Hi Eve how you must have wanted to give him a clout!!A similiar thing happened to me when my youngest daughter was diagnosed withCystic Fibrosis , someone who I thought was a good friend said it would have been better if she had died!! I have not spoken to her since!! How old is your grandson? It makes me so cross when people cannot see further…[Read more]

Well done that man. I love to hear of success stories and I am sure it is in no small part due to your encouragement Mari. Hearing of someones achievement with mm is just what we need.
At any time of the journey there is doubt, but your news blows it away.
Love Min

Oh Roz what a stupid stupid man to say something like that to you Its a wonder you didnt punch him on the noseJust goes to show even the healthcare professionals get it wrong sometimes love Bridget x

Hi Mavis well I came home from clinic with a whole bag full of pain relief today !!The Macmillan nurse upped my Oxycontin dose to 70mg yesterday and I now have some big plasters filled with local anaestheticto put on my back plus some Pregabilan Apparently Pregabilan is the posh version of Gabapentin and has fewer side-effects , also much more…[Read more]

Hi Dai glad to hear the pn is lessening and your bloods are behaving It wont be long before you are playing comfortably again , I cant imagine anything keeping you from your guitar for long !! love Bridget x

Hi Keith good to hear all is going well Iknow how you feel about getting away from blooming hospitals and all the stuff that goes with it!!Have a good holiday and it will boost your spirits ready for the sct and after that a very long remission Take care love Bridget x

Hi Mari wow! Thanyou for sharing with us it really does lighten the load to hear of someone doing such an amazing feat after all he has been through Mind you I think you played a big part in his recovery , you make a great team !!Steve must be a very determined man , I cant even ride a bike to the end of the street not due to myeloma just have…[Read more]

Hi Min yes they can write scripts but as I am at clinic tomorrow I think she was being professionally polite , if you know what I mean ! Sorry to hear Peter has had to be admitted again, you must be at your wits end Ithink you can just ring yourself once you are on their books In the short time I have known my Mac nurse I would certainly call on…[Read more]

Hi Angelina reading all these lovely ideas on here has made me realise I too want to leave some memories for my children and grandchildren So tomorrow I am off to buy a notebook and go where the memories take me Thankyou for sharing with us and prompting me .I am sure your girls and Johnare going to love doing their books lots of love Bridget x…[Read more]

Hi Bridget,
The 'mac' nurse Peter had simply wrote the prescriptions herself, no reference to the Dr at all, other than to send him a copy of of the script.
I am currently in two minds wether to contact her again after over a year, as peter was admitted to hospital today and I just felt she would have smoothed things out to make it easier,…[Read more]

Hi Angelina,
I am so very pleased to hear that John is in agreement with you, I doubt if your sister in law would be able to put herself in your shoes, otherwise she would not be so negative.
For my part, I am not in your situation but about 4yrs ago I bought a gold backed notebook of the a5 size and started to recount some of my own memories…[Read more]

Hi Wendy so glad you are home and feeling better There really is no place like home is there Stay well love Bridget x

Thankyou everyone for your support as always it makes the world of difference My lovely and very wise Macmillan nurse came today and has suggested increasing the Oxycontin to 70mgs morning and night plus increasing Severadol to30mgs Fingers crossed it works She was rather annoyed with the doctor for ignoring her other reccomendations for patches…[Read more]

Hi Michelle I havent posted for a while but i do read posts most days. Sorry to hear of your mums setback, but its good shes back on Revlimid. My husbands just be taken off after 18months we see his consultant Friday to see what next? I will be interested to know what your mum has next

Take Care
Sue x

Hi Bridget Thanks x

Sue

Hi Michelle sorry to hear mum has had setback but it sounds like her doctors are on the ball!! I am also on Revlimid and I have been told Cyclo may be added if Revlimid beomes ineffective on its own Could the P drug be Polpomanide( not sure of spelling ) if it is Gaye is on this one I believe. Good luck but with your positivity and your mums…[Read more]

Hi Sue just want to wish you luck for Friday I hope they come up with a good treatment plan . Crossing fingers toes and anything else for you love Bridget x

Brilliant news Colpot and long may it continue.
Peters venture into Revlamid started out well then sadly stopped after 4th cycle. But life goes on. It never fails to amaze me how everyone responds differently to these drugs.
Just goes to show we are all different in every way ,under the skin too.
Min