brocho replied to the topic HERE WE GO AGAIN !! in the forum Treatment 12 years, 6 months ago
Hi Helen and everyone for your kind wishes, I didnt end up in hospital but with another course of oral anti-biotics. B I can honestly say they have only made a minmal difference so I will be taking a bag to clinic this week Most days I cant stay awake for longer than 5 minutes, waliking upstairs is very scary as I am so weak now, probably due to…[Read more]
brocho replied to the topic Pain of trapped wind in the forum Side-effects 12 years, 6 months ago
Hi Tina trapped wind is awful so painful!! Try peppermint cordial with freshly boiled water and rink it as hot as you can You might have to look in the drinks department at supermarket or an off-licence as its not so popular as it was Good luck hope it works it does for me love Bridgetxx
brocho replied to the topic POSTBONED in the forum End of Life and Grief 12 years, 6 months ago
Dear Eve and Slim my thoughts and wishes are with you and all of your family To lose someone so special to you all must be devastating , stay strong together and remember the love you gave and were given Lots of love Bridget xx
susannah replied to the topic POSTBONED in the forum End of Life and Grief 12 years, 6 months ago
Dear Eve and Slim I am so sorry to read of you loss, life is such a b…ch
Love
Suex
susannah replied to the topic Bridget in the forum Treatment 12 years, 6 months ago
Hi Tom Thanks for that, I am on facebook but dont go on there very often either, will give it a go
Love
Suex
susannah started the topic Bridget. in the forum Treatment 12 years, 6 months ago
Hi Bridget I just wanted to know if things are ok with you, havent seen any posts recently. I know you and Michael are in a similar situation regarding treatment (or lack of) Hes still on chem and small dose dex, but hes become very frail. Hes heard nothing regarding any more trials, how about you?
Take care hope to here from you soon
Love Suex
brocho replied to the topic Swollen ankles in the forum General 12 years, 6 months ago
Hi Ian glad your ankle problem wss sorted out quickly and simply It sounds as if you have a really good doctor which makes such a difference When I have had unexplained pain, such as you have under your arm, my doctor always offers an mri to reassure me which I think shows they see us a whole person not just a set of symptoms . Heres to your CR…[Read more]
brocho replied to the topic Ah, So… in the forum Side-effects 12 years, 6 months ago
Blimey Dai you dont do things by half!!Thank goodness you have Janet watching out for you she must have been so worried . I think the sweats are likely to be Revlimid , when I was on it I would pour with sweat at the least exertion and I still have the same problem now I am on Thalidomide. It does get very embarassing but I suppose there are worse…[Read more]
brocho replied to the topic Fashion Faux Pas in the forum Off topic 12 years, 6 months ago
Hi Jean well thats a coincidence , they probably wouldnt be too chuffed if it happened in ten years time ! They are both so beautiful such lovely eyes Hope you are having a lovely Easter love Bridget x
susannah replied to the topic Board activity in the forum Off topic 12 years, 6 months ago
Hi Debs I was really moved by your post and although I dont reply on here very often I do look in now and again. Michael my husband has never been on this sight, he to was very young when diagnosed and our girls not much older. Im the one who has gone to discussions groups etc, he has just taken his treatment,and tried to live as normal alife as…[Read more]
brocho replied to the topic Pig In A Poke in the forum Off topic 12 years, 6 months ago
Hi Eve yes my eldest daughter is fast becoming just like me but she cant see it ! I realised years ago that I sounded more and more like my mum, although Idont want to end up saying the strange things she does since her stroke!! Still thats what makes the world go round and keeps history alive which I am glad to be part of love Bridgetx
brocho started the topic Pig In A Poke. in the forum Off topic 12 years, 6 months ago
Hi everyone just thought I would ask you all if I am normal or just weird as my children and grandson claim !! We were chatting about something one of my daughters had bought when I said " At least you didnt buy a pig in a poke" after much laughter and me explaining it was a saying and what it meant they then ,listed a lot of other things I say…[Read more]
brocho replied to the topic bereavment in the forum End of Life and Grief 12 years, 6 months ago
Hi Stephen I relied on the newcomers page Bridget
brocho replied to the topic Back to fight another day! in the forum Treatment 12 years, 6 months ago
Dear Mavis I have not been up to speed on here lately as I have been a bit unwell so sorry I havent sent you a message. You have really been through the mill yetr your "smile" shines through still . I am glad you are getting your pain sorted even if the juggling does take a bit of time. It sounds as if the hospital is good at getting you the…[Read more]
brocho replied to the topic ImMucin Vaccine in the forum Treatment 12 years, 6 months ago
Hi Keith thankyou that does sound very promising, hope it gets the green light even if it takes 6 years. As you say if it came to it whats a flight to Israel compared to a good result. I knew I should buy a Proper Newspaper on Sundays then I wouldnt miss gems like that But those Sunday Trashies are hard to resist !!!! Take care and hope you are…[Read more]
brocho replied to the topic Swollen ankles in the forum General 12 years, 6 months ago
Hi Ian swollen ankles does sound like water retention , worth getting it checked out. I always get swollen ankles and calves when on Dex or Prednisalone . Ferusamide tablets are used to get rid of excess water and you should put your feet up as high as possible when sitting, doesnt mean you get to bew fed peeled grapes though!! Keep drinking lots…[Read more]
brocho replied to the topic dawn in the forum Newcomers 12 years, 6 months ago
H i Stephen I am so sorry for your loss Dawn must be missed by all who loved her but for you it must be like losing the other half of you As Eve said hang on to the good times and talk with the children about Dawn a lot it will help you all. How very generous of all your friends and family to have raised all that money for M.M.U.K I for one am…[Read more]
Min replied to the topic Board activity in the forum Off topic 12 years, 7 months ago
I think debs hit the nail on the head with regards to popping in when your i'll and need the support, but its a different kind of support that people in remission need in order to move forward.
But I look in regularly can't help myself, just need to know your all OK.
Cant just shrug of my cyber friends and confidantes
Similarly saddened to…[Read more]
brocho replied to the topic WHAT TO DO NOW… in the forum End of Life and Grief 12 years, 7 months ago
Hi Nicola lovely to hear from you Wow what a wonderful turnout for your dad you must have felt so proud of him. When I was very young I was scandalised at people smiling and laughing after a funeral its only as I got older I realised its such a necessary part of the grief process Those laughs and stories told at your dads wake are more precious…[Read more]
brocho replied to the topic Here's hoping for some normal pain… in the forum Treatment 12 years, 7 months ago
Morning Dai no wonder you have been losing sleep there is nothing worse than having a pain you dont know the cause of . I must admit I am very surprised your doctor dismissed your concern without even doing an x-ray . I think you are right to insist on examination of your shoulder as soon as !If it is mm then it does not necessarily mean your…[Read more]