[RozParticipant]

Thanks

I'm finding it hard. I still cannot sleep, my carers don't know what to say so I send em home, that means I spend most of my time alone.
I think I've done everything you have to do when you loose a husband/wife/partner. My brotherinlaw has helped me alot where he can. There is lots to do I assure you, lots more than I thought.

Back to a more cheerful note. On behalf of Michael the money raised so far comes to £532.00 Just have to put it into bank to write a cheque or send via visa.

Please keep well
Roz

[RozParticipant]

Hi Min

You go for it girl. Not quite the same thing but I stopped all my voluntering groups, to spend more time with Michael.:-) So you do what you need to do. Enjoy life together, we used to enjoy sitting in the garden with the different birds.8-)
Slow down live your life instead of all the rushing here there and every where.:-S

All the best
Roz

[RozParticipant]

Thanks Donna

Sorry for your dad too. Things like this always happen around Christmas and it is a blo— shame.

Roz

[RozParticipant]

Hi Keith

So sorry your going through this. :'-( I wish you all the best in your next round.

Be thinking about you, so come on lad lets fight it:-)

All the best
Roz

[RozParticipant]

Hi Michelle
So glad your mum is still doing well. The Revlimid makes you tired. Michael was always falling asleep. one min he was talking then in the land of nod.

All the best
Roz

[RozParticipant]

Thanks Tom

Just got to get tonight over, then see what tomorrow brings. They have forcast snow again. Michael hated snow, but it snowed when he was dying and looks like its going to snow while they cremate him. Another way to make sure I never forget. Do you think its a hoeman.

I really need the hug tonight
Roz

[RozParticipant]

I'd like to say a big thank you to you all.

Even when I can't sleep I keep coming on here, cos you kinda keep me going.
So I can not imagine I will stop some how. I just need to know that you all keep well, now I've kinda met you. (In a fashion)

If I've anything to tell or add I'll do it.

Love to you all
Roz

[RozParticipant]

Hi Gill

I don't know what it is about this illness, but Michael wanted another dog. He talked none stop about it, even when he was confused he'd been taking our dog Benji out, so he said any way. Benji has been dead for around 10 years.
I put my foot down and said no due to both our conditions, but part of me wish I'd given this bit of happiness to him before he went.

Any way I hope you, Steven and your new pup have a long time together. They are company I admit.
Roz

[RozParticipant]

Hi Ron

Michael my husband had lots of blood transfusions. Anaemia was a part of his myeloma.
You will see that once your wife has had the blood, she will start to improve.
I have not known any drawbaks from transfusions, the opposite in fact. Your wife, or your self will know when this is needed again in time. With Michael I always knew before he did, because he always tried to pretend things were fine.

I wish both you and your wife all the best for the future. this site will help you along the way.
Love
Roz

[RozParticipant]

Thanks All

The service is Friday 7th January at 12.40pm.

I'll try to stay in contact, as long as I'm not intruding.
Now Michael has passed on I don't know where I belong any more.
I'll raise money for you as often as I can, but all my contacts stopped when Michael got worse. Its like finding my life again, without Michael and it is very very daunting.

I've just read this and it doesn't make sense so I hope you know what I'm trying to say.

Love to you all
Roz

[RozParticipant]

Thanks Gill

It's lovely. Enclosed is a verse I'm hoping to read at Michael's cremation. Got to get rid of sore throat first.

Roz

[RozParticipant]

Thanks All

I'm taking each day as it comes. Still walking in a daze, but trying to carry on.
Michael is now back in Doncaster.
Cremation at end of week, then stage 3 starts sorting papers and stuff out.

Thanks for keeping me sane

Roz

[RozParticipant]

Hi Gill

I hope you keep a calmer placid Stephen for quite a while. I know what they did to Michae, and how things were always my fault. The nurses always say, not everyone who takes it suffers this way but nearly everyone on this site takes it out on their partners when on Dex I believe.

Roz

[RozParticipant]

Hi

This was just a sml side effect that Michael got, but his rash was bad. It started on his neck then literally went all over his body. Michaels rash itched like mad when water touched it. So it was very hard for him to get washed. He never got this rash until the 2nd cycle, it took over a week to go. It started going when he had the 7 day break. It returned again when his cycle was re-started, but this time only minor and then went after 2-3 days.

Roz

[RozParticipant]

Hi Sue

Your husband may not get any other side effects than severe tiredness, but my husband did. It was because of the side effects that he had to get taken off revlimid. My husband has now died and the things I saw too severe so please remember MM is a disease that everyone reacts differently too, so what is good for your husband is not always good for any one else.

Roz

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