Hi sad to hear as all myeloma patients have such high desire to cope with the help available to live with this disease.
My condolences.

Hi Jataylor, I was diagnosed with myeloma since 2003 and has being coping well but experienced two relapses, nevertheless for about two years now i have been experiencing tinnitus in both ears for the pass two years and at times when its quiet its terrible.
I’ve had my hearing tested with good results, but was told the buzzing and whizzing i am…[Read more]

Hi Ellen hope you and your team are well, we met at one of the Birmingham info days and as usual your help and assurances are so well accepted.
Much appreciated.

Hi john some good news in the circumstances could be worse, hang on there buddy.

Hi Sharon just came across your post and so sad I haven’t seen it before, nevertheless I do hope you are well and has made good progress and is still hanging on and is not negative towards yourself, and I do remember you.
You must remember the family of myeloma patience is large and we all could write a book on our experience ,so take of…[Read more]

Hi Janmatthams just seen your request on travel insurance, I am in remission with my myeloma and was diagnosed in 2003 but is coping very well, however travel insurance for us is very expensive especially going abroad as the quotes I had for a month to USA was over £2.000 plus nevertheless was very pleased to have one at £523.15 from the date p…[Read more]

Hi Keith hang on in there buddy all of us knows mm is for us the on going daily challenge, but every day for us is wonderful,so keep your hopes going and i wish you and all mm patients the prospects of valued years to come.

Hi Keznmel thanks for your reply to my recent contact to the above RE:You are undoutable a remarkable person and obvously a soul partner to Melvin,its remarkable that what ever is said in response nothing will bring him back to when you first met,but trust us we are all with you guys,you are at a cross road that will take control of whatever your…[Read more]

Hi Kezmel,If its any good for you guys i was diagnosed with MM in 2003 but had a Relapse in 2012 so dont give in to what MM is throwing at you,the pains are and will be our night mares but always remember to tell yor doctors and nurses exactly what your issues are so they build an on going chart of how you are coping with your medication.
I am…[Read more]

Hi LizzyVV I did not have these issues your mum had,but i am Glad to see your mum has made some recovery from that freightening experience,and i am happy for the attention to details you have shown as with MM problems when there is someone to share the problems with is such a relief its worth its weight in gold (as the old saying goes)
Good luck…[Read more]

Hi Mavis thats excellent i am please for you,now go and have an holiday if possible and enjoy life.
Ps do you know what the winning numbers of the lottery is this week?

Hi Debbie as you are being supportive of your dad i am so pleased as Myeloma and any cancer patient will confirm you dont want to be there but dont think for one moment to sit down and worry.
I see your dad was being monitered but by who and what for,as delay in any treatment for illness can cause problems,and when you are diagnosed with an…[Read more]

Hi Eve so sorry i was unable to reply due to my computer having one of its time off (technical issues) from my memory my Paraprotien level was 4 then went to 8 in two months,but as i am so petrified on hospital visits remembering anything is just imposible so this information is the best of my recollection.Sorry i cant be more helpful and hope you…[Read more]

[b]Hi Sharon M,sorry i was unable to reply sooner due my computer having a long holiday (Technical problems)but its going well now.
Thanks for your good wishes as i do the same to you and all the others with this illness,i remember meeting you at the Bham Info day and i am glad i attended that meeting because since i have made some effort in…[Read more]

Hi i see swollen feet is common as i had this in a bad way but now seems to be going slowlely and this was during my medication with steroid and my virtribrae issues,but i was prescribed water tablets that did not seem effective and there was not much help coming from my GP either,but gradually they seems to be getting better.
I notice some are…[Read more]

Hi Eve,thank you for your letter RE Relapse MM.From your observations i see you are seeking some information on medication and the cause of Relapse.
And as one who is not medically trained and do not want to mislead or give the wrong information from the outset i will inform you to the best of my knowledge and memory and if there is something you…[Read more]