Nice to see you at last Mavis, five loarge dogs in the countryside is not difficult as there are no leads and most of them are well behaved and non of them is under 7yrs old. Its mostly about letting them see who is in charge of the pack. In my cse that means my 7yr old yellow lab as she is on the ball.
It was rather funny as all the others are black and the amount of time I had to keep counting them to make sure they were all present and correct eludes me!
I have been thinking lately that its time i moved on from here, I absolutly needed my cyber friends when Peter died but as time goes on I realise there is not much I have in common with those of you who are fighting non stop to keep on going. Including those of you who are caring for someone you love.
My thoughts are constantly with you all and I feel for each and every one of you. MM is a way of life and there is no getting away from it.
I long for the days when Peter was going back and forward to the hospital and the joy of getting good results from time to time but in our case it was bad the majority of the time with so much effort going into bouying him and I up to get over the bad times.
He was dealt a bad hand and diagnosed really late into his illness and the results were never going to be good in his case.
If he had had the benefit of good consultants from the outset instead of useless people who treated him for non existant enlarged prostate for months and kidney problems that were not identified as being related to MM until it was too late???.. IF only is gone and so am I
I have loved being part of your community but its time for me to move on? I will read from time to time but I have found a wonderful group of very supportive Widows who make it there business to meet from time to time to discuss mutual things and enjoy life with others going thru the same feelings and thoughts so its
Goodnight from me and thanks for having me.
Love MIn xx
I am on Facebook if you want to keep in touch
Sorry for kidnapping your post but how is Slim these days Eve? did you ever get the holiday you both deserved?
I look at this site every day but in such a short time things are moving so fast that I can no longer keep up.
That is progress for mm but widows brain for me.
I notice that you still struggle to keep his weight up. Never mind about the sausages and bacon and eggs if he enjoys them to hell with the healthy diet.
Let him enjoy what does him good and he enjoys,
I have been going thru Peters personal ?stuff? and I kept finding packets of 10 cigerettes along with lighters.
Initialy I thought the sod, how stupid. Now I think. What a shame he enjoyed smoking and drinking and I never saw him do iether after he was diagnosed but so wish he had just enjoyed life even if it included his cigerettes and Bacardi and Coke.
I am now of the opinion that if I like it i will have it and sod the consequences. Hence the reason for not one but two glasses of wine tonight and i never touched it much before he died as I felt sorry for him not having any.
Life is for living Eve and let Slim live to the best of his ability, and if he wants sausages let him have them.
When he has to endure endless chemo and medication which makes him feel like sh*** there has to be some pleasures in life no matter how small!
Love MIn
Dear Dai
P3 or Not P3 that is the question!
I know its not easy but you need the P to be super concentrated so try and drink less so what you do produce is more toxic. so to speak. Then after 24 hrs you can go back to your normal x litres a day. forgot already what it should be.
Hope its how you want it when you do manage to produce but it must mean your a briliant weight lifter having to carry that much liquid to the health centre!!!!
I cant understand this at all if there is non in you P surely there is very little in you blood too. Are they sure you have relapsed.
Or are you one of those light chain people who doesnt show up in P?
Whtever I hope it works the way you want it to and I am sure someone will be able to tell you better than me.
luv Min
Last one tonight what a shame doesnt seem to have been on long?
I read War Horse last week and saw the film and can recommend both .
Min
David I have had my granddaughter staying with me for the past week, and we all know how full of germs these little ones are.
She had been coughing non stop in the night keeping me awake. She also has by way of explanation terrible exzma, so rubbing vick on her chest is out of the question. So tried this and it became 'Silent night
Rub copious quantities of vick on the soles of your feet and keep it covered with clean socks!
I know its bizare but hey try it and see
meanwhile go and see the dr and get some tablets
.Love min
ps tell us if it works
Thanks Dai.
I did a big 1st yesterday and went out to the police club to meet my old coleagues.
First time since I left to care for Peter 11 months ago. I felt terrified but got thru it and now waiting for the next hurdle what ever that is. The truth is I now know nothing will ever be as bad or difficult as saying goodbye to Peter.
I have a new life. In that old familiar term not one of my choosing but now I am here I have to get on with it. When I am in the mood.
The mood is not often with me but when I feel in the mood the world is my oyster. Just wish I was not so alone. The human spirit is amazing but without human contact its not so good.
I feel as if my life is in slow motion and I want to press the fast forward button if that makes sense.
Love Min
Bridget I love this series and have been too busy of late to see the past few weeks, but they are saved on Sky,
Cant wait for the weekend when the family go home and I get to catch up on Eastenders too.
Min xx
Ah Mavis,
Peter often used the expression cant take it with you and contstantly made sure there was nothing left to take LOL
HIs attitude was Whats the point of working for it if you cant enjoy it its not there look at it on the bank statements
I was never of the same opinion and was constantly saving for the rainy day.
These days I think …. The rainy days have arrived.
I want an i phone but cant decide if I want a new wardrobe instead. Decisions decision. Sorry to hear about your car, we had the motability one and it had to goback when Peter died; leaving me to decide to buy a new one… With my useless widows head on. Its like PMT and hormonal pregnancy with teenage stupididy all in one…. Lost count of the stupid decisions I have made of late, I feel like giving myself a slap! If Peter was here I would give him a slap too for leaving me like this.
Love MIn
Oh Dear Bridget, back on the band wagon again.
Dont worry today is a bad day, and bad news is a bitch but tommorow is a new day and brings a new challenge.
Once you have digested the results, you will pick yourself dust yourself off and start all over again as the song says. But guess you dont feel much like singing! Have a large one of what ever you fancy.
New day new challenges. Good luck my dear and fingers crossed for you.
Love Min x
HiGarry,
I wonder if your sister is on strong pain killers? As they can cause strange things in patients if they are too strong.
It goes without saying she must be suffering from anxiety too, is she on any anti depresants that are interacting badly with her myeloma drugs?
I suggest that you ring her consultant, tell him you wonder if you should be tested for her disease and then go on to ask him to clarify what you can do to help her, and what her treatment plan is.
Get her to buy one of those mini voice recorders to take with her to her consultations and then you all get to hear what has been said and there will be no confusion.
Why not ask for another opinion?
She should have signed a form at the outset of her treatment for all letters sent to her GP in relation to her treatment and how she is responding to treatement ask for copies of those letters to be sent to her, these will help to clarify what is going on.
Try and get someone to go with her in for the consultation, there is a myeloma nurse specialist and sometimes you can get a social worker to attend too.
Her current confusion is good reason to take her to her GP he may be able to shed more light on it. Make sure someone accompanies her as it sounds very much like she needs all the support she can get for the moment.
Speak to a macmillen nurse they are excelent at getting things done.
Hope it gets better and she starts to improve soon.
Min x
Bridget today I went sledging on a nearby hill wth two grandchildren and my 3dogs' and emma's 2dogs.
It was wonderful not too cold but I got my bum very wet when Made to sit on one of those tiny bum shaped boards!
Very memorable for me and the kids,particularly as my old old dog was the only one that wanted or could pull the sledge…happy day.
Minx
Made it with minutes to spare. Three dogs and me and beat the snow but the is now a coving of about 2 inches better be gone by the time I go home
About to get in the car and head off south to Daughters Hope I dont hit the snow on the way . My plan is to get there before it
Min
ok Chrissie
check your junk mail box have sent u a message
Min
