Colin SCT plan b!

This topic contains 167 replies, has 24 voices, and was last updated by  tom 12 years ago.

Viewing 15 posts - 106 through 120 (of 168 total)
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  • #100273

    Vicki
    Participant

    Hi all

    AT LAST WE GOT ON THE MACHINE TODAY, STEM CELLS ON THE MOVE HOORAY,

    We were amazed when we go there this morning. They did not even wait for the blood test cd34 to come back. Said there was guaranteed mobilisation with plerixafor! Wow. As it turned out colins count was 14, so like chris's not great but a start. We are told this evening that he made 1.03 I assume million, and needs at least 2 mil to be a goer. So I dropped a v exhausted Colin off and I went to gloucester to get the next plerixafor. They've changed the game plan for tonight's injections, doing the double gcsf I think chris, at 7pm and then the plerixafor at 10pm tonight. I think they want to give it a big whack, then we are back down to Bristol tomorrow for another go.

    The nurses were great, and those little cells coming out were Also great! 🙂

    What a relief to get going, even if we only limp over the 2 mill bar!

    Thanks for all your support all.

    Colins asleep on the settee, I'll have to wake him up for injections and dinner,…..wonder which he'll prefer ha ha, and me, I am going to have a big glass of wine 🙂

    Hope all is well with everyone, so hopefully Chris yours and colins dates will coincide so Lena and I can swap notes!

    Ali, how's your mum doing?

    Vicki and Colin x

    #100274

    jmsmyth
    Participant

    Vikki and Colin

    Great news and tomorrow there will be loads more of the little blighters 🙂 good luck for tomorrow will cross everything

    Love Jean x

    #100275

    Jacquie
    Participant

    Hi Vicki and Colin
    Thats great news, Hope tomorrow brings many many more! at this rate it will be all done by Christmas. Keep strong thinking of you both.

    #100276

    bikerchris
    Participant

    Well done Vicky and Colin! I said it would be fine, and tomorrow you will do even better, particularly with that double dose. I found day two much easier, knowing the form and what to expect, but daytime TV was getting a bit tedious by the end! Good luck and stick with it, you are nearly there and can have a huge rest at the end of the week. As it is going well they may want to go for day 3 to collect 4 million, as that will do for 2 transplants. Grit your teeth Colin, it will be worth it to finally feel better agin.
    Thanks for posting Vicky, as we are right behind you, and so pleased it is going well, all the best, Chris and Lena x

    #100279

    Ali
    Participant

    Hi Vikki and Colin

    Phew, what a relief!

    Well done Colin! Keep those lovely stem cells coming:-)

    Mums doing really well thankyou, still got mouth probs but not as bad as previous. So things are looking up.

    Anyway, best of luck for today.

    Love Ali xx

    #100280

    Vicki
    Participant

    Hi all,

    Another trip to Bristol and more stem cells, surprisingly colins count was still only 18 today, 4 higher than yesterday. That said they seemed confident they would collect the required 2 million. Well they did collect another 1.04, so in total we just got over the bar with 2.07, and that's good enough. Now they are in the bag literally, it seems a bit weird, and we both just looked at each other when we got the results!. It would have been nice to have some spares in the bag but who needs those eh!

    It's been such a roller coaster so far so there has been a few tears from me this afternoon! Still as Tom would say it's onwards and upwards.

    Ali, so pleased that things are looking up for your mum, and thank you for thinking of us. That goes to all of you either post SCT or those getting ready for it. So nice to relax tonight with no more injections to worry about 🙂

    Vicki and a few stem cells lighter Colin x

    #100281

    Jacquie
    Participant

    Fantastic news so pleased it all worked out in the end. Next step SCT time to relax a bit now. will be keeping check on your posts. best wishes Jacquie

    #100282

    Vicki
    Participant

    Thanks jacqui,

    Your support and thoughts are very appreciated

    Vick & colin x

    #100283

    Ali
    Participant

    You did it! Hoorah and well done Vikki and Colin.

    Thats such a relief for you – no wonder there were tears.

    Im so pleased for you both, another hurdle smashed. Now to regroup, chill and rest before the next stage.:-)

    Love and hugs to you both Ali xx

    #100284

    andyg
    Participant

    Hi Vicki & Colin
    I'd just like to add my congratulations. It's been a uphill struggle but your up there now. Let's hope it's all down hill to a successful sct and on to full remission.
    Wishing you all the luck in the world
    Andy & Steph xx

    #100285

    tom
    Participant

    Aww you two thats great news 😎 And just to let you know I had a few tears after reading your Bags are Full, am that happy for you both I cant smile wide enough, but i am gonna have a vodka for you two.

    Love Tom "Onwards and upwards" xxxx8-)

    #100286

    JoanneK
    Participant

    Hi vicki and Colin… What great news.. Wishing you all the very best for the next stage.

    Take good care of yourselves

    Joanne xx

    #100287

    Helen
    Participant

    Hi Vikki
    What an ordeal it has been, get some rest and enjoy a few weeks now.
    Love Helen

    #100288

    jmsmyth
    Participant

    What great news. 😀 You both had a terrible battle but YOU WON. Come on SCT!!!. My best wishes and good vibes to you both. Have a great weekend
    Love Jean x

    #100277

    Helen
    Participant

    Hi Ali
    Thanks for asking, but you might regret it ,:-) I've been getting to grips with work again, no mean feat after all this time and trying to get back to a semblance of normal life. what is that?? Is it ever going to be normal again? My memory seemed to leave with the melphalan, along with all my mucous membranes and is yet to return in its previous capacity! I'm jolly tired of this chest thing and feel seriously below par for a good chunk of the day, I also had the zometa on Tuesday and I always feel rough for about 5 days after it, so having had a lovely, if too short holiday and a bit of sun for a change, i'm now back at work, grumpy and tired already.
    What a whinge I am!
    I'm sorry, I think I'm finding it hard to pick up the pieces again at the minute, better stop moaning and go to sleep, nearly the weekend now, hurrah, how's your mum? Still got a sore dry mouth? Mine still is and is worse every time I get a cold. Something we have to put up with I think.
    It must be nearly half term now, are you planning to go away?
    Love Helen

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