Dear Dai
I am so very pleased for both you and Janet, what a blessed relief it must be. PN well you can put up with that for a very short while, and it will all get right.
As long as you can still plonk your fingers on the keyboard you can continue to amuse bemuse and abuse us. Just kidding about the abuse!
I am not surprises your in your bed,…[Read more]

Hi Colpot My husband has been on Revlimid for 19 months, and we thought he was doing well. Sadly it stopped working a month ago and now he has been taken off it. Thinking positive he has been refered back to Prof Russell at Nottingham city, from our local hospital, to see what next, We go this Friday so fingers crossed. Fingers crossed for you,…[Read more]

Hi Heath I had not heard of PCL thankyou for letting us know Your wife must have been a very determined lady and I am so sorry she is no longer with you.All the best for the future love Bridget x

Hi onlyme good luck to your mum on the next stage of her mm journey Fingers crossed Velcade will do the trick !!love Bridget x

Hi Clopot brilliant result with Revlimid!! Do you have any nasty side-effects with it and do you take Dex as well? long may it continue love Bridget x

Hi Eve thanks for that , I was told its the liver getting used to morphine that leads to higher doses At the moment I am relying on Severadol just to get through the day Hopefully the Macmillan nurse will ring and up the Oxycontin dose soon , if not Iwould rather go back on mst morphine at least Tlcan function better on that Take care love Bridget x

Brilliant news Dai you and Janet must be on cloud 9!!! Heres to the next results being a big fat zero!!! love Bridgetx

Hi Angelina your girls sound lovely and such beautiful names Whatever you decide about a memory book they will cope because they have you to guide them through it , Sending big hugs to you all love Bridget x

Hi Wendy sorry you are going through it , nothing worse than raging diarrhoea!! I think a couple of people on here have had similiar problems on Velcade Have you spoken to your nurse about it possibly being a side-effect of Velcade? I hope it clears up soon and you are able to go home love Bridget

Hi Eve, Shirley and Jo thanks , you have all made me realise just what a high dose of mst I was on , 90mgs in the morning and 100mgs at night, so I shouldnt be surprised the initial dose of Oxycontin wasnt enough The pain has been awful this weekend so I am going to ring tomorrow and ask them to up the dose or put me back on mst morphine Eve I…[Read more]

Hi Gill I am sure that being at home is just what Stephen needs to begin to feel better Who else could take better care of him than you So heres to the good times to come , hopefully they wont be long love Bridget x

Hi Roz good to hear from you. I have just read your reply on another post about Michaels memorial garden , what a lovely idea and you will be able to enjoy it too and feel close to him Take care Roz and one day at a time love Bridget x

Dear Angelina I hope John pulls through this rough patch but I think you are wise to begin a memory book now . I used to work with children who had lost a parent and I know how precious a book celebrating someones life is to them If you ask people now you will get lots more positive happy memories ,if you leave it till afterwards grief may make…[Read more]

Hello Gill and Steven,
I think I know just how Steven feels as Peters mega melphalan is now kicking in with all the dreadful side effects.
I sincerely hope he starts to pick up soon and you can get off to France and recuperate.
Before you go ask you medical staff for a referral to a pain specialist who can get Stevens pain under control. I…[Read more]

Oh Angelina,
What a dreadful hand life has dealt you and John, and all the many other people on here who have a loved one with MM. Its particularly poignant when young children are involved.
They can be very matter of fact and I am sure they will agree with what you plan. They are your future and they are what matters. Go ahead and do it and…[Read more]

Hi Bridget it was the 1st drug for his mm he was prescribed by a pain specialist nurse, and he could not get away with it. He prefers mst 10 mg or 20 mg and tramadol combined. He hasn't left his bed all day and hasn't had any…Says if he is not standing up he doesn't need it… Might just tie him to the bed now!!!
Hope you find something that…[Read more]

Hi Min poor Peter really does get the lot doesnt he !! I have had severe indigestion at times but have only used the remedies you already know about I hope they come up with something very soon for him it must be awful love Bridget x

Hi Jane and Pat welcome to our little world Jane your mum sounds like a real trooper !! Sorry I cant help with the Thalidomide question but constipation is a common side-effect wuth all myeloma treatments I was unable to concentrate on anything for more than a few minutes in the early days but it has improved as time has gone on Take care and I…[Read more]

Hi Gina great to hear mum is home now , and she will soon be back to her old self , but it may take a little time after being so poorly Hopefully it wont be too long before she is on Velcade and it works its magic for her Please give her my best wishes love Bridget x