[jmsmythParticipant]

Hi Ann

Last I heard he still had that pesky infection but was out of hospital. Tom has been in touch with Janet so he will be able to tell us more when he finishes work

Love Jean

[jmsmythParticipant]

What great news. 😀 You both had a terrible battle but YOU WON. Come on SCT!!!. My best wishes and good vibes to you both. Have a great weekend
Love Jean x

[jmsmythParticipant]

Vikki and Colin

Great news and tomorrow there will be loads more of the little blighters 🙂 good luck for tomorrow will cross everything

Love Jean x

[jmsmythParticipant]

Vikki sending you loads and loads of positive vibes for tomorrow. Thoughts and prayers for Colin. 🙂

Take care
Locke jean xx

[jmsmythParticipant]

Hi Jane

I'm sorry to read that you are having such a bad time and hope that the doctors can get your pain under control soon.

Jane my husband has Mm and he is like you. He tries to hide from me how he feels. He thinks he's protecting me but he's not. I know that we all handle this horrible illness in our own way. But when I ask Frank how he is feeling he comes back thats he is fine. His words say one thing but his face says another. So then my imagination runs riot and I wonder what he's keeping from me. I personally want to k ow everything but as I said Jane that is how I fell as a "career" (hate that word)

Rant as much as you want – I do!! 😛

Best wishes to you
Jean x

[jmsmythParticipant]

Yes Deborah getting it by email is great. Ask Stuart from the Web team. He is very helpful

Jean

[jmsmythParticipant]

Hi Eve

Yes going in Saturday to info day – needless to say Frank not going. Off to'hospital tomorrow, consultant wanted to,seem him (2 weeks since last visit) because of infection he had in bladder she though caused by chemo drug – so she gave him another one to take with the chemo to help. Had no infection but side affects not good. I was so please to read aboutmSlim, he had a real bad journey but one thing Eve it has given a lot of people hope knowing what Slim came through.

Love the scrabble, I play with you on face book and, I play with sons and a friend in Australia on an app on my IPad. The friend in Australia uses words I have never heard off and because of her I have beaten son quite a bit. He's not a happy bunny – his mum beating him so much.

Play you soon love and best wishes to,you and Slim
Love Jean x

[jmsmythParticipant]

Dear Eve and Slim

So glad to hear your very good news. Enjoy all you trips!!! (Our scrabble is still on!!!!!!!)
Love Jean xx

[jmsmythParticipant]

Dear Gill

By no means was your post waffle. I read it a few time with tears on my face. I had followed your and Stephen 's journey for some time. I loved your trips to France and your wee dogs. Stephens farewell sounded so good, although sad, it was a celebration of his life and in a contradiction of terms -happy. I would love to have seen the red hat. I'm sure Stephen would have loved it.

I understand you need of a break from Myeloma but I hope that you feel you pop in now and again (like Min) just to let us know how you are getting on – sad and happy times.

It was a pleasure to 'know' you and Stephen and I know it will take you a long time to feel some sort of normality, but I wish you all the best in the world.

My love, thanks (for your advice, support and friendship) and thoughts are with you and your family
Love Jean xxx

[jmsmythParticipant]

Hi Tina

That is brilliant news. I'm sure you will look great in your wig. Best of luck
Love Jean x

[jmsmythParticipant]

Hi Mary i'm so sorry that Charlie is having such a terrible time and wish him a a quick recovery. I used to say "the light at the end of the tunnel is another blo**y train coming. But it's not its a light. Come on rant, rave and scream if you want , most of us have been there. As Vicki says take care if yourself

My best to you both
Love Jean x

[jmsmythParticipant]

Nicola Sorry about that txt – this predictive text can be a curse. After I re read it I wondered how you could understand it!!! Frank at last is feeling good. He even made breakfast this morning. Takes the chemo on Monday and he feels bad for about 18 hours. He was taking them in the morning but changed to take them at night so he could sleep through most of bad affects. It seems to work for him.

I hope the withdrawal starts to ease but although its hard I keep telling Frank "whatever it takes". My best wishes to your dad and don't forget to take care of yourself
Nicola your dad and Frank are at roughly the same stage. If you want to talk or ask questions please email me jmsmyth11@hotmail,com. There are a few people on the forum that I contact when I have questions or need to rant.

Love Jean x

[jmsmythParticipant]

Hi Ann. It could be medication as everyone seems to have different side affects but every time we go to see consultant I always bring it up as its always better to be safe than sorry. I'm sure consultant is sick of hearing the same thing but I just want to be reassured.

Frank is scheduled for SCT December/January bur there is only one hospital in Belfast that does SCT and they only have 5 units in use so there is a waiting list and leukaemia patients go first,keeping fingers crossed. Nearly forget what normal life is like

Take care
Jean x

[jmsmythParticipant]

Hi Ann

Sorry Pete having problem. Frank is on cycle 5 of CDT. He has had sligntly (!!!) numb fingers the whole way through treatment. Consultant doesn't seem to be concerned. He had to go two weeks for heart tests and last week for lung tests. This we are toldi s to ensure heart and lungs ok for SCT.

Maybe someone else will have more information for you

Take care
Jean x

[jmsmythParticipant]

Hi Vicki and Colin

Hope you have a fantastic weekend and that next weekend you are both very busy

My love and prayers are with you both
Love Jean xx

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