Hi Min I am so pleased Peter is feeling better, it must be such a relief for you to see him improving Hope you get a good nights rest and they let Peter come home tomorrow love Bridget x

Peter is on the mend and very much better.He is weak as a kitten but lovley and rosy compared to the grey yellow he has been.
Thank you everyone for your kind thoughts and good wishes,tommorow a decision will be made as to wether he is fit to come home. Hopefully we will learn what happens next too.
Love Min

Hi Tina Lets hope so , she has been so supportive to so many people on this sight for a long time.

Sue

Hi All David your post brought a smile to my face thank you, enjoy your holiday, Tina and Roz thank you for your replys they have helped alot. Michael has decide to give the trial ago, but we do have a few more questions we need to ask first.
I wondered if anyone had heard from Gaye as I know she is on Pomalidomide

Thanks again for your support
Sue

Hi Min so sorry to hear Peter is having a bad time in hospital, i remember when Michael was in you try and hold things together for there sake, but then you have to go home and hope they are being well cared for.I to agree about the dogs Ihave Lucy a chocolate Lab and we walk miles together Im sure people think im mad because im talking to her all…[Read more]

Thank you all for replying, thanks Min the consultant did mention Melphalan
but you know what its like they seem to through so much at you, and I dont know about the rest of you, but sometimes you just dont take it in. Its been a tough few days and we both had a cry this morning ( something Michael never does) we know theres not many options…[Read more]

Hi Eve Jo and Dai your posts just highlight the problems when health professionals become so arrogant it makes them more than negligent bordering on criminally deficient In your grandsons case Eve one woman has ruined his chance of a normal life , you must have been heartbroken and to not admit it was their mistake until the very end is truly…[Read more]

Hi Sue sorry I cant help with any info on Bendamustine but I just wanted to wish Michael good luck with the trial From my experience I would say you do get very well looked after when you are taking part in a trial Fingers and toes crossed they get his pps down very quickly love Bridget x

Hi Meike so sorry you have found yourself dealing with myeloma but you will find this site a great help for answers but also support for you and Christin as well . I can remember very clearly what a rollercoaster it was when I was first diagnosed but it does get easier as you get used to all the treatmentand life does become more normal. Its good…[Read more]

Hi Kieth pleased to hear your ok, have a lovely holiday/break. Forget all about hospitals and needles for a while. Peter is in the Freeman right now in the ENT ward… they have never nursed a cancer patient so when I went in tonight to shave his pi bald head they were shocked. Ward 33 where you will be is a lovely place and really nice staff…[Read more]

Hi Susannah
My husband had had cdt an sct followed in short time by velcade and finally Revlamid. The latter two stopped working after 4 cycles. We discussed Bendamustine but it was decided that as it is very much like melphalan that they would give him a large dose then another when he would have a further sct. He is feeling the effects now of…[Read more]

Hi Keith Its good to here Velcade has done the job for you and youre on track for a second SCT

Good Luck and Best Wishes
Sue x

Hi
The hospital is 7and 1/2 miles away so only a 20 minute drive in heavy traffic. The dogs well we have three labradors6 9 and nearly 13 yrs so cant really ask anyone to have responsibility for them. Fortunatly we have a massive dog flap on the garage wall so they can get out into the garden when they need to. The walking of them is actually…[Read more]

Hi all
Peter is proper poorly. His cough and throat are slightly better. His breathing is laboured and raspy. He now has dreadful diaroheah
He will remain there until Monday at least. They finaly introduced reverse barrier nursing today. Apparently no one who booked him into the ENT ward bothered to tell the sister he was neutropenic. He is…[Read more]

I have seen that Dr almost every day in a corridor in the past two weeks and she looks away whenever she sees me………she should be hanging her head in shame. If she had acted sooner Peter could have been treated long before he deteriorated

Hi Min your post just goes to show professionals are just as capable of stupidity as the rest of us!! The scary thing is these people literally have our lives in their hands so I do expect more from them As for the professional arrogance that doctor showed in not considering that just possibly Peter may have myeloma and doing a simple test they…[Read more]

Before Peter was diagnosed with MM he was attending the renal unit for kidney failure. Every week he had blood and urine tests and one week after he had had an xray for a back pain which showed his 1st 2 crushed vertibrae his blood results taken the previous week showed raised calcium level. She said cant understand why you should have a calcium…[Read more]

Hi Jo got a whole bag of new painkillers yesterday at clinic , so will have to see if they work !!Hard to know what Revlimid is doing for me as my paraproteins dont tell the true story( little fibbers always read low even when myeloma is on the rampage!) I have to have frquent mri scans to see whats going on. Lucky you werent at clinic yesterday…[Read more]

Hi Min I have had you and Peter on my mind all day just wondered if he has had a better day today Are you looking after yourself too , I hope so love Bridget x