[pollyParticipant]

Hi everyone not been on hear for a while and just looking through your very interesting posts on what we all take to try to prolong our remission I personally take Pomi-t each day which contains four super foods squeezed into a capsule to boost my daily polyphenols which has been a government backed and scientifically tested in a national UK study, the supplement capsules contain Broccoli, Turmeric, Pomegranate and Green Tea which some of you have mentioned in your posts I also like to put cinnamon powder on my cereal.

Rebecca have you tried Honey and lemon drinks as and when you need it for that cold you have, Honey must be plus ten as I believe it becomes more madicinal and a natural antibiotic that the body never gets use to, anyway hope my input helps.

Stay strong stay well.

[pollyParticipant]

Hi Andy

so pleased you’re OK and on the mend been quiet concerned about you, take care and listen to your body.

Onwards and upwards as Tom would say xxx

Polly

[pollyParticipant]

Dear Vicki

So very sorry to hear your news of Collins passing my heartfelt thoughts go out to you and your family at this very sad time.

Polly xxx

[pollyParticipant]

What wonderful news congratulations to you both 💐 xx

• This reply was modified 9 years, 4 months ago by  polly.

[pollyParticipant]

Hi Andrea

It’s all about steps and as time goes on you will regain your strength and pull away from feeling weak and tired as for the grey hair I decided to keep it because I wanted to take some control of my wellbeing and decided against adding chemicals to the mix even though you can have it done without touching your scalp nevertheless I decided to flaut the grey by having a really modern take on it which I believe is very fashionable these days amongst the younger folk alike, it does take a bit of getting use to but so does everything else to do with this journey.

Polly

[pollyParticipant]

Hi

I have been a member of this forum for some time although I don’t post often I like to keep up to date with other members journey’s and overall I have shared the good the bad and the sad with you all. I have done the Myeloma X1 the chemo the SCT and all that jazz with the fallout of the before and after side effects I have noted people on here go for maintenance only to relapse within twelve months others no maintenance and still stable four years down the line and visa versa as Carol said it’s a dilemma and very individual in my case I opted for no maintenance as it made no promises and is not conclusive and therefore I did not see any real reasons to subjecting my battered body to ongoing drugs even though I did not achieve a complete response, but at the time I felt it was more important to regroup my energies and grow stronger and keep the drugs in my back pocket for the next battle but like Carol I feel it’s jekyll and hide presence and at every three monthly appointment I wonder if this is it but so far seventeen months later I am still stable l don’t regret my decision however I must stress this is only in my case and if your myeloma is more aggressive then maintenance treatment maybe the way forward for you in keeping a foot on its nasty little head.

[pollyParticipant]

Hi Chystal

Please don’t feel angry it’s just that this forum is for people who have multiple myeloma a cancer that at the moment is incurable and terminal therefore any fundraising by our family and friends goes towards research for this cruel disease in the hope of finding better treatments and a possible cure in the future, I truly hope you understand and find what you’re looking for sadly it’s just not here.

[pollyParticipant]

Hi

Whilst I feel sad to hear what you have been through I have to agree with Tony this really isn’t the place to start a discussion on this subject and sincerely hope you find the right kind of forum of similar mindset to you to share your interest.

• This reply was modified 9 years, 11 months ago by  polly.

[pollyParticipant]

Done 🙂

[pollyParticipant]

Hi Tom

You mention the pain is in the left rib as before could it not be a weak spot that’s now susceptible to all kinds of everyday things that we do without thinking especially when we feel better, it’s normal to get the jitters when pain comes especially nerve pain that can be a bitch my advise would be get it checked out if its worrying you untill then no relapse unless told so

Polly

[pollyParticipant]

Dear Eve

Deeply saddened to hear the news of Slims passing thinking of you at this sad time

Love Polly xx

[pollyParticipant]

Yes there is a lot of nonsense out there regarding alternative shall we say trends however my own experience regarding complimentary medicine has been successful, firstly after the birth of my son in the 80s I came down with quite bad hayfever tried all the usual tablets and so forth whilst they where good the effects didn’t last and left me suffering until I could take another dose safely, in desperation I decided to try the New Era hayfever salts as you could take it every 20 minutes until symptoms subsided and reached a level your body was happy with to keep it at bay and it was often the case where I would realise I hadn’t sneezed for hours and when I did all it took was another top up and all was good, glad to report that all the chemo and sct last year has put paid to the hayfever at last and I no longer have it, secondly I came down with Acne Rosacea some years ago looked very red and sore so took myself to the Gp and persevered with all the creams and antibiotics to no real end as it was always there to some degree and sometimes looked quite angry, this went on for some years backwards and forwards to the Gp only to be told it’s difficult to cure, once again I took New Era a dose which I believe holds the memory of belladonna and apart from making my face feel a bit waxey during the treatment I felt fine best of all Rosacea disappeared not to be seen again and that was quite a few years ago but has left me with an open mind to alternative treatments to possibly run along side of conventional medicine so long as it doesn’t interfere so as for cuucumin I may give it ago 🙂

[pollyParticipant]

hi Mandy

Today I read another article from the Myeloma Beacon which again brought me back to you and your dilema and like our friend Eve who claims to be pleasantly plump lol said its a matter of attitude that will carry you a long way, and she is right , I consider this desease sly and deceitful and dos’nt care who you are, and so you’ must give it no quarter and fight the beast that threatens you and your family’s future, which brings me to the article I mentioned for you to read Arnies rebounding world (the one thing I won’t do) in the mean time stay strong with knowledge we are all here for you

Polly

[pollyParticipant]

Hi Mandy

The day you posted your sad news April 3rd I also got an email through from the Myeloma Beacon namely Pats Place a fellow sufferer stating( when the end isn’t the end ) it makes interesting reading and as far as I am conerned nothing is over until the curvey lady sings give it a read you may find it reasuring and hope you take some comfort from it.

[pollyParticipant]

Hi Tom

Same here when first introduced to Zometa some 18 months ago had a bad night with the said symptons very unpleasant floored mentioned it to my consultant so second time and thereafter given one piriton
tablet and 2 paracetamol some 20 minutes before a 30 minute infusion and that cured it never looked back hope this helps.

Polly

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