[MinParticipant]

Well done Bridget,
Hope it gets easier the more frequently you do it, I started doing it for peter then I did one bad one that hurt and he did it himself after that. Did they remember to give you a sharps box to put them in we had to ask for one!.
Hopefully you will be staying awake longer
Now. I have just learned some relaxation techniques and I am overdosing on sleep while trying it out its great just wish I had learnt them when peter was alive and I couldnt sleep. But I am sleeping for england Now Its brill
Love min

[MinParticipant]

Thanks Tina,
Peter died so suddently and unexpectedly there was no time for any final words as he and I imagined he would be comming home.
He said before he went into hospital that he had no intention of leaving yet but it wasnt to be.
That and having to agree to switch of the life support machine was what has made life so difficult.
I was not prepared for the emotional roller coaster that followed and did not eat for 3 weeks. We were in the middle of having a new kitchen fitted when he died and I could not bear the workmen in for weeks afterwards but I am back on track, and coping reasonably well apart from the dark long evenings which I always hated anyway.
Since I got here I have slept for England with 8 hours every night and several hours during the day by the pool it is heaven not to be as tired as I had become and I am fully refreshed.
I plan to go see the dubai fountains tonight and looking forward to it
Love Min

[MinParticipant]

Hi Tina
Glad you enjoyed the holiday, and very impressed with the windsurfing, good for you.
Now your back home I expect its just a memory, but was it difficult returning home alone??
That is the bit that bothers me, and just wondered how you coped.
Love
Min

[MinParticipant]

Nice one Gill just sipping my ORANGE juice while waiting for cool off sooo hot here but loving it.
Min

[MinParticipant]

A term we are all too familiar with
INTRAVENOUS
Ous for the next player and as I am scrolling like mad to get to the bottom of this page how about off topic no 3?
Min

[MinParticipant]

Hi roz
I can identify with much of what you say and whilst in the beginning I was not coping very well was give some tablets Duloxatine by my gp, they took a few weeks before I felt the benefit of them but they are certainly working wonderfully now. I got on my flight anticipating a bad time and it was really OK.
I am in Dubai spending the days on my own whilst Tony is at work and of course I miss not having Peter to bounce conversations off, but I still chat to him no replies of course.
But the tablets which I have to take for six months have made my life so much more bearable. There are no side effects other than the ability to get on with my life without breaking down frequently.
I realize you disabilities compound your problems but help in the form of little pills my crutches I call them are to be recommended.
Putting on a brave face for the world is so much easier, and the coping mechanism is now responding to the medication and I would definatly recommend you speak to your gp and get some help.
Min
PS the view from my bedroom window at Dubai marina

[MinParticipant]

Dear Eve
With regards to section 6 of your discussion. I have some personal experience of bmb and the time factor which I will relate if you don't mind for your future consultations. When peter had is 1st ever bmb to confirm his diagnosis the consultant took the sample at about 2pm. He explained to Peter that the results would take several days. (Reasonable)
At 7pm the same evening during visiting time peter was relating the above conversation to me from his hospital bed, when there was,knock at the door and the consultant was there to tell him/us that they were now in a position to confirm that they had discovered that he did indeed have myeloma. Why say 3 days or morei when the results were available within 5-6hrs
When he was unconscious in the ITU the same consultant took a bmb at 9am and by 12 noon they were able to come back with the result that his bm was overwhelmed with myeloma and plasma cells.
So it can be done if they want to. His consultant apparently had overall control of the haemotology labs who fell under his supervision, therefore he was in a positions sto insist on early results but then Birmingham university hospital had to issue the initial finding officially and that took weeks.
I suggest you get on your high horse and start gaining some respect by getting angry. My experience was the times I got angry I got a better service. Just towing the line and being compliant was not help full ifact it was a se one class service and age was in my opinion a definate factor throughout as I watched some v
ery young leukemia patients having every whim catered to. We often felt like second class citizens when young patients were around.
Min

[MinParticipant]

Mine is just what I have back home ….
MENAGERIE leaving RIE
Min in Dubai…

[MinParticipant]

So sorry to hear you news, the important thing now is your mum being comfortable off
all that medication which makes you feel I'll. And being with her family surrounded by people who love her and care for her.
You have a difficult time ahead, but enjoy this time you have left, relive some happier times and make some memories to treasure
Love Min

[MinParticipant]

Easy no thought required
Insurance
leaving nce for the next player
Min

[MinParticipant]

Hi Jean
looks like she is on holiday but I took her advice and bought one too from http://WWW.GAZOO.co.uk

hope this helps
Min

[MinParticipant]

Mine at this ungodly hour is handkerchief leaving. ief
Min

[MinParticipant]

Hi Gill I am off on Sunday30th, but getting excited /timid, spent an hour testing the suitcase and contents today.
I have to book in on line?. Thats a new one to me so should be interesting.
Looking forward to the sun, rest from walking the dogs, ( How is your Poopee) made any progress?)
I hate leaving my dogs in kennels but needs must.
I set my self a number of tasks that had to be done before I was allowed to pack my case, and completed them all today. Just remains to cut the grass one more time weather permitting and i will miss Haloween and Guy Fawkes. bliss.
And to top all that I had a lie in this morning which was a real bonus and a first.
Hope I can manage some of them on holiday!
Love Min

[MinParticipant]

mmm good one Gill, I think i will leave it as it is and go for
Confetti
leaving
TTI for the next player
Min

[MinParticipant]

TIRED
Time for bed
Minx

[Author]

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