[annlynnParticipant]

nothing to do with myeloma andy but is the weather in greece still good end of september do you know .Never been to Greece just Rhodes a long time ago but fancy it instead of tenerife x. annlynne

[annlynnParticipant]

Hope you got. to. greece andy and enjoyed every minute of it. im looking. for something for. early october. hopefully get. my. back. problem sorted. f irst best wishes annlynne

[annlynnParticipant]

hy mavis and andy long time since i saw a post from either of you ! pleased your still holidaying andy . just picked up on your post mavis about zometa and back pain. i was tolld last month protiens rising abet slowley. but still rising then this last two weeks. my. back pain is. back with a vengence right. hip and left upper back especialy if i lift my arm feeling a. bit. worried about w h ats next. but im. sure. second line treatment. must be on the. cards i do hold on to the fact second. treatment isnt the end of the world and lots of the older posters have had to have it and are still doing ok so fingers crossed annlynne

[annlynnParticipant]

we must stay optimistic only way im. Aware its not curable but treatable treatemts changing weekly. hang on in everybody. xx

[annlynnParticipant]

so very very sorry for your loss we hear of lots of people who have long remmisions but we sometimes forget the people with myeloma who dont get the luxury of time. my thoughts are with you xx ann lynne

[annlynnParticipant]

hy susie. ive. had many. holidays. during. my journey but usually planned them to coincide. with the end of. treatment i do know people who have had there medication. with them. and. conti ued with it. it will probably depend. on. were your. traveling. to and how well you ceel on. treatment. good.luck. annlynne

[annlynnParticipant]

what a brave lady you are to have lived with all of this for so long but also very lucky that your husband has survived so much !!!! There is no preventive drug. justdrugs to keep our awfull cancer at bay. for as long. as we can most people on this. site have had SCT. but a. few. have had. donner transplants i dont know much about. those ones ive had a SCT in 2014 so remission nearly tw years and i hope for many more. good luck with. your. journey hope your husband does well annlynne

[annlynnParticipant]

hello love. im like most people on this site si x months chemo. then sct in the freeman seventeen days. awful in some ways but well worth it. imnow. nearly. two year remmision a d. so happyto be here and still doing ok. ye. i. had to retire work and i miss it ii was a court usher for many years but. i. coud t be on my feet all day. i have. rhumertoid arthritis

as well s difficult diagnoses i feel ok at mminute. but live every day at a time have holiday whenever we can always. vet. good. insurance. live. for. the. moments life. is. duffrent. but. you. will. adapt look at people like andys. profiles very uplifting take. xarw but. remember cup half. full. better than half empty xx ann quinn

[annlynnParticipant]

just read your post david i will definitely be watching that. thanks. ann

[annlynnParticipant]

ah bless you this is a difficult one i think you really should speak to one of the great nurses on this site they will be able to answer your questions and maybe help with your fears i am told that quite often it is the inability to fight of infection that is how people often loose their fight. but speak to the trained nurses for proper sound advice take care xx..ann

[annlynnParticipant]

morning jan …My experience was similar to David s. i didnt have a hickman line if your veins are fairly good tgey dont always use one . A district nurse poped in for five days with injections to boost stem cells day five was the worste but when my husband rang to tell consultant how bad my pain was she replied with t h ats good tel ann to hang on in the worse the pain the better the harvest and i did get well above what was needed so ive got some frozen in the freeman in case of a repeat in the future !!! like david i was harvested then got a date and a bed was told to suck ice lollys or ice pops to help with the mouth infections you can get. it was a pain but it worked. i havent had a lolly since. two year in august for me . like d as vid said it is doable not the best experience youl ever have but remmision will be worth it hopefully. i was in hospital seventeen days but picked up well once i was home srem cell in august and tenerife feeling canny in december. give your self little goals to move toward itll keep you going best of luck with it all and feel free to ask what you want were a friendly bunch on here. xxx ann

[annlynnParticipant]

sorry. ;;;Strong Brave Women ;;; beter get it right .x ann

[annlynnParticipant]

hello chrissie. .welcome to the group none of us want to be part of. but in lots of ways this group can restore your sanity when no one else understands your fears and worrys .so alwYs glad of it . Iwas lucky even though i had been back and forth with bad back pain for months when the penny started to drop i was dealt with in the two week rule. scarry. and full on but mri. and xrays and bmb. were all done in a short time . my hematoligist was excelent and still is . a few weeks to start treatment im sure will be fine. and good luck when you get started thats when you. will probably need us most all of us will have been through some or all of. what your about to take on. rebecca on this sight told me yesterday when i was having a. very bad day. her. daughters new mantra. We Are all strong women !!! and im using that today. good luck with it all and come on whenever you need a listning ear or a question answered someone will know the right thing. …..annlynne

[annlynnParticipant]

well. i went to see consultant with. ;; i am a strong brave woman ;; ringing in my ears thank you Rebecca’s daughter ha ha. it really helped i realised again that what ever gets thrown at me i will cope and for as long as i can to quote the wonderfull gloria. I WILL SURVIVE. anyway the upshot was the xrays id had done werent back so much for making them urgent the consultant is sure if it was in anyway connected to myeloma my protein levels would definitely be rising and there still very low almost undetectable. bloods all fine. so im waiting for a call but she thinks the back pain maybe my arthritic problem or even a fracture of the rib so i feel. relived t o say the least. like rebecca said blips sometimes are unexplained !!!! so today friday. myeloma is going back in its box. xxx annlynne

[annlynnParticipant]

you have a brilliant time enjoy the sun and the odd cheeky beverage and deal with proteins rising or not as the case may be . silly though it sounds your my inspiration and im sure im not the only one who thinks that so enjoy best wishes. annlynne x

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