance of beating the beast! Stay cheerful we are all with you lots of love Bridget x
brocho replied to the topic About As Off Topic As You Can Get 3 in the forum Off topic 12 years, 11 months ago
Think you got mixed up with 0 and U Gill so heres UNDERNEATH leaves ATH Bridget x
Min replied to the topic About As Off Topic As You Can Get 3 in the forum Off topic 12 years, 11 months ago
GERIENTOLOGIST From me
leaving IST
MIN
Min replied to the topic WELL THE DEVIL IS BACK in the forum Treatment 12 years, 11 months ago
Oh Dear Jo,
What a shame, don't we all wish that a long remission was the norm. As you say you have had a good length of time but its so disappointing to know your back on the medication treadmill, especially as Velcade has you tied to the hospital for administration.
But good luck and best wishes for the 2nd part of your journey
Love Min
brocho replied to the topic A NEWBIE in the forum Newcomers 12 years, 11 months ago
Hi Dave you have had a rough time till now but I hope things will get a bit easier now you are on treatment Like you I had surgical reconstruction of my spine after myeloma destroyed 3 and a half vertebrae, luckily I did suffer any paralysis ,much to the doctors amazement! I am so grateful they could do the surgery otherwise I dread to think what…[Read more]
susannah replied to the topic PROGRESS SO FAR in the forum Treatment 12 years, 11 months ago
Hi Bridget Sorry to hear of the rash Michael hasnt had any rashes, but he has had lower leg burning from the knee down, his consultant stopped Thalidomide as she thinks it was aggrevating his PN, and she said that there were no other side effects of this kind reported by anyone taking just Bendamustine
Take Care
Sue x