Dear Mary Thank you for your reply, it must have been so hard for you. I cant imagine what pain you are feeling, my heart goes out to you
Love
Suex

Dear Dai So sorry your in hospital again lets hope they clear the C diff altogether this time, and you start the Bendamustine with a clean slate

Take Care
Suex

Dear Keith What a few ,weve had a few of those with sepsis, terrifying
to say the least,.Take care of yourself

Thinking of you

Suex

Hi All thank you all for your replys, i feel so much better when ive been on the site. Tina and Eve if you read this post im having problems with my emails.
Michael had to have a blood transfusion yesterday the ambulance fetched him in his weelchair, as he struggles to walk now, but he seems quite well today very tired though.His pain ismostly in…[Read more]

Hi Sue,
Neighbours can amaze you when you least expect it.
I'm glad you have someone nearby,and hope it has helped you feel less alone.
Michael is still with you and now is the time to say what needs to be said, in order that you have no regrets. It is also the time to get Macmillan nurses involved as they are there for YOU too. Coping alone…[Read more]

Hi Eve Thank you for replying to my post, its 5pm here so i would think its about 4am there and hopefully you are both fast asleep.
ive never heard of a driver?
And your so right about making the first move with people, I spoke to my neighbour yesterday and she came round with some homemade scones today, which i might ad she has never done…[Read more]

Dear Tom you are such a lovely man,thank you for my hugs.
Tina and Gill you have both been through so much, it really does help when I read your posts.
Managed to get some fresh air today, even if it was just to fetch a news paper, but it did clear my head a little.
Regarding Michaels pain. his GP is now in control of that, well hes on mst and…[Read more]

Hi Gill,
I had my bereavement counselling with cruse 8 months after Peter died. They have a situation in which they do not like to see anyone until 6 months are up.
The 6 month time seams to be THE most raw and painful time when it all hits home that this is real.
I cried throughout the entire series of 6 sessions but at the end felt better…[Read more]

Hi Charlie My husband has had 3 DVTs first caused by Thalidomide, he was given clexin (think thats the right spelling such a long time ago)injections, he then went onto warfrin, which he has taken through all the trials he has been on apart from the last one which was very new and they did not know how the warfrin would react to the drug so he…[Read more]

Hi Dai

Sorry to to hear you have had to stop Revlimid. I hope the Bendamustine
works well for you

Good Luck
Love
Suex

Hi Thank you all for your kind replys. Michael has been getting alot more pain recently, but he has coped really well. The worse thing is the panic attacks he cant let me out of his sight. He cannot walk very far but ive managed to take him out in the car, at first id take him to a coffee shop but his appetite has almost gone although he has a…[Read more]

Good luck Keith fingers crossed
Love
Sue

Hi Keith Im sorry to hear of your news, just wanted to let you know michael was on Bendamustine trial this time last year,his PPs did go down but unfortunately he had to come off the trial because of his platelets and he could not have a transfusion because of a condition of the trial. pomalidomide was never an option. He has just stopped the MUK…[Read more]

Hi Tina its lovely to hear from you,how are you?

I keep thinking im ok and then I burst into tears, my brother sat with Michael today while I went to the dentist, and then to the shops, just wandered round like a lost sole. Ive always been such a strong person were michael is concerned but I can feel myself loosing control.
I have a question…[Read more]

Dear Gill,
I am now at 14months and felt I was doing well, I was at a party with about 50 widows on Friday night and on Saturday attended a memorial service for all patients who died it Critical Care Unit,.
I sobbed and sniffed thru the entire service which was beautiful and along with others in my pew blew our noses during the loud…[Read more]

Hi michael home hes very tired but much calmer. You are so right Dai Michael is much calmer when Im around,even before MM we always did things together,perhaps it was the other way round then, I relied on him so much, but that is what you do when you love someone.
Hi mavis yes thats my eldest daughter Emily shes 32 not married or even have a…[Read more]

Hi All didnt drink my G&T, actually Dai Im a bit like Janet I dont very often drink as I to get migraines Its probably a good job as I had a phone call from the hospital Michaelwas having an horrendous panic attack tried to calm him overthe phone but he was in such a state so they asked if iwould stay with him and that they would make up a camp…[Read more]

Dear Dai

What an amazing person you are I cant imagine what you, any of you MM sufferers, are going through I can only see through the eyes of a carer. But you are always there to offer support and I admire you for that. Janet must be so proud of you.
Just back from the hospital seems a long drive in the dark, Michael doesnt seem as well…[Read more]

Hi All Just an update on Michael we had to take him into hospital saturday
evening, no temp, but we thought he was having some kind of stroke, as I didnt have any contact numbers I rang the haematology ward at our local hospital and after a chat with his consultant we took him in. He is still in but i cannot fault the care he has had. They took…[Read more]