Hi
I would like to thank everyone for all the good wishes. I must admit the thought of a sct had slipped from my radar and I was just coasting along. The meeting with the Prof. On Monday has brought it back into sharp focus. I knew an auto sct was off the cards for me and that an allo sct was ultimately the only way forward for me. Never the less when he said we need to do it ASAP and possibly early in the new year it gave me a fright. I soon got over the shock of the suddenness of the announcement and the pitfalls he highlighted to knowing this is what I wanted and really my only option. No less scary though. I now have a plan and a goal to work towards which will keep me focused and maybe a little jittery.
Thanks once again for all your support.
As the wonderful Tom would say "onwards and upwards"
All the best
Andy
Hi Gill,
My thoughts have been bent towards the two of you for weeks and especially for the past few days. It was yours and Stephen's 'voices' that were the first to speak to me when I discovered Myeloma UK… brave voices, bright voices and you strengthened me more that you will ever know.
Now Stephen has slipped off the radar, peacefully, painlessly… and now my thoughts are with you and you alone.
Enough for now, except to say, much love as always.
Dai.
Hi,
Sorry to hear about your Dad. I am well aware how under the radar myeloma can be but even I am pretty shocked by the low standard of care given to your Dad, even if your GP was ignorant of myeloma, like you say he should have carried out some blood tests etc. I am sure that you wont be feeling like it right now but you could complain to his local primary care trust. You dont say how old your Dad is or which hospital is going to be treating him but I am sure he will now be in safe hands,and get the appropriate treatment underway to reduce the pain etc
Wendy
Hi Yamyam
Sorry to see you had to join but you have come to the correct place, and sorry to read you felt let down by the NHS 🙁 but now they have your Dad on the radar all should flow nice,as for me and only me I would go for anything to help put this dreaded MM on the sidelines until a cure comes along so for me I would do it.
Good Luck in the decision your dad has to make.
Love
Tom "Onwards and Upwards" xx
Hi Min
Where are you on the roller coaster!!!!,at the moment I feel i am on a nice level bit!!!! feels like heaven.
Bridget seems to have gone off the radar !!!
I think every ones gone on holiday and left us behind LOL
Glad to see you jumped the hurdle, love eve
