[annlynnParticipant]

hy again. sarah. one more thing i meant to say. dont look to far down the treatment line do it in segments hopefully. your consultants will get you on a course of treatment to reduce your paraprotien levels make that your first mission then look to whats next most people on this forum have been were you are now !!!!i had six month treatment. planned a holiday had a stem cell transplant. planned a holiday. life is and will not be over it will be diffrent but not over rebecca on this forum. does always say that she plans little things on vvery good. days and that might just be meeting a friend for a coffee or going for a bit. excersize. we all have copping mechanism. so try to keep positive and take very little notice of the prognosis of this disease. the figures are very old and things are greatly improved now. take care good luck xxx ann

[annlynnParticipant]

hello sarah. wellcome to the website none of us really want to be on but are my name is Ann diagnosed jan 2014 symptoms masked a bit by my ruemotoid arthritis back ache which was broken vertebras l treatment started after bone marrow byopsie and mri scan six months of chemo which was three diffrent types of drugs taken at home in thre weekly cycles then a stem cell transplant in the freeman hospital newcastle it is hard but i felt worth it i have been in remission for sixteen months. and yes like yourself the shock was awfull my family. were devestated but weve come through. we take each day as it comes and we are doing well. you will get through this xxx

[annlynnParticipant]

good luck peter with new treatment hope it sorts you out for the new year happy new year to one and all thinking. of all who are newly diagnosed those who are approaching sct and those of us enjoying a break from it all best wishes. xxx ann lynne

[annlynnParticipant]

agree
with. rebecca as always. i used to wish after my sct that she lived down the road to me she helped me just little things but we must rememmber. were human and we will have tough down days then these qoutes come into there own natural images was my wig shop they were great. you do get a voucher from your chemo nurse for your first one and theres no restriction on what you choose price wise. merry xmas to you all. xx annlynne

[annlynnParticipant]

just a quick note on the hair thing first course of treatment. kept my hair. not as good condition as, normakl. but ok only lost hair during stem cell trancplant. xxx then. wore lots of nice wigs. blonde one day. brown. the. next. xxx

[annlynnParticipant]

ps. that diet is strict mind does it include food. haha xxx

[annlynnParticipant]

hya katy i started my mm journey on the 4th january 2014 with the CDT treatment six months of that followed by a stem cell transplant in august 2014. im now in what seems to be called partial remmision feeling fine the treatment is gruelling but with a good close family behind you youl be fine i was 59 on diagnoses and. have lived very much life to the full around treatments. i am not saying for one minute its easy but a regular poster on here always said it is doeable and it is. keep chin up and fight the fight. best wishes. annlynne

[annlynnParticipant]

Say yBenidorm here i come starting new treatment if that is the consultant s plan. wont hurt if it starts three days later !!!! and the fun you have will be a lovely memory on the rough days that might follow ,. Enjoy xmas. and. a girly weekend deal. with the rest afterwards then give it your all. good. luck. annlynn xxx

[annlynnParticipant]

thats what makes us lucky !!!!i always felt so lucky to have aloving family there for me on bad days and good days and the next few weeks you will depend on them when your weak and tired but youl hopefully recover slowly but stedally. i hope so im. sixteen month remission so. goog. luck enjoy. xmas. make the most of every day xxx

[annlynnParticipant]

Morning val. dont know much about the puppy thing i have heard reservations from. some hospital staff on transplant. ward. mayvbe there extra warry because of infection. best to speak to peters .doctors but like you say its eight weeks away hell be picking up considerably by then. xxx. annlynne

[annlynnParticipant]

well welcome to the site no one really wants to be part of but unfortunately we are . Not much i can say otger than you will come in to contact here with people who. can relate to you all our situations are diffrent. but the same if you see what i mean. we often have diffrent beginning but with the same outcome. MM. i was diagnosed through very bad back pain that was put down to kidney infection a nd all sorts of things untilb broken vertabras were found on closser investigation. six. months. of. chemo then sct diagnosed jan 2014 straight after xmas transplant auggust in remmision now for 16 months feeling. ok most of the time but know its always hovering but. results are improving. constantly with new treatments. so be positive. keep strong. an c.f. if your not sure ask on here there a great bunch someone will know the answer. best wishes. annlynne

[annlynnParticipant]

eve.. your a insperation. traveling on your own must take guts . your daughters must be proud of

you. and slim. certainly would be .. helen. yes please keep posting when you get the time its nice to follow progres keep well and have a lovely xmas x x ann quinn

[annlynnParticipant]

cant really read what your posting sorry. ann

[annlynnParticipant]

ha ha. you lady have just brightened up a dull north east morning but. can we find the man they fit !!!! pleased to hear your doing ok and enjoying the sun were of to tenerife on sunday chasing some of that vitamin D. professor jackson. tells us we need . I totally agree with what you said all the people like helen posting and andy keep me hopefull for the future. thanks eve. xxx ann

[annlynnParticipant]

laura .. my heart goes out to you yes i was told there is a risk to every sct but to hear it told in detail to a real person that is a shock. no words can explain how sad i feel for you xxx ann

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