[annlynnParticipant]

sorry to join your thread here but im not sure if you realize that Myeloma is difficult to diagnose we are nearly all in a position were nback pain was a major problem before we were officialy diagnosed . it is no ones fault and tgere iz no point talking about sueing anyone. you will find during this journey you will be very gratefull to the NHS the doctors the specialists ect. please remember this . it is unfortunate that we are diagnosed often after damage is done i realse this. ann

[annlynnParticipant]

hy to the new members of the group no one really wants to be in . i was diagnosed in jan 2014. swiftly put on to cdt for six treatments followed by stem cell transplant in the Freeman hospital newcastle. quite a scary time but got through it like so many others on this forum. im in remmision almost two year and doing ok you ask if life drastically changes ?? it does change and priorities change but with a positive attitude and alot of love and support you will cope love. ann

[annlynnParticipant]

hello colin welcome !! absolutely no way can anyone advice you on this decision i was diagnosed jan 2014 followed by six months of CDT wich is chemo dex and thelidamide sorry thats the wrong spelling followed by sct in the freeman hospital august 2014 i have been in remmision since then which is eighteen months and doing quite well medicaly retired from work yes life is diffrent but try. to keep some normallity and have breaks away and holidays when feeling good sorry cant a dvice you because the choice is yours good luck with it all xx ann

[annlynnParticipant]

you willl have to make a application for moterbiliity if you meat criteria then b lue badge you must not b ed able to walk 250 yard as without problems xx

[annlynnParticipant]

hya andy. nice to see a post from you glad your doing well and getting those holidays in . i remember you had to cancell when you were poorly hope all goes well with these two. im considering booking a week in cyprus for next month if all bloods are ok on the next appointment we did have ten days in lanzarote in march but the weather wasnt to good and i wasnt feeling to great i think this time well go straight from newcastle because the hassle of flying from manchester was just a step to far. ..well enjoy and keep wellx. ann

[annlynnParticipant]

hya everybody. has anyone else had reacurring low blood count haemoglobin this is the second time in last six weeks breathlessness and week as a kitten transfussion again tommoro. . on the plus side myeloma still doing great non detection of protiens looks like the camera up will be next step not relishing that xx

[annlynnParticipant]

sorry your feeling so rotten val but you need to relax and stop getting so wound up about it all it is a awfull frustrating illness but we cant change it we have to learn to live well with it . We all have lotts going on in our lives but we learn to put things in order of importants i like yourself have my house up for sale and its a double edged sword i need to sell and be in a. smaller house but things are slow .since my transplant august 2014 ive had to learn to relax about the little things that go on your husband will come through this bad bout of pneumonia try to not worry but do take time out for yourself its important xx bestwishes. annlynne

[annlynnParticipant]

well you were right rebecca. i had two bags given over five hours but feel great it has given me a much needed boost it should be given to everyone haha xx annlynn

[annlynnParticipant]

when put like that rebecca im looking forward to it i might end up having a busy productive weekend. havent had one of them in a while haha bring it on. xx thanks so much

[annlynnParticipant]

hy all..just whant to pick some brains. my blood count has usually been on the low side as is iron but came vback from holiday last night still got tge remnants of a cold but hospital bloods even lower today. so transfusion tommorow ive never had one and sure itll be fine feel breathless and totally rubish ha ha though. im sure the transfusion will help. anybody been in same boat ???? annlynn

[annlynnParticipant]

sorry that should have said eighteen month remission xx. annlynn

[annlynnParticipant]

hy love. agree with all jan said s he covered all the inital points. i was diagnosed at 59 cemo then stem cell either month remmision feeling. quite well off on holiday sunday life does get to a sort of normal not like we knew it but ok. hang on in and be there for her my family were my rock and still are. best wishe. annlynn

[annlynnParticipant]

ah. i see now health insurance !!!! well i am nhs and have had all my treatment on nhs and i am very gratefull but i am with bupa through my husbands work while i was in hospital for sev e nteen days for my stem cell transplant i was allowed to claim 200 pounds per night which i have to say was very helpfull. annlynn. so it does have a usefull place in the system.

[annlynnParticipant]

hy. ive had mm since early 2014 stem cell transplant august 2014 i. have had a holiday after most treatment once ive felt able to travel. im insured withvthe bank. tsb. ive informed them ofcmy illness and that im currently in remmision. ive. never paid. any extra premiums and i have kept tgem up to date with everything xx annlynn

[annlynnParticipant]

hy helen. dont think andy posts on here much now. i think hes on facebook . but im not !! this forum is about all i manage haha. just wondered from your last post do you think mm patients make up most of the holiday bookings in the country because most people who post book a holiday when they get breaks in treatment or a bit good news or. any excuse. maybe lol.ive got appointment with consultant end. of feb. but booked lanzarote for early march regardles. take.care. xx. annlynne

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