Thank you so much Ellen and Dorothy for answering, That makes me feel a lot better, my husband went to his last appointment on his own so didn’t ask enough questions when they told him his count was rising, I will be there next time to see where we go from here. Dorothy I know its different for every patient so let’s hoping he is like yourself…[Read more]

So sorry Gail,

To hear of your loss. I was coming on here tonight to tell everyone of my husbands progress. But I seen all the posts you had and read them all with a sad heart. I will keep you in my prayers tonight.

Cathy

Hi Eve,
Thanks for your kind and very informative words. I will always be smiling every day I walk into that isolation room where Ivan is. it is really important to have a place like this to come and share your fears when you feel despair, this forum has given me so much help this week. Tomorrow he is getting a scan to see if anything shows…[Read more]

Hi everyone,

First of all thank you to all the friends on here who answered my post this week, your support and advice is really appreciated. Ivan is still on dialysis seems like he may be for a while to come yet. I took your advice and got talking to a doctor and a nurse who both gave me information to help us thought this. You are all…[Read more]

Hi everyone,

Update on Ivan, he has been on dialysis 3 days now and the renal doctor says that he will be on for at least two more weeks. He is still very ill. It is now day 16 after the SCT no sign of his bloods recovering. He has also had to have a transfusion over a couple of days as they can't rush in with too much fluids as the…[Read more]

Hi everybody,

Thanks for your support, Ivan and I really appreciate it day 13 after the transplant he has been in hospital for 3 weeks now. Kidneys have stopped working he has been on dialysis for 3 days and I do think, well hope that this is as Low as Ivan can go. He has been really sick diahorrea has been really bad for him. I know that a…[Read more]

Hi everybody,

Thank you for all your great replys and advice. It was really appreciated by myself and my husband for all your support. I read your messages to my husband and it made him feel a bit better, knowing that you all came through it and know how he's feeling. I do stay very chirpy when I visit him I don't show him how worried I am.…[Read more]

Hi Sandra
Thanks for your quick return. I will tell my husband about your experience he was sick from the day he got the transplant then it left him for a day or two but its back even stronger. I was saying to him tonight that after 10 days or so he may come a bit better so let's hoping that he will be like you and recover a bit by then. You…[Read more]

Hi Eve

Yes its sad to say we know what CDT is got that all explained to us when my partner was first put onto all these treatments, and we did a lot of research on these treatments and their side affects.

Cathy

Hi everyone,

Thank you all for your replys, I really appreciate being welcomed into you community, it really helped will chat soon my prayers are with you all.
Cathy

Hi Min

Thanks for your kind reply, we were feeling really sorry for ourselves this weekend but lots of set backs and the fact that the medication is making him worse is so frustrating, but hearing from yourself amd all the other carers on here who were kind enough to answer made me feel part of something. I am usually a very strong person have…[Read more]