[gina45Participant]

Hi again Ted, happy belated birthday, hope you had a lovely day. I also hope you have many more birthdays free of treatment. Hope you are ok.Please keep in touch to let us know how you are doing
Take care
Gina xx

[gina45Participant]

Hi Eve i can only go off my mum, although she isnt on any treatment at the moment because of fluid on her lung. Mum only had one week of velcade and her proteins went down 10%. The only side effect she felt was fatigue. She went in and had fluid put in and then the vecade. The reason they put of mums velcade is because her kidney function had gone up from 150 to 157. So its swings and roundabouts really. I hope that you and slim are ok and the treatment does him good, please keep in touch and let us know.
Gina xx

[gina45Participant]

Hi Keith,
glad to hear that you are home again, hope you are feeling well in yourself.
That sea air will do you the world of good.
You take care
Gina xx

[gina45Participant]

Thank you Jill, its the not knowing why she has got this fluid in her lungs, but hopefully the results will come through soon.
Thank you for that it puts my mind at rest a bit. lets hope its the same for mum fingers crossed.
Gina xx

[gina45Participant]

Dai, you keep your chin up. you always keep us sane on here. you are entitled to down days. I hope you start to feel better soon and take care of yourself Gina xx

[gina45Participant]

Hello again Gaye, you keep smiling lady, i hope that you are getting looked after well and i hope the sun shines everyday on that lovely hospice garden just for you xxxx

[gina45Participant]

Thank you Carol, believe it or not they are 6 of us brothers and sisters. Me and my sister are the main carers, take mum to appointments, do shopping, check mum is ok and on the right medication,ring round everywhere and tell people off when need be. We go for our day with mum to her house on saturday and have a good natter some dinner and a brew. Thats our day, today it will be at the hospital. My brothers are not living near home so keep in touch to see how things are, one brother lives with mum and he helps in the house etc. My mum is the same she worries that she is dependent on us and doesnt want us to be running around after her(how she puts it) But we love our mum and have told her we dont mind at all doing anything for her( she has done it for us all our lives, we lost our dad in 1989 age 52 to cancer) So mum is probably like you The carers worry about their mum, dad ,husband wife etc, and the mm sufferer worry about them. Swings and roundabouts as they say.
Thank you again for your reply and advice it is greatly appreciated
Gina xxxx

[gina45Participant]

hello Ted and welcome to the site. My mum is the myeloma sufferer in our family.All i can say is that you will get lots of advice and support of the lovely people on this site i feel that i can come on here and when i need to ask anything there is always someone there with an answer or a kind word. I am sorry that you have myeloma but here is to many more symptom free years
Gina xx

[gina45Participant]

Thank you all again,
Mum has now had the chest drain and they have sent the sample off so hopefully we will soon have our results. She is happier now that she has had it done and i know we have a long way ahead of us .But i am thinking positive again and hoping things will go well xx

[gina45Participant]

Gaye, i am always inspired by the people on here that are going through this horrendous disease. I wish that i could talk you into giving it more time but then again i am not going through it, my mum is and she has more or less said the same.
I will be thinking of you and i hope that you are comfortable and well looked after.
I want to thank you for the support and advice that you have given me. and i am giving you all my love and thoughts
All my love Gina xxxx

[gina45Participant]

Hi Pam i am so sorry to hear your dad has passed away , i am glad that he felt no pain, but will be thinking of you at this sad time
Gina xxxx

[gina45Participant]

Hi Susannah, im sorry Michael is in hospital, my mum ended up in there weeks back with an infection. Hopefully they will be able to sort it out. At least he is in safe hands.Please let us know how he is doing and keep us updated, i will be thinking of you both
Take care
Gina xx

[gina45Participant]

We now know what the breathlessness is,mum has fluid on one of her lungs.she is in hospital on the mau, they are doing an injection to get a sample of the fluid to see what it is and also an ultrasound of her chest. So its now a waiting game again.
Thank you for your support it is most appreciated
Gina xx

[gina45Participant]

What a nightmare for you Dai, i do remember the stockings and injections after having an operation myself quite a few years ago. Its not a nice thing.
I am glad that they know what it is and are sorting it.
I do hope that you feel better in yourself soon.
You take care
Gina xx

[gina45Participant]

Hi Jill,
We spoke to the gp about them and he asked us to half the dose,when mum went to hospital on monday her blood pressure was ok so you may be right. The good news as they told is her protiens have gone down from 107 to 97 so the velcade is working.
The bad news is that mum only had 2 days treatment but when we went on monday they said she would have to take a break as her kidney function had risen from 150 to 157(not to sure how all that works) they said they cant let it go higher, they are also worried that her heart isnt as strong as they thought she was borderline on the ecg and echo(again not sure ) So we are to go back on monday and they will do bloods again to see if she can have more treatment.If not im not sure either lower dose or other options,so we will have to see.
Had a cry on monday as mum looks frail and ill but back to being positive now and keeping our fingers crossed everything goes well.
Thank you all again for your advice and support it is most appreciated at this very trying time
Gina xx

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