[brochoParticipant]

Hi Gill sorry but Imissed this post yesterday dont know how!! Tell Stephen I know exactly how he feels as Ihad the same thing for over a year before I diagnosed!! Steroids and surgery got rid of mine but not before it took 3 vertebrae with it!! I should be having my RT next week too so fingers crossed we will both be if not pain -free at least not in agony by next weekend That is one thing that Dex is good for at least and as these tumours are blood filled dex does the trick love Bridget x ps sorry if this is all over the place but I have just had a large dose of happy juice!!

[brochoParticipant]

Dear Gina your poor mum must be longing to get rid of whatever is making her feel so dreadful . I am surprised they have not admitted her , or would she not want that. It soeems a long time to have to wait 2 weeks before you see the consultant I think if I were in your shoes I would get hold of the specialist nurse and ask all the questions that must be worrying you the most and push to see the consultant ASAP!! I dont know anything about the nodules though Gina that would be my first question for the nurse or doctor/Its making me angry to think they have just left you all with these issues and not helped by telling you anything , even basic info like the nodules origin Hang in there Gina your mum is a strong lady and so are you so you will get mum through this bad spell. Try and get some rest too , you must be worn out love Bridget x

[brochoParticipant]

Hi Eve regarding the results following treatment as in Slims case and doctors wanting to wait until the end before doing bone marrow or is it a scan they are going to do? Often the results from these drugs take time to settle so rather than testing several times they prefer to give it time to level out As it is only a few weeks its unlikely to do any harm to continue in the meantime and certainly easier on Slim than loads of repeat bone marrow biopsies love Bridget x

[brochoParticipant]

Dear Sarah it really doesnt seem fair for you to go through so much I think I understand what you mean when you say your father gave up on hearing of Gordon passing ,when I was first diagnosed and very ill my lovely strong mum changed into a frail old lady instantly Its like she wont put any energy into caring for herself instead she frets over me If there is one thing I hate myeloma for its that , robbing that lovely lady of a more dignified old age Your dad has you to be with him As for your in-laws no wonder you cant visit I am sure I wouldnt Grief can make some people very selfish and unfeeling You and your children have each other ,draw strength from that and dont feel any guilt about your in-lawsThey should take a leaf out of your book Sarah ,despite everything you are going through you are so caring and supportive to others and no way should they be shouting at you Stay strong Sarah lots of love Bridget x ps sorry if this a bit garbled just taken oramorph x

[brochoParticipant]

Dear Mavis thankyou for your kind words, you always seem to say just the right thing If I do the jig I will get a pic on here Be warned it would not be pretty though!! love Bridget x

[brochoParticipant]

Dear Min my thoughts too will be with you today love and hugs Bridget x

[brochoParticipant]

Hi Sarah thankyou Imust admit I am near the end of my tether with it and usually I am pretty tough!! Luckily the Prof is very good and the RT worked well last time and I didnt have to wait too long either This time in a fortnight I will be dancing a jig on my front lawn !! Haha as if Take care Sarah love Bridget x

[brochoParticipant]

Hi Tom you are priceless!! I would love to have seen the look on your doctors face when you walked out!! Still professionals need reminding sometimes like the rest of us , a smile as a greeting can make all the difference Onwards Uwards and Sideways too if you can manage it!! love Bridget x

[brochoParticipant]

Morning Eve haha you have had your knuckles rapped now , join the club , thats how we all learnt to spell the cuss words!!! With that in mind my word is –CUSSEDNESS—-ESS Gill what happens if we have had the 3 letters before? love Bridgetx

[brochoParticipant]

Dear Min I am glad the children all got home to be with you Together you will be able to celebrate not just Peters life but your lives together. I can only imagine how alone you must feel now Min but Peter will always be with you in your hearts and minds and all the wonderful memories you share I will be thinking of you on Wednesday love Bridget x

[brochoParticipant]

Hi Jean thank you for that one! My word is — ULTIMATELY The next letters are— ELY love Bridget xxxx

[brochoParticipant]

Hi John good to hear Cecilia is doing well please pass on my best wishes. There is nothing worse or more painful than people digging around in your arm trying to find a suitable vein !! We have to put up with enough without that too. Ask about a PICC line they are brilliant! They work on the same principle as hickman lines but completely under the skin, so less risk of infection and even better they are put in under a local anaesthetic The whole procedure takes about 15 mins or so followed by an x-ray to check it is in the right place. Another advantage is they can be used to take blood too. I have had 3 so far and highly recommend them Trouble is not all hospitals have staff trained to fit them but definitely worth enquiring . I hope you find a solution soon let us know how you get on love Bridget x

[brochoParticipant]

Hi Tom thanks for the laugh – my wrists are well and truly slapped!! I will go into the hospice but not until I see how much difference the radiotherapy makes, the pain might go completely with the RT love Bridget x

[brochoParticipant]

Oooh good one Jean next word —- WORTHILY NEXT LETTERS—-ILY XX

[brochoParticipant]

Hi Debs I hope you get a quick refferal to Macmillan , it wikk be such a relief for you My nurse came round this week and the first thing she arranged was for the District nurses to come out to give me a painkilling injection of morphine if my usual doses fail to ease the pain Tat in itself was such a godsend as this week I have been desperate , especially in the middle of the night But now I know there is help on hand . She also came up with several suggestions to consider in the future if the radiotherapy doesnt work One of these was a spinal block, similiar to an epidural but if it works I will definitely consider it The hospital has told me radiotherapy could begin next Wednesday , I really hope so not sure how much more I can take !One of the worst things is taking large doses of morphune for breakthrough pain turns me into the equivalent of a junkie!!In the mornings my pupils are smaller than a pinhead! Because it also affects my vision it means I cant drive so I am stuck indoors , I really hate that Fingers crossed we both get sorted very soon Debs love Bridget x

[Author]

Posts