[tonyParticipant]

Hi Susie & Stuart

I also miss part of posts on the hp desktop PC with 20inch wide screen monitor at work using internet explorer and laptop at home using chrome. I have had no problems with the ipad using safari.

[tonyParticipant]

Hi Clare

I had my SCT at Barts a long time ago in June 2005. The standard of the treatment and accomodation was excellent. The only downside was the traveling time from Colchester. Whether to go for a SCT or not is an individual decission. I definately would go for a 2nd SCT if its needed.

Best wishes
Tony

[tonyParticipant]

Hi Helen & Mavis

Glad you found my post encouraging. No bone invovement or major infections so far. I try to keep as fit as I can by biking to work,gardening and walking the dog. I had shingles and some major aches and pains after the SCT but soon back to normal. I have a few aches and pains at the moment but thats down to decorating. Looking forward to seeing England v the Barbarians next month at Twickenham and hope this good weather continues all summer.

Love and best wishes Tony

[tonyParticipant]

Hi Michele
When I was diagnosed and started treatment in dec 2004 I started taking an apple, pear, banana, orange, dried apricots and walnuts in my packed lunch. I did achieve complete remission so the change in diet did not hurt. I often eat mangoes and regularly drink mango and orange fruit juice. I did take blueberry punch for a while when I relapsed in 2009 and whether it was this or just coincidence my test results stabilized for about a year and I still have not started treatment. I think drinking at least 3 litres a day is probably more important than diet. This year I have increased my parsley turmeric & chamomile tea intake and make a tea from black cumin seeds. Not sure yet whether this is helping yet but bence jones in 24 hr urine tests is reducing but yet to see any improvement in sflc kappa results.

Best wishes
Tony

[tonyParticipant]

Hi Kevin

I was dianosed with light chain myeloma in Dec 2004 and did CTD Plus SCT in June 2005. Relapsed April 2009 but have managed to avoid treatment so far. The closest I came to treatment was in November 2010 when I actually signed up for Myeloma X and got a phone call 2 days before starting treatment from my consultant to say he wanted to hold off until after Christmas as my BMB results were looking better than expected. I like yourself wanted to redo CTD and 100% would agree with your decission to do so. Really hope the treatment goes well for you. Other than my SFLC results (which jump all over the place) I have been stable for some time and will not start treatment until I show CRAB symtoms. When I do start treatment I will again push for CTD.
Regards
Tony

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