[wifeofParticipant]

Hi,

my husband is due to go in for his second sct in June. I did a lot of reading prior to his first one and I got him to suck ice pops whilst the Melphalan was going in and for a little while afterwards. Thankfully he had no trouble with mouth ulcers so we will be repeating the same process again. Hope this helps and good luck

[wifeofParticipant]

Thanks Gill for your kind donation.

I hope everything goes well for your husband over the next few weeks. One bit of advice Lee would give is to suck on ice whilst the melphlan is going in to help avoid mouth sores.

Good luck and many thanks

Suzi

 

[wifeofParticipant]

He was in a pretty bad way when diagnosed with several fractured vertebra therefore his calcium and creatinine levels were through the roof and were putting his kidneys under a bit of pressure so to protect them his myeloma team prescribed the Velcade.

[wifeofParticipant]

My husband was diagnosed with non secretory myeloma in Jan 2014 he underwent 6 cycles of cybordex followed by a stem cell transplant in September. The way the way his myeloma is tracked is by bone marrow biopsies and PET scans.  He is in complete remission at the moment. Do you or somebody you know have it as I haven’t come across many  people with it on this forum.

 

[wifeofParticipant]

Don’t forget those ice lollies they really did the trick.

Good luck keep us posted as other people say it may not be a walk in the park but it is doable.

Suzi

x

[wifeofParticipant]

Hi Andrea, my husband had his SCT last September I got him to suck ice pops when he was having his Melphlan infusion and thankfully he had no throat problems at all.  I asked him if there was one thing he would recommend from his experience and it would be this.

Good luck over the coming weeks

Suzi

[wifeofParticipant]

Hi Mike,

That weeks going to be a big week for both of you. Lee has his cyclophosphamide priming that day. If you don’t mind me asking what has caused the loss of appetite? Was it the priming? My husband is 55 do you mind me asking how old you are.

You never know you could of been sat next to each other in the day treatment room or in the clinic. It’s a small world

hope it all goes well for you, it would be great to hear how you are doing.

good luck

Suzi

[wifeofParticipant]

Hi Mikex,

My husband is due to start the Harvesting Process 28th July at the JR in Oxford then like you we are over to the Churchill for SCT early September when are you having yours done?

 

[wifeofParticipant]

Hi Guys,

I’m so glad for you both. You story has given me hope as my husband is about to start the SCT process here’s hoping for an experience like yours.

Have a great break you deserve it.

x

[wifeofParticipant]

Congratulations on your anniversary.  My husband is about to start the SCT process and I have to say I’m finding it all a bit frightening.

You said that you returned to work part-time after two months, full time after three do you mind me asking what you do? My husband is self-employed mainly office based and I am worried that he is going to push himself to get back to soon and not allow himself the time needed to recover.

I would like to hear about your experience and how you found it fairly easy. I’m gearing myself up for a horrid experience and hoping that it’s not that bad really!

look forward to hearing your story

[wifeofParticipant]

Thanks Carol and Nicki, like you say there’s a lot to take on board. I like to try and find out as much as possible where as my husband likes to deal with things in bit size chunks.

He responded  very well to the initial treatment of cybordex with very few side effects so I’m hoping that he gets through this next stage without too many problems. I’m preparing myself for the worst them anything less will be a bonus!

The myeloma team in Oxford have been excellent and I know we are in good hands. He is going to have his work up done on the 21st July and then on the 28th he will have his cyclophosphamide infusion then as you know 10 days of growth hormones then harvested 6th and 7th August fingers crossed they get enough.

We have been told that the side effects from this process are minimal but I would be interested to know your experiences

thanks

 

[wifeofParticipant]

Hi,

I’m new to this forum but I have been following Kevin’s story with great interest. My husband was diagnosed This January with non secretory myeloma and has just completed his initial treatment and we are about to embark on the SCT journey. I was wondering how Kevin was doing now you are home after his discharge after only 12 days we were told plan for a four week stay at the NHS hotel and anything less is a bouns!

[wifeofParticipant]

Hi Jane,

I am new to this forum as well as myeloma. My husband was diagnosed a month ago and it was a total shock. Reading your story has given me hope that there is life after his diagnosis.

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