Hi Susanah
Im really interested as indeed will others on here in the same position as Gordon and Sarah. My husband is what I thought of or think of as at the last chance saloon. Having has a failed sct, velcade and revlamid. All of which worked for a very short time. His current treatment fills me with dread for what happens next. But it is…[Read more]

Hi Sarah There is life after SCTs I know alot of people on this site SCTs are still an option, but my husband had his second in 2003 relapsed in 2006, good result for a second, but what im saying is try not to dispair there are alot of good treatments to follow. Its so difficult when your a carer,I know were not ill but sometimes, Iknow for me,…[Read more]

Hi Ian I am glad things have gone well so far apart from your reaction. I hope that its all plain sailing from now on Good luck and take it easy love Bridget

Hi Sarah what a bastd this illness is , you must be gutted. Well Dex may be the most evil drug in the world but it is good at getting those pp numbers down quickly. Enjoy your break in Yorkshire I shall watch out for reports of a riot in Yorkshire !! Hang in there Sarah love Bridget x

Hi Kathleen sorry to hear you are having a rotten time hope it doesnt last much longer Your post made me chuckle at your new signature !!Being challenged in the dental department myself I love the name Gummy. Take it easy and I hope you feel better very soon love Bridgetx

Hi Sarah,
I empathise with how you must be feeling. When Peter got his bad news it was devastating for both of us. But there are other options out there and going back wards to CDT or in Peters case MDT is the way for us( the royal we here!) having tried Revlamid which was good, but not good enough for the aggressive cato mm
Given the past few…[Read more]

Hi Keith great news now you can forget all about it for the time being and enjoy your holiday!! Have a wonderful time love Bridget x

Hi Gill welcome to our merry band of slightly crazy but wonderful people ( cucumbers are a good example!!tee-hee) Actually I thought I replied to your post yesterday , either I was dreaming or the gremlins have pinched it It is very confusing when you first start on treatment but it will soon settle down as you get to understand all the new words…[Read more]

Brill Keith
Have a good break, see you there probably as Peter is going in about the same time
Love MIn

Brilliant news Keith Enjoy your time away, and look forward to post SCT with no treatment, and a some normality

Love
Suex

Hi Gill you are on the right site for info and lots of support from people who understand what it feels like At the moment it probably feels overwhelming but as your treatment begins it will all start to make sense You will have a specialist nurse who will be available , usually more so than consultants although a lot of them are very good at…[Read more]

Hi Gill
Welcome to the merry band of MMrs. Sorry you find yourself here and can understand entirely how shell shocked you must be. B
You about to step onto a roller coaster and might feel like throwing yourself off from time to time but bare with us/ it. We may not have all the answers but someone on here will be at the same stage as you are or…[Read more]

I think anyone on Velcade dex/Revlamind and dex deserves some sympathy and understanding. Compared to Thalid they are good but the downsides are worse. I have watched Peter try to overcome the side effects of V&d and R & D and he was struggling constantly with side effects.
He went back on Thalidomide the other night… after a big break whilst…[Read more]

Hello Dai,
Peters time on velcade was reasonably good, except for the time it gave him pulmonary embolisms. He managed to go to work while on it, (Revlamind made him very ill) But on his visits to the day unit depending on his bloods and his responses to questions he frequently saw the Dr.
I am sure if you ask next time you are in they will…[Read more]

Hi Peter UCH is a London hospital I am also a patient there. Several of us have have asked our docs about the sub-q Velcade and apart from them being aware of its use in US no good reason has emerged as to why we are not !! It is so frustrating as this would make the use of Velcade so much easier for us . Have you ever had a PICC line? It is so…[Read more]

Hi Jo I am sorry you didnt get the remission with those drugs, it must be very scary for you as the options become limited, I know I dread it Sorry I cant help with the intermittent Melphalan ,have you rung the nurses on this site their knowledge of up-to-date treaments is excellent Good luck with whatever treatment you have next love Bridget

Hi Jo Min and Sarah thankyou all for your good wishes its you lovely people that keep me going! Min how wonderful that Peter has turned a corner at last it can only be onwards and upwards now!!Love the new hairdo too Srah your holiday sounds just perfect to get away from it all and I bet Gordon was pleased you went , I know I feel so bad that…[Read more]

Hi Angelina I am so pleased John was able to be with you and his girls at home for a short while and it went well Joining everybody else in crossing fingers toes and anything possible that he gets home very soon Angelina your strength and positivity are amazing I hope you can find some time to look after you as well love to all of you Bridgetx

Pregabalin, I remember Peter shaking with that stuff, it was awful turned him into a slavering inert geriatric. It took a long time to get his mix sorted but on a weekly basis there was something new to try.
Pain is awful to bare, my little sojourn in the pain stage was my sciatica and that was bad enough but at least I knew it would go away in…[Read more]