CathyBrady

  • Thank you so much Ellen and Dorothy for answering, That makes me feel a lot better, my husband went to his last appointment on his own so didn’t ask enough questions when they told him his count was rising, I will be there next time to see where we go from here. Dorothy I know its different for every patient so let’s hoping he is like yourself…[Read more]

  • Hi
    Looking for some advice my husband has myeloma since 2011 and has had SCT transplant 2012. This week we got the latest blood results paraprotein levels (don’t know if I spelt that right) have risen from 6 to 12 in the last 3 months. What’s next for him is this result really bad news how long before he has to go on treatment again. He has…[Read more]

  • Hi everyone, I would like to share with you all my just giving page through the link below. My husband was diagnosed in 2011 and is currently fighting his battle with myeloma everyday. My family and I have decided to do a Christmas day swim at Lisfannon beach in county Donegal in aid of the charity and if your from here you will know the ocean…[Read more]

  • JustCathy started the topic Taste buds. in the forum Carers 9 years, 6 months ago

    Hi everyone,

    Have not been on for a while it has been a tough journey for Ivan he was 8 weeks in hospital after his SCT and his kidneys have not recovered, he has dialysis very mon wed and fri means he leaves home at 6:45am and returns at about 1:30pm. It's been really tough for him the doctor said there are about 10 things that can go wrong…[Read more]

  • JustCathy started the topic Ivan's SCT. in the forum Carers 9 years, 7 months ago

    Hi eve, DiaCro an all,

    Hi everyone it's day 35 can you believe that, and Ivan is getting better. Thanks for your support and telling me that he would get here its been a rough ride. Ivan is still on dialysis and he has been getting transfusions but the doctors are pleased with how he is now. The haematologist told him today that he was the…[Read more]

  • JustCathy replied to the topic Seriously concerned in the forum Carers 9 years, 8 months ago

    So sorry Gail,

    To hear of your loss. I was coming on here tonight to tell everyone of my husbands progress. But I seen all the posts you had and read them all with a sad heart. I will keep you in my prayers tonight.

    Cathy

  • JustCathy started the topic Ivan's SCT. in the forum Carers 9 years, 8 months ago

    Hi, everyone,

    Day 23 after Ivan's SCT things are looking better after the worst week of Ivan's sickness, he was very poorly all,last week but with Gods help he's come through. Today he got out of bed himself eat some tea and toast on his chair and had a shower by himself. He is still very weak but getting better. Bloods works are good…[Read more]

  • JustCathy replied to the topic Stem cell transplant in the forum Carers 9 years, 8 months ago

    Hi Eve,
    Thanks for your kind and very informative words. I will always be smiling every day I walk into that isolation room where Ivan is. it is really important to have a place like this to come and share your fears when you feel despair, this forum has given me so much help this week. Tomorrow he is getting a scan to see if anything shows…[Read more]

  • JustCathy replied to the topic Stem cell transplant in the forum Carers 9 years, 8 months ago

    Hi everyone,

    First of all thank you to all the friends on here who answered my post this week, your support and advice is really appreciated. Ivan is still on dialysis seems like he may be for a while to come yet. I took your advice and got talking to a doctor and a nurse who both gave me information to help us thought this. You are all…[Read more]

  • JustCathy replied to the topic Stem cell transplant in the forum Carers 9 years, 8 months ago

    Hi everyone,

    Update on Ivan, he has been on dialysis 3 days now and the renal doctor says that he will be on for at least two more weeks. He is still very ill. It is now day 16 after the SCT no sign of his bloods recovering. He has also had to have a transfusion over a couple of days as they can't rush in with too much fluids as the…[Read more]

  • JustCathy replied to the topic Stem cell transplant in the forum Carers 9 years, 8 months ago

    Hi everybody,

    Thanks for your support, Ivan and I really appreciate it day 13 after the transplant he has been in hospital for 3 weeks now. Kidneys have stopped working he has been on dialysis for 3 days and I do think, well hope that this is as Low as Ivan can go. He has been really sick diahorrea has been really bad for him. I know that a…[Read more]

  • JustCathy replied to the topic Stem cell transplant in the forum Carers 9 years, 8 months ago

    Hi everybody,

    Thank you for all your great replys and advice. It was really appreciated by myself and my husband for all your support. I read your messages to my husband and it made him feel a bit better, knowing that you all came through it and know how he's feeling. I do stay very chirpy when I visit him I don't show him how worried I am.…[Read more]

  • JustCathy replied to the topic Stem cell transplant in the forum Carers 9 years, 8 months ago

    Hi Sandra
    Thanks for your quick return. I will tell my husband about your experience he was sick from the day he got the transplant then it left him for a day or two but its back even stronger. I was saying to him tonight that after 10 days or so he may come a bit better so let's hoping that he will be like you and recover a bit by then. You…[Read more]

  • Hi my name is Cathy

    My husband Is going through a rough time, he has had his SCT and this is only day 7 after the transplant he has been in hospital for 2 weeks so far. He is very sick I feel that he is not getting enough consistency from the staff at the hospital he is in. Maybe I am wrong but sometimes I feel like he does not complain…[Read more]

  • JustCathy replied to the topic New to it all in the forum Carers 10 years, 9 months ago

    Hi Eve

    Yes its sad to say we know what CDT is got that all explained to us when my partner was first put onto all these treatments, and we did a lot of research on these treatments and their side affects.

    Cathy

  • JustCathy replied to the topic New to it all in the forum Carers 10 years, 9 months ago

    Hi everyone,

    Thank you all for your replys, I really appreciate being welcomed into you community, it really helped will chat soon my prayers are with you all.
    Cathy

  • JustCathy replied to the topic New to it all in the forum Carers 10 years, 9 months ago

    Hi Min

    Thanks for your kind reply, we were feeling really sorry for ourselves this weekend but lots of set backs and the fact that the medication is making him worse is so frustrating, but hearing from yourself amd all the other carers on here who were kind enough to answer made me feel part of something. I am usually a very strong person have…[Read more]

  • JustCathy started the topic New to it all. in the forum Carers 10 years, 9 months ago

    Hi,
    My name is Cathy my partner has myeloma just found out in July. We are trying to come to terms with everything, sometimes not to well but really trying to be positive for the family, I will tell you more about ourselves when we get to know you better,I must say he tells me to go on here and talk to people who are in the same boat as us,…[Read more]