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Hi sad to hear as all myeloma patients have such high desire to cope with the help available to live with this disease.
My condolences.

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Hi Jataylor, I was diagnosed with myeloma since 2003 and has being coping well but experienced two relapses, nevertheless for about two years now i have been experiencing tinnitus in both ears for the pass two years and at times when its quiet its terrible.
I’ve had my hearing tested with good results, but was told the buzzing and whizzing i am experiencing was not curable so hence i am trying live with it,but its a nightmare.
Let me know if yours is the same and you are able to get some help.

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Hi Ellen hope you and your team are well, we met at one of the Birmingham info days and as usual your help and assurances are so well accepted.
Much appreciated.

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Hi john some good news in the circumstances could be worse, hang on there buddy.

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Hi Sharon just came across your post and so sad I haven’t seen it before, nevertheless I do hope you are well and has made good progress and is still hanging on and is not negative towards yourself, and I do remember you.
You must remember the family of myeloma patience is large and we all could write a book on our experience ,so take of yourself.

PS just thought I check the forum and saw your post.

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Hi Janmatthams just seen your request on travel insurance, I am in remission with my myeloma and was diagnosed in 2003 but is coping very well, however travel insurance for us is very expensive especially going abroad as the quotes I had for a month to USA was over £2.000 plus nevertheless was very pleased to have one at £523.15 from the date paid for the cover till I return.
If this is useful for your insurance cover please let me know as all information is available.
Wink.

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Hi Keith hang on in there buddy all of us knows mm is for us the on going daily challenge, but every day for us is wonderful,so keep your hopes going and i wish you and all mm patients the prospects of valued years to come.

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Hi Keznmel thanks for your reply to my recent contact to the above RE:You are undoutable a remarkable person and obvously a soul partner to Melvin,its remarkable that what ever is said in response nothing will bring him back to when you first met,but trust us we are all with you guys,you are at a cross road that will take control of whatever your plans and thoughts can cope with,and will need help to cope with the developments as they occur.
You seems such a brave and courageous person but I had tears in my heart for you guys,and dont forget as these letters has proven there are some feelings you can express because MM patience and spouces has some issues that are not commonly familar with the general public as i never heard of Myeloma until i was diagnosoed with it.
I would if possible love to know where your spouse or family is from as if he is from the West Indies,because when i was there we were not familier with this cancer.
As you said he is strugglng to accept these changes,i can uderstand because he is also a man and sometimes we strugle to accept changes especially when you have been very active,i am at present having difficulties with swollen feet and legs due to my recent Relapse,could you say what caused his walking and standing problems,and thanks for your information you provided above,very grateful.
I am and is sure everyone is wishing you and Melvin nothing but the very best for some recovery however small,so take care and remember you are at this time the sourse of energy he is looking towards and may even shouts at times but you will be rewarded when you manages what you can cope with.
Take care.

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Hi Kezmel,If its any good for you guys i was diagnosed with MM in 2003 but had a Relapse in 2012 so dont give in to what MM is throwing at you,the pains are and will be our night mares but always remember to tell yor doctors and nurses exactly what your issues are so they build an on going chart of how you are coping with your medication.
I am also taking Gabapentin but mine is 300mg one three times daily,due to the Relapse that caused swollen feet and legs with neck/back pains and so far after over a month on these tablets there has been some slow but noticable improvements but obviously Melvin has other issues ,I pray the results are favourable and does not require aditional medication.
Take care.

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Hi LizzyVV I did not have these issues your mum had,but i am Glad to see your mum has made some recovery from that freightening experience,and i am happy for the attention to details you have shown as with MM problems when there is someone to share the problems with is such a relief its worth its weight in gold (as the old saying goes)
Good luck with her treatments.

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Hi Mavis thats excellent i am please for you,now go and have an holiday if possible and enjoy life.
Ps do you know what the winning numbers of the lottery is this week?

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Hi Debbie as you are being supportive of your dad i am so pleased as Myeloma and any cancer patient will confirm you dont want to be there but dont think for one moment to sit down and worry.
I see your dad was being monitered but by who and what for,as delay in any treatment for illness can cause problems,and when you are diagnosed with an illness your brains does not function in normality so you ask the questions and get the answers but nothing sticks so i am agreement with you about the questions to ask. You will need with your dad to discuss is health and capability with driving and remember not being capable to drive will have some effect on his car insurance should he become involved in an accident,and should inform DVLA on medical advice if he is finding driving is becoming difficult(his GP).
If he has enough time before treatment go for an holiday but far away to rid his mind of what is ahead due to while having treatmentis so taxing on the body and travelling would be the last thing to do unless or other wise advise by his doctor.
Take care and all the best to you both.
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Hi Eve so sorry i was unable to reply due to my computer having one of its time off (technical issues) from my memory my Paraprotien level was 4 then went to 8 in two months,but as i am so petrified on hospital visits remembering anything is just imposible so this information is the best of my recollection.Sorry i cant be more helpful and hope you are coping.
Take care.
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[b]Hi Sharon M,sorry i was unable to reply sooner due my computer having a long holiday (Technical problems)but its going well now.
Thanks for your good wishes as i do the same to you and all the others with this illness,i remember meeting you at the Bham Info day and i am glad i attended that meeting because since i have made some effort in doing some reading on this MM,dont be negetive on yourself always think posetive and if you can afford it, have a cruise or a good break from home and try enjoy what you do to keep your mind always active.
I notice you had some traumatic experience after Chemo,thats one side effect along with pains because our bodies can take so much,hence after my relapse i had Velcade that seems to have worked well but this medication was discussed at length with my doctor as my Paraprotien level had gone from 4 to 8 so at the moment i am keeping everything cross so as i wont need Chemo because of the previous experience.
I note you are having head aches when walking please let let your doctor know about this and be careful if you are driving,i am hoping you can talk to some one close to share some anxiety that we MM patient have at times.
So nice hearing from you,take care and remember to keep your mind active.
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Hi i see swollen feet is common as i had this in a bad way but now seems to be going slowlely and this was during my medication with steroid and my virtribrae issues,but i was prescribed water tablets that did not seem effective and there was not much help coming from my GP either,but gradually they seems to be getting better.
I notice some are recomending coco butter so i may try this for my legs as they are swollen at the knees.
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