[sachbarnesParticipant]

hi, mulberry Jane you are a wealth of knowledge, very helpful. I had a question on curcumin but will start a thread as it includes other supplements.

however, check out iherb.com for the doctors best c3 complex from magarets corner. they are a massive site in the US, very reputable, and ship to UK as long as its under £130. It works out to £35 for the 1000mg 120 tabs inc all taxes shipping etc if you use their WELCOME25 with 25% off. They regularly have 20-25% off offers so can stock up when they do, or always get friends/family to order too. Even without the discounts its the cheapest I found in the UK, and dad has been using these for a few months.

[sachbarnesParticipant]

tx so much for the replies all.

mulberry Jane, did you have VRd lite for induction, I noticed you said lower dose? I am assuming we would be on a higher dose which is why we are being told around £10,000 for co-pay to use Revlimid instead of Thalidomide.

dad is standard risk and will have ACST after the 6 months. they have currently put him on 50mg Thalidomide a day, 2.25mg Bortezomib a week, and 2x20mg dex a week.

Will defo discuss with our consultant. We were thinking about waiting for the first cycle to complete, and then ask for options to upgrade if the initial results weren’t great. not sure if a trend is noticeable after 1 cycle?
I am guessing our consultant will be more apprehensive for us sourcing the Lenalidomide ourselves for induction, as it forms part of their current care protocol. With maintenance maybe they would be more approving when its vs nothing they could offer as an alternative (until this year).

Thanks again and great to hear you are all doing well since this thread started several years ago.

[sachbarnesParticipant]

hi all, hope doing well in your treatments. has anyone sourced from India to replace Revlimid in induction therapy VTD>VRD?

we are in first cycle with dad, started last week, and reading up on Lenalidomide we are wondering whether it might be worthwhile replacing Thaladomide now, rather than waiting for maintenance when we can get it on NHS. just not sure, and the £10,000 per month to go co-payment right now is quite high.

I read that Natco can start distributing its generic next year now. So is all the litigation just around the US/developed market, and it is already distributing its generic version everywhere else?

Tx

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