Min replied to the topic Brocho – Bridget Rochfort in the forum General 12 years, 5 months ago
Dear Siobhan
I am so sorry for your loss.
Your Mum was a wonderful lady admired by all who ?met? her online at mm uk. I am deeply saddened to hear of you and your families loss of this lovely lady, who made the journey with mm with dignity and humour, and a very very caring atitude.
Your Dad must be devastated, and I wish you all the strength…[Read more]
Min replied to the topic Bridget in the forum Off topic 12 years, 5 months ago
Our Lovely friend Bridget.
I am saddened to read the news from her daughter, on Bridgets face book page. She gave me such wonderful support from the moment Peter was diagnosed and after he passed away. She will be very sadly missed
Min replied to the topic moving on in the forum End of Life and Grief 12 years, 5 months ago
Dear Dai and Janet
Now I understand you.
As directed I watched your 'The Wish' yesterday. I now know exactly where you are coming from and hopefully that is the same place as I am going !
I believe it and thank you. Will watch it again tommorow if I can find the time. Off to a new quilting class. Love it. Just the thing to pass the time in…[Read more]
Min replied to the topic bereavment in the forum End of Life and Grief 12 years, 5 months ago
Dear Stephen
I understand a little of the pain you are going through. Grief if extremely tiring and its natural to feel exhausted as your brain wonders from one thought to the next in a nanno second trying to make sence of the unfairness of it all.
Please don't forget your children are grieving too. There shorter lives have always only ever had…[Read more]
Min replied to the topic Hospital in the forum General 12 years, 5 months ago
Its called barrier nursing .Eve. and you must insist on it.gloves plastic pinny and mask. And if that had been adhered to in Peters case he might just be here today. So don't let them get away with it.
That's my drum banged . Only do it when I'm riled up.
Which I wasn't because had a briliant few days
I'm now going onwards and upwards to…[Read more]
susannah replied to the topic SCT Underway in the forum Treatment 12 years, 6 months ago
Hi Eve So pleased Slim is back home, its onwards and upwards now (as Tom would say)
Love to you both
Suex
Min replied to the topic My Loss in the forum End of Life and Grief 12 years, 6 months ago
Dear Carol,
Im so sorry for your loss, I KNOW exactly how you feel as its eight months since my husband died of mm, it was also very sudden and unexpected. Losing your husband is like being torn in half, I had been married for 40years and to suddenly be without him was heartbreaking.
My husband had been ill with mm for two years and those two…[Read more]
susannah replied to the topic UPDATE ON MICHAEL in the forum General 12 years, 6 months ago
Hi Thankyou all for your kind replys I dont post on the sight as often as I should, but I know whenI do I always feel much calmer. I find it hard to share things, open up if you like, but this site does help people do that. Thanks Eve Ive ive had a few of those headaches recently!
Tina ive been thinking about you recently,tried to email…[Read more]
brocho replied to the topic UPDATE ON MICHAEL in the forum General 12 years, 6 months ago
Dear Sue I am so sorry to hear things arent going well , no wonder it has hit you hard. Please dont feel guilty , you certainly have no need. Michael can probably see how much you need a break too Try and be kinder to yourself Sue , you are Michaels strentgh and its bound to take its toll , but you do need time away frm myeloma and hospitals etc…[Read more]
susannah started the topic UPDATE ON MICHAEL. in the forum General 12 years, 6 months ago
Hi Havent posted for a while about Michael, not sure what to say now ive started. Things have not gone to well since Bendamustine stopped, hes had a couple of stays in hospital with infections, and generally been very tired, but still remains positive. I on the other hand have been feeling sorry for myself especially today, I dropped him off at…[Read more]
susannah replied to the topic DT PACE in the forum Treatment 12 years, 6 months ago
HI Paul Not heard of DT PACE before, but I hope it works for you Have a brilliant week end
Love
Suex
Min replied to the topic moving on in the forum End of Life and Grief 12 years, 6 months ago
Dear Dai
Yesterday I drove home,and decided to cut actress country and drive through Nottingham forest, you were inexplicably on my mind and I kept thinking. If I knew where you lived in notts I would have called in to see you. You must have been typing you post at that time. Bizzare
Instead I went on a journey to nostalgia to an RAF station…[Read more]
Min replied to the topic moving on in the forum End of Life and Grief 12 years, 6 months ago
I am in the countryside looking after two grandchildren two cats, five dogs and two chickens one of which is broody orpington sitting on some bantam eggs!
The daughter is in Dubrovnic with hubby and friends. Finally the sun is shining been here a week tom and its rained every b day.
Finally the sun is shining and I am looking forward to…[Read more]
susannah replied to the topic Revlimid Failed in the forum Treatment 12 years, 6 months ago
Hi Gill Sorry to hear your news, but dont give up yet Michael came off Revlimid over a year ago, he had Bendamustine but that didnt work for him,theres nothing else for him at the moment, he doesnt fit the criteria for Pomalidomide, but that doesnt mean that one of these wont help Stephen.
Michael has been on chemo and dex now since Christmas,…[Read more]
susannah replied to the topic Another relapse? hope not! in the forum General 12 years, 6 months ago
Hi Keith I remember Michael after his second SCT his pps did go up at first then went down, so fingers crossed
Love
Suex
susannah replied to the topic I love My Mum gone but never forgotten x in the forum General 12 years, 6 months ago
Dear Michelle Im so sorry to hear about your mum my thoughts are with you
Suex
Min started the topic moving on. in the forum End of Life and Grief 12 years, 6 months ago
I thought I would let you know how life is after caring for my husband who died 8 months ago from myeloma. I know I moved away from contributing to the site but I have regularly,checked in to see how you are all doing.
I started to go to cruse bereavment counceling a while ago.
Its tough. Exhausting, and interesting.
I developed a strange…[Read more]
susannah replied to the topic Busy Week in the forum Treatment 12 years, 6 months ago
Hi Eve
Good luck for the week and all the best to Slim for his SCT Sunday
Love
Susannahx
susannah replied to the topic Another 3 months in the forum General 12 years, 6 months ago
HiDavid Thats the stuff we like to hear
God Bless
Susannah
susannah replied to the topic HERE WE GO AGAIN !! in the forum Treatment 12 years, 7 months ago
Hi Bridget Its so good to hear from you, stay strong
Big Hugs
Suex