Haha Min I love it!!Got me with this one Bridgetx

EXCELENT

Hi Chris,
I care for my husband too, I can identify totaly with the sweats, as my husband had it too, whilst on CDT. He responded well to CDT with little side effects apart from slight periferal neurapathy in his hands; he wa on mssive doses of mst too, as well as other drugs relating to his heart bypass.
We always thought the sweats were…[Read more]

Hi David thankyou that was the funniest thing I have seen in ages Bridget x

Hi Chris welcome I am sure you will get lot of support from all the lovely people on here It took me a long while before I even looked at this site , a form of denial I think Unfortunately not all people even try to understand myeloma but its very sad that your husbands family are so unsupportive . Grandchildren are a special joy arent they , I…[Read more]

I think I could do that, when I was 6 yrs old!
Min

Hi Chris
A very big welcome and pleased you dipped your foot in the water. You are amongst friends and can rely on us to lend you a listening ear when the coping gets too much.
Like you I have a husband with mm and its been a series of fairground rides in the past 18months with lots of high and low points.
I don't have a lot of people who…[Read more]

Next instalment.
Went to clinic today for new packet of pills, and result of last blood test. One was done on the day he started and another was done last visit 2 weeks ago. To see if he was responding to it.
For the past two days Peter has been on no Meds as it was his week off, but he had sickness and trots, which we have been unable to…[Read more]

And We are glad to have you back, I imagine Poole hospital are pleased they finally prised you out of your bed.
Don't go leaving us in suspense like that what happened next?
Luv Min

Hi Kevin its good to have you back .You have certainly been through a tough time and being in hospital that long must have driven you crazy!!! Heres hoping its a very long time before you have to go back there . love Bridget

MMM
Peters muscles which he had worked on replacing for months went south!Muscle tone shot to that hot place your not allowed to type, after 4 cycles. Week as a kitten and tired also. The 3rd scyle started to show it had stopped working altogether but went on to do the 4th just in case it was a blip. Now on Revlamid, not so severe, but very…[Read more]

Hi Wolf Thanks my husband will mention Pregablin when we get the appointment at the pain clinic His PPs have gone fron undetectable to 3 but his consultant says she is not to worried as Michael was on 10mg before his 3months off, and what she says is that the Revlimid has to get into his system again, so she will wait to see if there is any change…[Read more]

Snap Gill,
Peter was never a beer drinker, and still is not (or lager) but he sure looks like he has a beer gut poor soul. However this beer gut goes all the way round his waist!
Im going to keep an eye out because he always has the hump on didn't know it was a buffalo though LOL
How is the Pup? and when will we see him?
Luv MIn

Hi Jet,
You poor thing you certainly are going through the mill.
Your progress is very similar to my husband's who was found with kidney problems first,( read you blog)you are lucky though as it took a further 4months with kidney people before he was diagnosed with mm.
He is also on Revlamid and dex, having just finished his first packet.
It…[Read more]

Hi Kath lovely to hear from you but I am sorry you are having such a rotten time As you say it becomes a balancing act to gain some quality of life when these drugs rule our lives. At the moment I am hoping like mad that next month will be easier as I am fit for nothing most daysWhat I find really frustrating is when you have a day where you do…[Read more]

Hi Jet sorry you have had to join us but welcome to the most supportive group ever! I am on my first cycle of Revlimid too and I have been struggling Like you I am on Dex for four days, 20mg a day, and 25mg Revlimd daily over the three weeks Most of the side-effects you describe can be put down to dex but I think they are magnified when taking Rev…[Read more]

Hi Norman I had my sct at UCH London , the team is led by Dr Kwee Yong who is pretty well known in the myeloma world Food was pretty much what you would expect but you are in your own room so wouldnt disturb anyone one with your own grub Macdonalds over the road and major supermarkets 2 minutes away I used my laptop with a dongle no problemswith…[Read more]

Hi Wolf My husband has been on Revlimid now for 15months, he started on 25mg with dex. Last August he became totally exhausted and considered stopping treatment as he felt so ill,his consultant decided to give him a treatment holiday for 3 months ( the Revlimid had reduced his PPs to undetectable levels) He restarted again in November as his PPs…[Read more]

Hi Wolf? my experience with velcade were somewhat similiar the first time I managed about 4 doses but was taken off it because of constipation ,I did have PN but not till 2 weeks after I stopped velcade and it went after a couple of months . I was under the impression that PN due to velcade is likely to go eventually but PN due to Thalidomide is…[Read more]