[dwthancockParticipant]

You are an inspiration!

The hardest part is always getting started. I’ve done routines before and felt much better for it but never been able to make it a long term habit. Myeloma, pain and treatment all have an impact and although I’m still relatively young I’m not 21 anymore either. I need to be a bit more accepting of that but I’ve no real excuse of not at least doing a bit more gentle exercise. Every little helps.

[dwthancockParticipant]

Thanks for the suggestion. I’ve always done the minimal of exercise and it’s even harder now with pain and fatigue. But I will push through as much as possible. Cycling is about the only exercise I really enjoy and hopefully the brighter weather will help get me out a bit more. I’ll try to broaden my routine as well.

How long did it take for your fatigue to improve? Do you still feel it or does it creep up despite your exercising?

[dwthancockParticipant]

Hi Rabbit

Good to hear from you. Hope you’re keeping well.

In so many ways my consultant is superb which is why I’ve stayed with them this far but my main issues are the pain and fatigue.

I’ve just come down to 5mg of lenalidamide from 10mg. I was off it altogether though for about 6 months from Aug till Feb. I’m also on denosamab and daratunamab injections once a month.

The fatigue is definitely getting worse. It used to be that I’d need a day every other week but now it’s a whole day every 4-5 days and very often an afternoon nap in between. I feel the tiredness but there is part of me that feels I could push through it at times rather than give in so easily.

I’ll kick up more if a fuss about the pain.

[dwthancockParticipant]

Bout ye Graham! Thanks very much. Here’s hoping I can get back for some Harp and Tayto

[Author]

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