[hendaz68Participant]

Hi Everyone
Thanks again for your kind messages again we love them all.
My wife is definitely on the mend she is totally back into the swing of things which I’m so pleased about.
My final chemo is on Friday it’s gone so quick 6 cycles done 🤜🤛.
I went to see my new doctor on Monday who will be doing the SCT explained everything to us so just waiting for a date for all things to start.
I’ve got to go for a heart echo cardiogram & ECG tomorrow morning I think to see if my heart is ok for the procedure?
I will keep you all updated & thanks again for everything.
Take care
Peter
X

[hendaz68Participant]

Thank you to everyone that has commented much appreciated.
Sorry it’s been a bit of a funny couple of weeks.
I will reply to you all I promise.
My wife was given a tablet to help with her anxiety off her doctor last week which is 10mg to take each day & that has been a god send she is nearly back to her normal self & has even went back to work this week only doing a few clients as she is mobile hairdresser. She was so nervous at going out to do hair but I think she is back in the swing of things 🙏.
She has also been on the phone with a one to one which has helped her she has another call next week, do it’s all looking good for Mrs H.
I’m at chemotherapy treatment tomorrow 3 to go then I find out on Monday when my stem cell treatment will start so I will keep you all updated.
Thanks again for all your kind messages we absolutely love you all to bits.
Take care
Peter & Andrea
Xxx

[hendaz68Participant]

Hiya Lili
Thanks again much appreciated.
How weird is that my wife had the full MOT last week also & everything came back with all good results so that’s great to know as well. Hopefully the doctor can sort her out out 🙏 I think the most annoying thing is her stomach is constantly churning & feeling sick 🥺.
How are you now are you on the mend? I hope so 🙏 also hope your husband is ok as well as you say it’s a daunting time for everyone who gets the diagnosis & you don’t know what is around the corner.
I must admit I totally forgot about the forum I didn’t want to get bogged down with information that I didn’t need to know or worry about but I can see why it’s important for everyone for the information to be given by yourself & others.
Take care & positivity all the way 🤜🤛
Peter

[hendaz68Participant]

Hi Lili
Thank you for your help much appreciated, this is totally alien for the pair of us I am coping with my diagnosis which I am coming up to my 6th cycle next month 🤜🤛 but all of a sudden something has triggered off this anxiety with my wife ☹️
She has an appointment with the doctor tomorrow hopefully she can get more answers then?

Like I say we are both happy go lucky people then all of a sudden our world has been turned on its head, I’ve never thought about my condition if I’m honest but I think my wife has been looking to much into it?
I hope your husband is ok? Hope you are ok as well.
Take care.
Peter

[hendaz68Participant]

Hi Lili

Thank you for replying much appreciated.
How strange it happened about the same as me as well haha. I am still taking Thalidomide tablets. My doctor told me to stop taking a certain tablet (name I can’t remember)!the rash disappeared & has since put me on some more higher strength tablets.
I will get back to you with the names as I’m clueless haha.
Hope your husband is doing well.
Take care the pair of you.
Peter

[hendaz68Participant]

Hi Mulberry

Thanks for your reply much appreciated 😊
Wow I didn’t realise that more Myeloma patients have Coeliac disease as well.
Yeah I was just getting into my gluten free routine when my Myeloma diagnosis reared its ugly head lol.
Managing both fine if I’m honest apart from no sleep whilst on the chemo cycles, but I can cope with that.
The thing I can’t cope with is gluten free bread its awful 🤢.
Hope you are ok as well.
Thanks again.
Peter

[hendaz68Participant]

Hi Paula.

Thank you for replying I’m new to all of this but appreciate all comments & info I’m not on Facebook unfortunately ☹️

I’m going in for my 6th Chemo treatment today 1st week of cycle 2. I’ve not been sleeping very good since my chemo on Tuesday I guess it’s down to the steroids & meds?

Thank you for taking time out & replying I promise to try & keep up to date with this forum 😁

Take care

Peter

[hendaz68Participant]

Hi Geoff
Thanks for your reply much appreciated.
Yeah we will all get through this I’m sure especially with Positivity & friendship we can do this.

My 2nd cycle starts 14th & final chemo for the year Christmas Eve.
So far I’ve been ok it’s early days of course the steroids I think have been playing havoc with my sleep but apart from that I’m fine.

Thanks again for your reply & good luck with your treatment 💪💪

We’ve got this.

Peter

[hendaz68Participant]

Good evening everyone.
I am new to the Myeloma gang.
I was diagnosed with Myeloma on 8th November following being diagnosed with coeliac disease (gluten free for life) 🤢 & anaemia in July all of this year. Since my coeliac diagnosis I was still feeling tired & lethargic & my blood levels were dropping. So the consultant sent me to see a haemotologist who carried out further tests & bone marrow sample & the rest is history. I’ve just completed my 1st VTD cycle & touch wood apart from losing sleep whilst having the chemo (steroids) I think waking me up at 3am 🥴.
Hopefully I can make friends along the way & share my story with you all.
My 2nd cycle starts 14th December to 24th December so fingers crossed for Christmas day.
Take care everyone.
Peter

[hendaz68Participant]

Good evening everyone.
I am new to the Myeloma gang.
I was diagnosed with Myeloma on 8th November following being diagnosed with coeliac disease (gluten free for life) 🤢 & anaemia in July all of this year. Since my coeliac diagnosis I was still feeling tired & lethargic & my blood levels were dropping. So the consultant sent me to see a haemotologist who carried out further tests & bone marrow sample & the rest is history. I’ve just completed my 1st VTD cycle & touch wood apart from losing sleep whilst having the chemo (steroids) I think waking me up at 3am 🥴.
Hopefully I can make friends along the way & share my story with you all.
My 2nd cycle starts 14th December to 24th December so fingers crossed for Christmas day.
Take care everyone.
Peter

[Author]

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