[lorraineyParticipant]

Hi Keith,
Sorry to read this, I wish you all the best with round two.
love n hugs Lorraine xxx

[MinParticipant]

Sorry to hear your news, its a bummer. Shame you had to join the relapse group But on the plus side you know the drill, and new treatments are better than old and hopefully longer lasting too.
Min

[KeithH17Participant]

Hi Bridget, I had Radiotherapy to my Spine/neck and collarbone after first being diagnosed to repair fractures and a collapsed vertabrae.
It was'nt too bad,only problem for me was difficulty in swallowing and the skin became very red but all of this only lasted 3 days.

It was around 6-8 weeks before I felt the benefit of the treatment with the pain gradually subsiding.

When I go to see the doc tomorrow I'm half expecting him to recomend me for another bout to try to get rid of this awful pain in my ribs.

Then it's most likely going to be Velcade or maybe Revlimid?

I can't help thinking that a much more targeted therapy is just around the corner without all the horrible side-effects so here's hoping.

Take care Bridget.

Keith.

[KeithH17Participant]

Hi Roz,I really appreciate your kind words,taking the time to write your post after everything you've had to go through takes a very special person.

I have always read your posts with the hope that things would take a turn for the better with regard to Michael's Myeloma problems.

You both had a really tough time and deserved much better from the outcome.

God Bless you and your family.

Keith.

[GeorginaParticipant]

Hi Keith

As everyone else has said, so sorry you are having to start treatment again. Hopefully it will make you feel better and help with the pain in your ribs. It certainly helped my mum. Good luck tomorrow and keep us posted. I'll have my fingers and everything else crossed for you.

Take care
Georgina x

Bridget – good luck with your appointment this week with the radiologist. Hope they start treatment soon xxx

[brochoParticipant]

Hi Keith thankyou that really helps to get a picture of the process I would have been expecting immediate pain relief too , at least now I wont be impatient.I am sure it wont be too long before a more specific therapy emerges.I have just read a piece on cancer treatment origins and I amazed that the first treatment wasnt till 1942 and came about as a result of an accident involving mustard gas!! I am in awe at the advances made in the last sixty years and very glad to be here to take advantage of them Good luck with your appointment today love Bridget x

[AmelieParticipant]

Hi Bridget,
John had radiotherapy too – it wasn't bad at all.
Wish you all the best!
Love
Amelie

[BADGERParticipant]

Hello Keith

Sorry the monster is back we are all waiting for this dreaded phone call
I dont suppose its ever as bad as the first time we are told it just as if there is a ticking time bomb in us and we just dont know when its going to go off really good luck with the next lot of treatment lets hope it gives you a good long remmission
Keep Well love Jo:-S

[SharonGParticipant]

Hi Bridget
The radiotherapy hasn't been too bad at all! I had to go back under the ct scanner to be measured and now sport some lovely free tattooes so they know they are zapping me in the right place. I am only having 5 sessions for this tumour and i am only under the radiotherapy machine for a couple of minutes while they actually do it now. Still have to discuss if i need valcade or not, i'm not sure i like the idea of lots of little tumours sitting there waiting to pop up though!
They do say that the pain will get worse before it gets better and will be a few weeks before i start to see the benefits. I've really had to push for this and was admitted because i couldn't cope with the pain any more, so you must push them Bridget if you feel they are not doing things quickly. I have also been introduced to the palliative care team for pain control, but thats very difficult for me as thats what i used to do for a living!lol!
Take care
Love Sharon x

[susan123Participant]

Hi Sharon,
Sorry to hear about the reults of your biopsy, I didn't know, even though I have been texting you over the last few days. I wondered how it had gone but didn't like to ask.

You are one tough cookey Sharon, so I know you will come through all
this stuff that must be testing you right now. I hope you are ok now after the bit of a panic earlier, but it's a bit rough when you have to find out
what's happening from the outside (so to speak, sounds like your in jail)

I am pleased you have access to the Internet, or is this only a temporary thing?

If I can help with anything Sharon, don't hesitate to let me know.

'Fight the goodfight, with all thy might' – that should be a hymn Lol !!

Love Sue xx

[RozParticipant]

Hi Kieth
Thanks for those kind words.

Keep yourself together, and fight round two like you did the first round.

All the best for the future

Roz

[KeithH17Participant]

Hello everyone,It's going to be 8,cycles of Velcade+good old Dex.
I start it all this Friday 13.30 a whole new journey in my treatment.

At the end of it a second SCT if all goes well.

Doc said apart from the MM my kidney/liver function are all ok.
Even my blood calcium levels are also fine but the MM is active in the Bonemarrow and without treatment Protein levels would eventualy start to rise with all the problems that go with that.

Velcade is a more targeted therapy which singles out the Myeloma cells in particular and not so much the healthy ones in the Marrow therefore reducing the worse of the side effects(I hope).

Good health to all..Keith.

[PerkymiteParticipant]

Well, that is good news Keith. Well done:-D . Please keep us informed as your treatment moves on. Perhaps another 2.8 years remission awaits you after your next SCT.

Kindest regards

David

[zasrsParticipant]

hi keith

Good luck with the velcaide, gordon had velcaide last april prior to him having a 2nd sct. velcaide work very quickly and he went almost straight into remission, no problems apart from the dex!!!:-/ he also has no probs with kidney function ect.

best wishes sarah

[MariParticipant]

Dear Keith,
sorry to hear about your relapse but glad you now know where you are going with the next stage of the treatment. I hope it goes well for you and leads to further remission soon,

Mari x

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