Ha Ha Ha,
Peter had that all thru his Revlamid. Much better now on Thalid. (for now) it wont last never does. We have got over the shock now and just getting on with it as usual.
Time I was in bed or no gardening will be done as I wont be able to get out of bed! Sounds like the kitchen will be to your liking. Im just going over the…[Read more]

Hi Min sounds like a good time to have it done , very dusty here and getting to the loo has been tricky so Peter is best out of the way Tomorrow the units go in and they are tiling on Saturday !!I was able to choose from half a dozen cupboards , flooring , worktop and paint clours , even door handles Afar cry from the old days when tenants had no…[Read more]

Wow David,
Busy busy busy. Have a wonderful time. I learnt how to drive in the dark when a rooky PC in HOIK( thats how we pronounced it)
Morpeth is not too far from us and if on your way back south you go via the Tyne Tunnel call in on us if you like for a coffee. Take it easy and dont get too tired.
Love Min

Oh Bridget I do envy you the nice weather, warm here but not wonderful.Kitchen will be just right and hope your able to have some input into it… Eve see the forces benevolent fund for help with getting allowances for slim.
I had decided when I retired/redundant I would have a new kitchen, last weeks fright at the hospital made me decide to put…[Read more]

Hi Dai your tour sounds wonderful if a little exhausting maybe , pace yourself But how lucky to be able to race your ancestors I am so jealous coming from anglo -irish- french- stock makes it tough to find mine Hope you both have a lovely trip and leave all thoughts of mm at home love Bridget x

Hello Again.
Do I think that Peter got his mm being near to fuel from aeroplanes????
No I do think all the many injections he got to go to the Falklands and anywhere else may not have helped.
But in reality, there are many people on here who have never been on or near a plane or ship so how did they get it?
In Peters case I think his cards…[Read more]

Hi Dai your garden sounds lovely ,more power to Janet clever lady. I used to love pottering around after work just watering and dead-heading, cleadred my head from the horrors of work , they are such healing places in all sortts of ways arent they? Good luck for your ct on Thursday I will cross fingers toes that it shows a big fat zero love Bridget x

Hi Eve yes I know I will love it when its done the council are doing it so its not high spec but it will do me just fine and all tiled and decorated is a big weight off my mind . I think the cleaning firm is a great idea , your time is taken up with hospitals so you should definitely treat yourself , I might do the same !! My daughters think life…[Read more]

Hi Marian thnk you for letting us know how you got on As you say the worst is over now, it does take time for it to sink in but as your family see how your dad gets his treatment and copes with it things become less dramatic and urgent Life does become normal again , slightly different but you find a way to live with myeloma I ts brilliant tha…[Read more]

Hi Eve
Peter had just finished his 6 months of injections for blood clots caused by the medication.. It took about 6 weeks before they diagnosed that then.
Realistically we have to understand that medicine is not an exact science and they do often get it wrong. But why do they get it wrong when you can tell them what it is… if I take one of…[Read more]

Hi Min like Peter I am now over 3 inches shorter than I used to be my remission lasted 18 months , which is not a very long one but neither is a very short one . It is an interesting thought though I have not seen anything to suggest spinal damage might affect remission time Hopefully you will get lots of answers which give an overall picture…[Read more]

Hi Carol welcome to our happy little band , I am sure you will get lots of replies. Bone pain is very common and doesnt necessarily go after an sct . Your consutant doesnt sound very helpful perhaps if you had a chat with the specialist nurse and rxplained how difficult it makes life being in constant pain . I have extensive bone damage and the…[Read more]

Thank You everyone for your support, Its good to know we are not alone on the roller coaster.
The delightfull dex kicked in today and delivered a feeling of a well being and big appetite(much needed due to recent weight loss of one and a half stone) and the nasties.. Had a little moment of shouting and loss of temper…………him not…[Read more]

Hi Tina Patrick is at peace now from this b illness. You are so brave offering support to others, but im sure after reading Patricks posts that is what he would have wanted

Love
Suex

Hi Angelina,
When Peter was first put on Tramadol and codeine we went to stay at my daughters and he woke up in the morning telling us he had been talking to a variety of dead people relatives and friends who had all been giving him advise on how to beat his kidney failure etc.
We thought he had gone doolally! He cried like a baby because…[Read more]

Hi Dai I think you are very disciplined really , they say we all have a book in us but very few people actually do write one !! I love your outline and I am looking forward to reading it Happy writing!! love Bridget x

Hi Angelina blimey you must both have been exhausted come the morning!! It must be scary to see your husband like that . I think it must be due to the meds, as you said he takes a lot of medication and who knows how they interact with each other. I do have very vivid dreams , sometimes it can seem ages when I wake up working out what is real . I…[Read more]

Dear Min I had to read your post twice as it didnt seem possible that this wretched myeloma could kick you in the teeth like that Thank goodness though they were able to pick it up fairly quickly and come up with a strong plan to knock it right back. I feel for Peter , the thought of having to go through all that must be hard to contemplateThe big…[Read more]

Its Brilliant Dai, and and and you have a Minnie, the only other minnie I know is married to mickey mouse!
Cant wait for it to be published as you have me hooked. Good Luck and can I have an invite to the booker prize please?
Min