I am also on the same trial. I struggle with low neutrophil counts for the last 6 months having had no problems for 18 months.

At the moment I am on 10mg for three weeks then 2/3 weeks recovery. I have had to have a few GCs-f injections to boost the neutrophils.

I do not know what will happen ,after my lastest course, as it seems to be such a…[Read more]

I have managed to get one years world wide travel insurance, including USA, for a year through Columbus Travel Direct. This covers my myeloma, pneumonia ,stem cell transplant…..really pleased! All for £124

I am making the best of it as I am in San Francisco at the end of a four week trip doing the National Parks and will be going to Costa Rica…[Read more]

I had my stem cell transplant at Kings in November 2014 and still going strong. First of all the staff are fantastic and will always answer all your concerns. Here are some suggestions that I found useful..buy the 1 month wifi card and take in iPad ,Kindle,mobile..get onto FaceTime and practice using it with family before you go in. There is a…[Read more]

Hello,

I had my stem cell last November in Kings. your mum will probably be in for three weeks. The staff were great and the room had a TV and Wfi connection.

Things that I found useful:-

Thermos jug for ice, Tena pants,toilet wipes,boiled sweets for actual transplant,cotton sleeping hats.

For the boredom it will depend on how she feels each…[Read more]