[annlynnParticipant]

very little one can say about your post my heart breaks for you . A.long time ago a consultant told me to take my dad home and just love him i knew we had come to the end of a long road and there was nothing else. it broke my heart and still does to thinkof it. make the most of life your dad might suprise. you without treatment for a long while yet. xxx best wishes pet and remember. he will always be your hero. annlynne.

[annlynnParticipant]

hy jan. hope its ok to ask how do you feel approaching a second sct i only had my first one august 2014 i have got stem cells harvested for another one if thats the ro a d i have to go i just cant imagine doing all again its like having that first child and forgeting how hard it was then we hen. your pregnant again. you start to remember how difficult it was xxxx

[annlynnParticipant]

please dont say that peter !!im sure therel be something else th a t theyll pul out of the bag. youve done so well. twelve years is fantastic please keep your positive head. on best wishes annlynnxx

[annlynnParticipant]

sorry cant give much in this post. this was discussed when i was diagnosed at 59. not sure if 60 is the. cutt off time ? i only had one btother that could have possibly been a donnor but i looked. at risks and stuck with stem cell transplant. ive been in re.mision eighteen month but as they say the dissision is entirely. yours good luck with watever you deside. xx annlynn

[annlynnParticipant]

morning. helen and denise. it is heartwarming to hear five years and six years mentioned in your post it gives us hope !!!so thank yoh ladies i follow helens posts and a m inspired by her continued strengh. good luck with the ne t five years lets all keep positve. xxannlynne

[annlynnParticipant]

yes Jean playa blanca flyi g from manchester coudnt get flights from newcastle for ten days so driving down to manchester on the sat for the nine o clock morning flight staying in the rubicon palace. xx really looking forward to. it. Ann

[annlynnParticipant]

i agree with you jean i said exactly the same to Margaret looking forward is the only way to cope i think .. Were going to lanzarote on 6 march also were you staying ??? annlynne. im pleased to hear your husband is still in remmission

[annlynnParticipant]

staysure. and insurandgo. are two that come to mind. x

[annlynnParticipant]

hello. margaret. i have myeloma. diagnosed in january 2014 had six month cdt treatment. got pp down BOOKED A HOLIDAY had a sct august 2014 hospital for seventeen days worked hard at getting well felt canny. by november. BOOKED A HOLIDAY. your getting the drift here. yes we need something to look forward to. little goals. little treats seventeen months now in remmision my protiens are rising slowley. but im aware more treatment will be on the cards eventually. but im. booked now for lanzarote. march 6th. insurance. yes you. can!!!! my tsb insurance a r e aware of my diagnoses im insured with them. and lots of people on here book with otyer companys. but im sure someone will pop up and name them for you you may pay a wee bit more but shop about and youlk get something. get booking. great fun on these windy cold days. Andy on this forum tels us every days a gift and its very true. good luck hope you get something nice then if youre starting more treatment youve got a good memory behind you. xx. best wishes. Ann Lynne.

[annlynnParticipant]

just to let you know sarah i have rheumatoid arthritis and had two knee replacements at aged 52. but while i was having my treatment and my sct my arthritis. was almost dormNt i had to stop all my arthritic pain relief i was on quite a bit !!! the consultant explained the chemo was so strong it suppressed the arthritis as well as what it was doing to the myeloma. i agree with what you say about just wanting to get on with it the qui c ker you start the. better it will be. I. Like you have three grandchildren a great reason. to kick myeloma in to touch.🍀🍀🍀 good luck to you. keep us posted. xxx annlynne

[annlynnParticipant]

oh. dear thats not great !! why arent you on treatment ? and how long were you in remission before its come back ? sorry that seems a lot of ????but i dont understand why your not receiving treatment. I would imagine the way your feeling is due to t he disapointment the heartache that this bloody disease has come back. your not alone. its blooming hard. Thinking of you. ann

[annlynnParticipant]

ah. millie. a story like so many of us take heart that lots of us have done the chemo and the sct. and lots of us are copping ok. obviously some better than others your positive attitude will get you a long long way take care and some comfort that treatments work very well for a lot of patient s. hope your one of them. good luck with it all. . ann

[annlynnParticipant]

morning love. welcome … The rollercoaster is the best way to describe the journey. the best advice i can give you is go with it !!!on your tired days rest on your wide awake nights have something to do my son would come home on a sat night after being out with friends sometimes one in the morning and id be making a bannana loaf or a tea loaf. haha. put it this way the cake tin was always full !! my husband would get up for work to a living room ccompletly rearanged. and as wife crawling in to her bed shatered. just dont fight it there is no point if your not feeling energetic then get up watch a film xx. the other side is the emotions. i would want to shop and be high as a kite DANGEROUS. THEN DEPTH OF DESPARE. Weepy and. sad. but youl get through it. good luck. come on the sight. for support any time day or night ussually someone up. xx. ann quinnn

[annlynnParticipant]

yea sarah im. in a little villiage twelve mile out of newcastle a very snowy villiage today. still im watching rubbish telly in the warm so not all bad . trouble with days like this i get the urge to internet shop. ..HOPE your hospital appointment went ok. itll be a wait and see couple of weeks maybe you look afteryouself and keep us posted on your progress. xx ann

[annlynnParticipant]

DO. I FEEL. NORMAL !!! now thats a question sarah. ifeel well i do most of tge things i did before my consultants say my cup half full rather than half empty helps. positive attitude goes a long way. got no intention. of. lying down and dying. for a while i hope. but you must all be aware infection is our enemy we need to take care of our selves if. were tired rest and not tottally fight it go with. what the body says but i read posts. from. people who have been on this journey longer than. me. and i know there back on treatment when remmision. comes to a end. there is lots in the pipeline and ive geot stem cells frozen in case i need another transplant. keep well. and warm. im snowed in today xx

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