Hello joverson,
I was diagnosed in June 2012 and had my SCT May 2013 .I was on the Myeloma X1 clinical trial and received Lenalidomide maintenance
Until March 21.
September 21 I began DVD treatment .The results showed it was working however I was feeling bad .In December 21 my consultant recommended I have a break from treatment for heart and lung tests .I was off treatment for 5 weeks and tests showed my heart and lungs had not been damaged and I felt back to normal .When I resumed treatment there was none of the previous breathing problems.
In June this year I stopped Daratumumab treatment because I had relapsed.
I have now started a new treatment .
I did have bad experience Dbd but stopping a few weeks resolved it .
Obviously the DVd treatment didn’t work as long for me as others .I thought it would because my treatment had worked so well first time and given me a long remission.
I realize no every Myeloma patient is different .
I go to St James in Leeds and am so pleased with the treatment advice I have received since 2012 from the many Myeloma consultants there . My advice would be to listen to the consultants if you are at a centre like me if you are at a smaller hospital and maybe there is only 1 specialist ask for a 2nd opinion to help you make your decision.
Hope this is of some help .
Best of luck
Chris .