[MinParticipant]

Hi Chrissie
I know its difficult but you will find the strength to cope with whatever is thrown at you.
You will be surprised at the inner reserves you will find from goodness knows where. But it will get easier as time goes on. Your husband has a lot to cope with and he will be afraid as much for you as for himself so let him see that you are coping.
You dont say what age he is, does he normaly work ? Money worries are a big cause for concern at the outset and these can be reduced if you claim whatever is available like Disability living allowances etc.
I know that the hospital visiting and housework and meals etc etc are a dreadful burden when your used to sharing these tasks, do you have any help at all to make it a little easier.
Let the dust build up, and the ironing and do whatever makes you feel less tired. Sleep when and if you can and see your GP for some help to cope.
Then come back and tell us how he is doing its a marathon not a race looking after mm ers and patience is a virtue as there are long times between treatments and results.
Most important look after yourself and take some time out for rest if its possible. You cant care for him if your run down and worn out so take care.
Regards MIn

[MinParticipant]

It seems like your not getting the attention you need and perhaps you need someone to fight in your corner do you have a friend or one of your carers who could chase this for you Roz.
As a long shot why not ring the Samaritans and chat to them that is what they are there for and they might just be able to get you some help quicker.
Is there a hospice anywhere near you that you could call into? They are all very good and so geared up to helping people like yourself.
I think you should consider how would Michael feel, and I am sure[b] He[/b] would not want you to be miserable at Christmas time although we are all going to be feeling a lot different this year, We were married for 40 yrs and only one of those years was Peter not able to get home as he was in the Falklands and the children were at home then so I have no idea how I am going to be. But i am sure as he absolutly loved Christmas time he would not want me to sit and weep he would want me to have the biggest best Christmas tree just as he did as he was a child at heart. I will miss his OTT decorations most of all and going and buying him pressys.
I keep telling myself he was in so much pain and not having a good life towards the end that it would have been unfair to prolong his agony just because I did not want to be left. That alone is what gets me through the days and the long nights. And my cyber friends .
Love Min

[MinParticipant]

Thats just how I feel some days Dai ????!!!!

[MinParticipant]

i think your the one with the long curly hair and pants in sail!

[MinParticipant]

Mine is a current useful tip from the BBC Useful info for mm ers as I tried it and it worked. I know I dont have mm but I was very run down and it worked
Echinacea 'can prevent a cold'
CEA left for next one
Min

[MinParticipant]

Got to admit been trying to post some photos and It was me what deleted the thread as it just wont let me add photos no matter how hard I try and wanted to show of my el cheapo bargain solid oak worktops
Min

[MinParticipant]

Thanks Eve the finaly finished kitchen only been on it since August so pleased its done at last. Without your advice it woud have cost a lot more bought the lot on the internet
min

[MinParticipant]

I am very sorry for your loss David, and God only takes the best. I had a very much younger friend who's funeral I attended when Peter was having his 2nd transplant. It was sad to see her deteriorate over the months. There are no good cancers, but at least MM gives the patient time to know what is ahead and enjoy life to the full for a little longer than most cancers sufferers.
My advise is forget the bad and remember the good bits like her smile, and cheery laughter.
Love Min

[MinParticipant]

Wait a min (pun) where is the e out of EMN in Gastronomic Roz May have spelt it right but it aint right as it aint got an E in it!
Slapped wrist for getting it wrong and miss a turn for being naughty!!!!! Hee hee :-S
But My word is Microsoft leaving OFT
:Min:-P

[MinParticipant]

ATHLETIC something I am not,!
TIC for you
Min

[MinParticipant]

GERIENTOLOGIST From me
leaving IST
MIN

[MinParticipant]

Oh Dear Jo,
What a shame, don't we all wish that a long remission was the norm. As you say you have had a good length of time but its so disappointing to know your back on the medication treadmill, especially as Velcade has you tied to the hospital for administration.
But good luck and best wishes for the 2nd part of your journey
Love Min

[MinParticipant]

I have no knowledge of these three, Peter was on Dex and Revlamind and he did ok but he was extremely tired and had terrible trots with it.
But as you know by now everyone responds differently depending on what kind of MM they have.
i sincerely hope that Stephen responds well to his new programme of drugs and there are not too many side effects. The difficulties of Dex are well documented and I suggest you gird your loins and get a gum shield so you can grit your teeth without breaking them LOL
Love MIn

[MinParticipant]

Hi everyone,
Well I am home the holiday is just a memory a very pleasant one as it happens I am totally rejuvenated as I slept for sometimes 10hrs a night AND 2 hrs by the pool which is an indication of how tired I was after 2and a bit years of caring for Peter
Most of that time I was working too, until March when I left work to spend some quality time with whatever time he had left?.. Never imagining it was going to be such a short time before I would acquire the title widow..
I was very apprehensive about the holiday but it was not in anyway bad. My son making up for Peter in a wonderful way. I missed Peter of course and chatted to him every day weather in my head or out loud making the People sharing the space by the pool think I had totally lost the plot ! He never answers me back but then he never did so I was expecting the impossible.
I put the success of my holidays down to reading lots about of all things guardian Angels. A subject Angelina who we have not heard of for some time introduced me to.
No I have not lost my mind on the contrary I have a new sort of lease of life. The kitchen is finaly finished and I have to consider the hallway next. I have had workmen installing UPVC outside where painters normally maintain soffits and drain pipes
I have my friends on here to thank for keeping me sane after the shock of becoming a widow so soon and will be eternally grateful for your contributions
Thanks MIn

[MinParticipant]

Dear Bridget, chearfull as ever, I am so pleased your experience with bendamustine is proving to be working and that your coping with the side effects.
Its pioneers like yourself that are going to lead the way for the future of others with this bl***y disease,
I hope that you continue to make progress in the right direction, and that your able to remain cheerfull.
Injecting yourself too, my,you are going the extra mile.
Best wishes for the future on it hopefully this is the one to kick it into touch for you.
Love
Min

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