[claireroe50Participant]

Hi all mine only lasted 5month pp came up week a was suppose to be having my allo transplant but a suppose its as well it showed then & not week i started the treatment. Im now waiting for results ofbone marrow biopsy and wil take from there see whats suggested eh .there is lots of different drugs and trials i know its wether we can get on one. At beginning of my journey i had allopurinol aciclivor amd thilodamide in with my ctd but had terrible rash all over that ended up peeling so stopped the 3drugs even though it was thought to be the allopurinol. So hopefully if needed to try the thilodamide they would give it a go. Take care all c x

[claireroe50Participant]

Hi mick i asked about mini allo but would be full one
But did say that would prob find the treatment not as hard as auto which is what scott said but the recovery period much longer. But haven.t gone through any graphs i took it that would be in my best interest that had it and in long term for the best but a do worry as have said before.as you say its such a difficult and individual decision isnt it. but reading peoples stories helps us hopefully.claire

[claireroe50Participant]

Hi mick .hope your ok .yeh read the comments it is a scary thought the allo and i think your right it is good to hear peoples experiences ..because my pp have started to go up only 5month from 1st transplant they now watch amd monitor levels and then treat.then the plan is auto and then allo quite quickly after auto providing everything goes to plan.hope you have clearer picture for when you go back.hope you keep recovering well take care claire

[claireroe50Participant]

Hi mick yeh not too bad hopefully find out more next week.just been up and down at minute think knocked the stuffing out of me . What treatment did you have before your last transplant?. Hope you continue to recover well..ypur right though good to talk .claire x

[claireroe50Participant]

Really i live down the road in h.pool. yeh am a born worrier about anything cant help it lol.. doing my best though, been fit and healthy just bit achey at minute.i know really good shes a match.you got your own room mind a suppose more private if you had side effects which i did yeh ive nipped in maggies before to have a look about.i have a good family n lots of friends but sometimes think we need to speak to people who are going through the same and i know were all individual cases but helps to hear posotive stories x take care

[claireroe50Participant]

Hi mick thanx for reply.im going back to freeman in 2weeks so il see what they say.said in future if get it down another is possible and stil even maybe in future an allo as my sister was match.its just in my head all the time at minute the feeling achey and whats next .waiting for next blood tests .getting me down a bit which has,nt been like me through most of this till now .and i think sheer disappointment but onwards and upwards eh. Hope you carry on revovering well from transplant take care claire x

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