Today I had a day of pampering at the hairdressers and got some more of my long hair shorn and Peter had a day of housework, followed by some sunbathing. Progress at last.
Last monday was the day he came out of hospital, so one week on and he has got his small dumb bells out to improve his arms strength. He used the hoover& put the washing…[Read more]

Hi Min god to hear Peter has realised you need a bit of looking after too , even if its only a sandwich its the thought that counts. Perhaps he is worse this time because he is more scared , angry than the first time , I know relapsing brought up a whole load of emotions for me the worst being feeling helpless! I am struggling with these new…[Read more]

Hi Angelina
Im so pleased Johns short visit home was successful, I pray that he will be well enough in short time to get home permanently, shame the diahhorea came back, I expect it was the excitement of going home that did it, and no doubt he had been awake all night anticipating going home to cause him to sleep when he got there.
Poor lamb.…[Read more]

Aw Kay
I feel for you, the loss of hair is a monumental event. i remember shaving Peters head in February last year and crying as I did it, after his 1st dose of melphalan, for harvest it was just growing back in May when he had his 1st sct so more shaving needed.
Last Sunday he was in hospital and I had to take in the shaver and do it again.…[Read more]

Hi Bridget,
How are you doing on the new painkillers? Better I hope.
The man gets stronger each day but right now he is worn out with watching the mens finals. while I have been acquiring a tan in the garden.
Today was a breakthru as he made lunch for me!!!!! Only a sandwich and crisps but beautifully served and cut. I know he can do it when…[Read more]

Hi Min I am so glad you are enjoying your gardening , if anyone deserves a break you do!Perhaps Peter needs a kick up the backide , I bet he doesnt even realise he is being a brat!!So let him fend for himself a bit , even if its only a few hours and I am sure he will realise how lucky he is to have you looking after him. You said you think us…[Read more]

Hi Dai like youI have not had a full nights sleep since being diagnosed 5 years ago!! Apart from the fact that I have to sleep in a semi sitting position I rarely manage more than 2 or 3 hours a night! Mind you I can cat-nap with the best of them ,and Jeff watches me like a hawk sometimes ( I have been known to drop off despite having a cup of…[Read more]

So if you don't ask you don't get, these consultants need to read more Jo. Its not good when the patient is keeping the consultant u to date with current events.
Love MIn

David I am so jealous,
I want to cruise down the Rhine. Or anywhere else come to that matter. But i think our traveling days are over.
You enjoy life to the full whenever the opportunity presents itself. Whisper about it when you come back or I will be green with envy. Lucky lucky man
Min

Oh Gill,
I know just how you feel, its a week now out of hospital with Neutropenic sepsis,sort of the equivalent of an SCT without the stem cells if you know what I mean…… he is becoming a fad. I want I want I want just like a 3yr old and when he gets it he doesn't want it. I am worn out with trying to please and now deciding just to give…[Read more]

Ah sleep, where for art thou. Not in my bleeding house anyway.
Peter can sleep on a sixpence at the drop of a hat, but staying asleep without a visit to the loo now thats another thing. When he is well he walks the dogs at an ungodly hour usually 5 or 6 am poor dogs miss there lie in. He then comes back to bed and has the next 4 hours or so.…[Read more]

Thats brilliant news David, enjoy your trip.

Sue x

Hi David lovely to hear your clininc had good results for you Even better when you dont have to go back for 3 whole months !Yippee!!! I agree with Dai dont apologise just get on with enjoying yourselves you both deserve it ! love Bridget x

Hello Eve
Right now I am exhausted… don't think I have been this tired in a long time. Peter is still very weakened, ( bare in mind I am married to a house husband who loves the hoover and iron!
The most he can do is get out of bed mid morning and take all the medication he needs and watch the war. GRRR on sky.
I think I am both…[Read more]

Hi Belles,
I have read of one person who had this but I think it was in the USA, whoever it was and Im sorry I cant remember I do recall they were very high profile within the usa, maybe they were something to do with the International myeloma foundation, I feel they may have spoken in the house of representatives about it. Sorry ant remember…[Read more]

Hi Min I am so glad things are on the up now ! Enjoy the next few weeks without thinking too much about the next stage You and Peter are such a great team you will get him through whatever comes next!! love to you both Bridget x

Thank You Roz.
We had a flying visit to the day ward today for bloods and the results are finally going his way. Neutrophils are 1.5 at last after 2 weeks of 00.2 ..He is feeling fine ( ish) compared to the past 2 weeks when all he wanted to do was sleep and stay in bed)
The plan is 4-5 weeks for a recovery period followed by further melphalan…[Read more]

13>0 13>0 over and understood. Now close your eyes and visualise… some people actualy believe that stuff and whatever it takes…. Good Luck to you.
I am sitting here listening to the Tennis while Peter is watching it having missed all last weeks games and sharipova or whoever she is is making a hell of a racket (pun) while the little…[Read more]

Hi Min This is one of the things that really worries me with Michaels trial as his consultant told us this is one of the side effects they know about. Please to know Peter is out of hospital , whats his next stepin his treatment

Sue

Please don't apologise Gill I know how hard it is when they are released from hospital and how frail from SCT. How is Steven? has he picked up? I don't suppose he can sit out in the sun either unless you use factor 30. Best wishes to you both

Brought Peter home at lunchtime having spent 5 days in Hospital with neutropinic sepsis..something…[Read more]