TomLappin

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Viewing 15 posts - 1 through 15 (of 2,447 total)
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  • #148273

    tom
    Participant

    No sorry I don’t just want to wish your brother good luck …onwards and upwards x

    #148244

    tom
    Participant

    Hi Sara
    Hope your doing well, it’s great to hear from you, yes I tried to message over the years lord knows what happened, came of the group for ages as it didn’t seem to work correctly

    Love Tom and Elaine
    Xxxx

    #148218

    tom
    Participant

    Hi Mulberry
    Thanks for your reply, and am pleased I helped people in there hours of need…
    Yes the professor told me to be honest when he gave me the talk lol…
    Still fighting this myeloma……don’t call me the Phenix for nothing….
    And am sure you will be as strong ….onwards and upwards 👆

    #148214

    tom
    Participant

    Hi Jenningsk
    I thank you and pleased I gave good advice over the years, still not giving in….they don’t call me the Phoenix for nothing ….onwards and upwards xx

    #148213

    tom
    Participant

    Good afternoon Cheshk
    How long was your lovely mum in hospital.?, bear in mind everybody is different, and I had to be 100 days before I had bone marrow biopsy and have it checked to see how bloods have gone…nobody came to our home with anything that could harm me ….so good luck with mum….
    Onwards and upwards it is ….

    #148195

    tom
    Participant

    Hi Jennings’s
    I was lucky I worked for a company that looked after me…..first sct I was off work for a year, when I said I wanted to return they said they have sorted a new job out for me, it was to check lorries in at the gate, was told I didn’t have to leave the building at the side of the gate as drivers were being told to come see me, (it’s a job the top people created for me) I said I didn’t want it I wanted to go back to my original job to see if I could do it ? He told me that I had lost money with being on sick and he wanted to put it back so he would prefer I took that job…I did stayed doing that for five years until I needed my second SCT ….I handed in a six months sick note to my boss plus a note asking for voluntary redundancy….he said he would put it to the top boss, turned out they said yes but would need to sign a form saying I wouldn’t go back and sue them….I did that but they didn’t give me the redundancy until my sick pay had run out plus I got the redundancy with a Christmas bonus of £250 have to admit I was well looked after, they also said if I was ever feeling like looking for a job one will be found with them…..hats off I was well looked after…..good luck to you (sorry for long post) onwards and upwards xx

    #148193

    tom
    Participant

    Hi Chris
    I have had five lots of treatment and two SCT’s they tell me it’s getting more aggressive and stopping working though they gave me a sixth lot which was what I had back in 2009 ……that stopped working also ……so I keep checking for new stuff but it can’t be related to what I have prior to all this….
    Take care and onwards and upwards

    Tom

    #148190

    tom
    Participant

    Hi Chris
    Thank you pleased I made your journey easier that makes me feel great…..
    Even though I have been given the info I am not giving up…I am going to fight it, I am called the phoenix where I live amongst my friends haha 😂…
    Hope your doing well ? Xxx
    Onwards and upwards 👆……

    #147610

    tom
    Participant

    Good morning Jean and of course Frank.
    We wish yous well with the MRI, try not to worry Jean (easier said than done I know) just letting you know Elaine and I are thinking of yous both…..onwards and upwards xxx

    #146823

    tom
    Participant

    Hi Caroline
    It’s no problem, and good luck on the Trip to London is it far from you the trip ?
    Onwards and upwards xx

    #146707

    tom
    Participant

    Hi Caroline
    Sorry can’t help just wanted to wish yous both well, fingers crossed something pops up soon…..onwards and upwards…xx

    #146668

    tom
    Participant

    Hi Tony
    Nice to hear from you also, ye we all know what the treatment are like ha ha.
    Yes I am a positive person always have been, still have my moments but soon moved on lol. Hope you like the volunteering side on here…
    Yes will keep yous posted as I plod along.. Take care and catch up soon
    Tom Onwards and upwards x

    #146664

    tom
    Participant

    Hi Kevin
    Ye well you were earlier th an me …I was 2008, for mine, but am sure it was longer before I thought something was wrong…..
    Yes been a few trials kicking in that’s for sure..fingers crossed they are good ones that gives minimal side effects..pleased your doing good my bone strengthening drug is tablet form …no hunting for viable veins these day apart from having bloods taken and at this time is every three months all treatment I am having is all pill form…..
    Take care mate
    Tom…..onwards and upwards x

    #141345

    tom
    Participant

    Hi Mike
    Yes been a while since I was on here….keep meaning to pop in more often..??
    Ye I am doing good thanks, but think I might be going on what you have just been through…the Pom….I am going to hull on Wednesday to see what they have concocted for my next lot…my Daratumumab stopped working…but it’s a case of what it will be I await Wednesday with baited breath…lol
    Take care Mike and chat soon….if you have Facebook pop in and find me…Onwards and upwards x

    #141334

    tom
    Participant

    Hi Mike
    Sorry to hear that your treatment is now becoming unstable…am sure there is more….our friend Andrew am sure is just going onto his 8th or 9th treatment…..and not able to have a transplant …good luck hope your new treatment is better for you ….Onwards and upwards

    Tom…

Viewing 15 posts - 1 through 15 (of 2,447 total)