[lezastarkeyParticipant]

Hi Tom, don’t want yo quiz you too much. It what happens after fourth line of treatment? Is there another drug to move on to?

[lezastarkeyParticipant]

Thanks Tom for your reply. It’s good to hear about your next steps. Its such a worry especially to my husband. Thanks for your reply.

[lezastarkeyParticipant]

• Thanks Kevin. You had a good remission between both SCTs didn’t you? It’s goid to hear from you. Thanks

[lezastarkeyParticipant]

Thanks all for your relies to my comment to.

House fires, car fires, toxins and chemicals I believe after my research and questions to various doctors and consultants are linked to MM.  Indications were given to us that there are links to farmers and firefighters and that’s just after our small amount of researching and questioning.

Who is ever going to take on this can of worms?

Phils currently in Christies having had SCT. Staff are amazing and facilities are 1st class.

Hope to have him home in a couple of weeks.

Good luck all.

Leza Starkey.

[lezastarkeyParticipant]

Richard

Nice to hear about your experience. My husband is in Christie in Manchester at mo.  Just has autologous last week. Not good at mo but expected. He’s 47 now. His siblings have had blood tests and just waiting results do we will know whether they are match for allogeneic transplant. Tandem transplant I believe?  Such a massive decision to take if they are a match.

Good luck all

Leza Starkey.

[lezastarkeyParticipant]

Hi all, my husband is a firefighter and has MM.  On researching any links to this career and MM there does appear to be a link. When we asked consultant he would only say that he was seeing too many firemen. Says it all.

Any other firefighters out there?

Leza

N Wales

[lezastarkeyParticipant]

Good luck Izzy. Hope it all went well. My husbands on 3rd cycle and Pps are 17 and SCT is in his sights. Keep us posted on your progress

Leza x

[lezastarkeyParticipant]

lesj,  Such sad news for you. I can’t imagine how you must feel but hope you have siblings, friends and family to give you hugs and help you during the forthcoming months. Big hugs x leza

[lezastarkeyParticipant]

What an inspirational you are. My husband was diagnosed with MM three weeks ago. He starts chemo on Friday. we have gone through a full range of emotions as the thought of what’s to come is very un nerving and scary tbh.

It is so reassuring to hear your experiences.

Thanks for sharing your story And have a fab time at the wedding

Leza

[lezastarkeyParticipant]

Hi there

new to this forum but here goes…

my husband Phil was diagnosed with MM just over a week ago. His symptoms seem to mirror yours. He is a firefighter and broke a run last year. Suffered infections he could not shake off to. He also sneezed and thought he pulled his shoulder out and has physio etc.

He is on steroids at the moment and starts his chemo on 28/2/14 and opting for TEAMM trial to.

Emotions are all over the place but having read various comments on this forum I for one am feeling more positive 🙂

take care

Leza

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