[RozParticipant]

You know what I haven't half missed you lot. I joined a widows site to relate to my feelings, but you beat them for your friendliness.
Tom keep fighting the fight and grinning away.
Shirls enjoy your puppy, if it wasn't for my disability I'd have one.
Dizzyliz thanks for your reply too.

Well the men today have made a real difference to the mess the others left behind, it won't be long till the front is done.

All the best to you all
Love you loads
Roz

[RozParticipant]

Hi only me
We have not met on here before. Anyway, Michael my husband went on velcade and then another drug. Velcade is a strong treatment and it never agreed with Michael but it does with others, so maybe it will work on your mum.
This disease is so individual that any response from one person is not always the same with another person.
Try and keep positive, try and get your mum to keep positive too. I know how hard that can be but just try.

Love and all the best
Roz

[RozParticipant]

Thanks Tom
Your smile and words always give me encouragement. In fact your smile is so infectious you cannot help but grin back.
Getting the garden started again today, the blokes who started it last week made such a mess! and they walked off the job after I questioned them about how they were digging round things. Anyway they have gone, the work will be done properly and eventually a ramp and table and chairs can be bought for friends to enjoy it with me.

Hope your fighting the fight
Love
Roz

[RozParticipant]

Thanks all

These messages mean a lot.
My daughter and grand-daughter have nothing to do with me since Michael died, that's why my pain is hard to bear, I've lost 3 not just one, we didn't even fall out.
Hope you all keep up the good work of fighting either this disease or enjoying remission when you get it.
Its hard coping alone, I lost 3 of my carers when Michael died, because I have to pay for them myself now,I got Michael's pension. I'd rather have him though! I've got a disabled kitchen, a shower chair, a cradle so I don't drop the kettle and a cradle around the bed to stop the bedding hurting my legs. These are all new, so I am able to cope at weekends without anyone but mum for town and my sister and brother-in-law who drop in and help.

Any way keep up the good fight one and all
Love to you all
Roz

[RozParticipant]

I'm so glad to hear of your sunshine:-)
Give Steve a pat on the back from me, I hope your days ahead continue shining brightly for along time yet.

All the best to you
Roz

[RozParticipant]

Thanks All,

Sorry for the 2nd message, I'm at a low period at the moment and just needed some where to go, I didn't leave enough time for replies so please accept my apologies.
All the best for you all
Roz

[RozParticipant]

Thanks for your reply

It means alot, at least I got 1 reply, by someone who remembers me.

All the best for the future
Love and many thanks
Roz

[RozParticipant]

Hi Angelina,

So sorry about your husband. I lost mine on Christmas Eve. I like your idea of a memory book, for you, your children and family. I know how things are moving for you having been in the same place has you are now, with your husbands condition, only I had to sign the do not form because Michael was confused with infections. I think if you start it now it will help you all get through the days that are coming. Because believe me when the time does come after your husband is not around, things get left, things get really really hard. So if you start it now you have a focus that will help you all when things get bad. Maybe your children can help you with odd bits, they will want to see it progress and not just the finished article.
This is what I think anyway, and I don't think you can upset any other family members because in a way you are showing them how much you care.
I'm in the middle of doing a memorial garden for Michael. I want a bench, a bird table and plants around. Michael used to watch and feed the birds as often as he could in his illness. This some how will keep him near me, I believe, it may sound daft, but I talk to him every day.
I wish you all the best for the book your producing for your family, and hope and pray you have longer than you imagine together with your husband.

All the best for your future.
Roz Bennett

[RozParticipant]

I'm so sorry Susan
I'm thinking of you and if you need to email me you can, having lost Michael last December, I know how you must be feeling.

Love and all the best at this time
Roz

[RozParticipant]

Hi Bridget

Just wanted to check everything is OK? Do you know everything is more at night. I know that by my thoughts that take over while laid in bed. Please don't think more of it until you have had it checked out. If you have had the results and I'm talking cra please forgive me. Just remember the Revlimid did work at the beginning and it has helped you along the way.
Please don't give up
Love to you
Roz

[RozParticipant]

Hi Bridget

Its been a very hard day. My daughter doesn't come since her dad has died so its like loosing 3 instead of 1.
Yes kitchen is nice now its all suitable for me. Still can be hard to use though, me oven and my stick.

Hope yours soon gets completed and the mess soon goes away. Do you know how to change my email on this site?

All the best to you

Roz

[RozParticipant]

Great news Shirley,

Thank god some good news comes from this rotten illness.

Good luck for the future and hope all stays well for a very long time.

Roz

[RozParticipant]

Hi

I'm so sorry for your families loss. No matter what questions you ask, or anger you feel it will never make it right. I lost my husband xmas eve so I know how hard this is to cope with.

Love and best wishes to you all

Roz

[RozParticipant]

Oh Dai I'm so sorry to hear your news, and you too David.
I wish things were different for you both, this illness drives you round the bend.
Both of you try and fight please. I know its a big thing but if you fight I'll fight for you at this end.:-/

Love to you all
Roz

[RozParticipant]

Hi Amanda

I live in Doncaster, so just being nosey wondered where about you lived?
Michael was under Doncaster at first but as time went on he went to Sheffield. No disrespect to your mums specialist but we got more help and understanding at Sheffield, so we stayed there.

I hope you get all the help and support you need so you don't move like we did.
All the best
Roz

[Author]

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