H i Alistair I am also under Dr Yongs team at UCH London and they are excellent Not only is Dr Yong good but the whole team are and they have regular meetings to discuss treatment plans , bringing in other professionals when needed , for example an orthopaedic surgeon to suggest a way to ease my back pain The hospital itself is very new and…[Read more]

Hi Kathleen thankyou always helps to know how other people get on with drugs . I am going to start mine tomorrow when I dont need to drive just in case the first one makes me drowsy ! love Bridget x

Hi Alistair
I can recommend the Freeman in Newcastle as it has a new purpose built cancer department and two wards and a day ward not to mention lots of absolutely wonderful and understanding staff. A hospital is only as good as the staff who run in and the commitment of the team in Haematology is amazing. We have met some lovely patients too…[Read more]

Hi Da thankyou so much it was a privelige to be able to read your work . It certainly got me hooked and I will be first in the queue to read the finished version. How do you discipline yourself to wrte or do you just write when the mood is upon you? love Bridget x

Hi Jo thankyou I know what you mean about dreading the changes in our GP systems I dont think they will be able to cope either Did you get a newsletter about the new cancer centre at UCH? It looks brilliant , especially having scan , x-ray and pharmacy all in the same building as treatment ! I cant wait for it to open love Bridget x

Hi Roberta lovely to hear you are feeling well and back at work. I can understand how those selfish family members have made you feel but I agree with the others let them go !You and your husband have earned the right to enjoy life now after having been through so much recently Put your energy into what you want to do not what you feel obliged to…[Read more]

Dear Min I can only imagine how you must both be feeling , this bloody illness keeps throwing up new challenges. Jos point was a good one they may well go back to something that worked well before If not perhaps they will try Pomaldomide ( not sure on the spelling ) , the drug that Gaye is on at the moment You and Peter have come up against so…[Read more]

Hi Roberta,
I fully agree with Jet, let them go and get on with your life.. If your husband questions it, tell him that this is the new you, having beaten the odds with your MM your not going to attempt to beat the odds with his family….
We did this about thirty years ago when my husbands parents neverreally acknowledged my children as…[Read more]

Hi Bridget,
Is this the first time you have had the benefit of a Macmillan Nurse? I cant praise them enough as Peter had one what seams like an age ago but its actualy 18months. She was brilliant and not just there for the patient, she looks after the family too, understanding how they are affected by cancer diagnosis. We have not seen her for…[Read more]

Hi Dai I am glad to hear you are feeling a little better , it is horrible when something like that makes you feel as if you are going backwards though ! When I was on Velcade I expected to feel great and have lods of energy on my week off! Wrong the weeek that was drug free was a complete wash-out, which got to be tolerable because I was expecting…[Read more]

Hi Dai
I have a very vague recollection of Peter feeling absolutely washed out and worse on his week off when he was on velcade…….he feels similar now with Revlamid! whats that all about then. He did have several 'days off' the medication as really beats the heck out of you. Hope they get to the bottom of it as its seen off your immediate…[Read more]

Hi Liz,
Thats what we are here for and glad he is now comfortable and of course so are you now that your mind is at rest
luv Min

I have to own up, I am not that clever; and only resposible for posting a thought that was sent to me.
Im afraid my only contribution to the words was posting it………. I am currently trying to find joy and build memories, This verse made me wake up to some strong thoughts
Min

I am so very pleased that life is back to 'normal' for you both.. Good news is always a boost for those in utter turmoil. Long may it continue for both of you. Nicki,
Love Min

Hi Nikki its lovely to hear things are good for you and Sam As you said its hard to imagine that it could be that way when you are facing the worst myeloma can throw at you!! Enjoy your holiday love Bridget x

Dear Gaye it really does seem so unfair that you should get no relief from the pain as others have said its something we are all told we wont have to endure I will be thinking of you on Thursday and hope like mad they can finally do something for you . Kathleen I am so sorry you are having a rotten time , I can only imagine how rotten 2 or 3…[Read more]

Dear Gaye Im so sorry to hear you are not to well,i do miss reading your posts. You have always been so supportive over the years, i only wish you lived near by and i could pop in and support you

Take care
love
Sue